Socio-emotional effects of the transition from sight to blindness

Thurston, Mhairi; Thurston, Allen; McLeod, John

doi:10.1177/0264619609359304

Cited by 55 publications

(82 citation statements)

References 19 publications

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“…A part of this theoretical framework is supported by other qualitative studies, 7,13 especially that of Hayeems et al…”

Section: Discussionsupporting

confidence: 52%

“…11,12 Recent researches have addressed new intrapersonal variables in patients' experience of impairment. Mixed methods studies by Thurston et al 7,13 emphasized patients' experiences of changed perceptions of self as being associated with the adjustment process of transition from sighted to blindness. During this process, patients cope progressively with their vision loss.…”

Section: Introductionmentioning

confidence: 99%

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From self-awareness to self-identification with visual impairment: a qualitative study with working age adults at a rehabilitation setting

2011

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Objective: To explore the experience of vision loss, focusing on working age patients' self-awareness of impairment and self-identification with the impairment. Design: A cross-sectional and qualitative study, using semi-structured interviews. Setting: A specialized rehabilitation centre and a low vision unit at a public hospital. Participants: A convenience sample of 38 patients between the ages of 20 and 65, with sight loss caused by a serious ophthalmological condition acquired after the age of 18, and doing their rehabilitation. Main outcome measures: A semi-structured interview, addressing three core areas: the emotional impact of vision loss; adjustment; and social support. Interviews were transcribed, coded and analysed by two independent researchers. Results: Seven themes emerged from interviews. Changes in patients' identity, achievement and future life projection arose as being the main transformations caused by vision loss. Self-awareness of impairment appeared associated with the patients' first contact with their loss, while self-identification with the impairment arose connected with the later embodiment process of the vision loss. Conclusions: Patients' self-awareness and self-perceptions of impairment appear to be two important milestones in the adjustment process to vision loss. Their assessment and monitoring over the rehabilitation period might help to promote impairment acceptance and rehabilitation outcomes.

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“…A part of this theoretical framework is supported by other qualitative studies, 7,13 especially that of Hayeems et al…”

Section: Discussionsupporting

confidence: 52%

Section: Introductionmentioning

confidence: 99%

From self-awareness to self-identification with visual impairment: a qualitative study with working age adults at a rehabilitation setting

2011

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“…At a later stage, patients may more readily accept the involvement of a rehabilitation officer. Our argument in favour of early intervention is a theoretical one and would depend on a more detailed understanding of the early adaptation process and would need to take into take account patient variability and choice . Early intervention is supported by the greater rates of fear of blindness identified in patients with a diagnosis of glaucoma.…”

Section: Discussionmentioning

confidence: 99%

Eye clinic liaison officers service in the United Kingdom

Papastefanou

Kang

Simkiss

et al. 2019

Health Planning & Management

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Summary Background To investigate the role of eye clinic liaison officers (ECLOs) in the United Kingdom and analyse patients' demographics and services provided. Methods This is a retrospective observational study. Data were collected from the Royal National Institute of Blind People for ECLOs in Wales, Scotland, Northern Ireland and England for the first quarter of 2015. Statistical analysis was performed using chi‐square and t test as appropriate. Results Trusts with ECLOs support vary greatly in the UK regions. Only one‐third of NHS trusts in England have an ECLO service. Over 4000 patients were assessed. The majority of patients were of White ethnic background (94%), lived alone (37%), had no carers (58%) and were in their 80s (29.5%). The principal ocular conditions causing sight loss and certification were age‐related macular degeneration (41.6%) and glaucoma (18.1%). Approximately 70% of patients are first seen at 13 to 18 months from diagnosis. Conclusions ECLO services vary in the UK regions. England has the lowest ECLO availability per trust and the majority of those assessed were of White British origin with AMD. There are significant delays from diagnosis to the first visit indicating the need for improved services. Further studies are necessary to develop the evidence base for the expansion and funding of ECLO services.

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“…(P4) I am focussing all my hard work and determination on wheelchair sports -I decided to go to the gym and push harder … and because of that I now am training and playing lots. (P3) Wheelchair sport has given me something to focus on -(P2) It has been widely documented that people with disabilities can feel socially isolated and are often socially marginalised (Anderson & Clarke, 1982;Diamond, le Furgy, & Blass, 1993;Thurston et al, 2010). It was found that playing wheelchair sports fostered a sense of Downloaded by [University of California Santa Barbara] at 12:51 21 June 2016 belonging, as the participants, often for the first time, were able to feel understood and connect with others who felt like peers.…”

Section: Disability Sportmentioning

confidence: 99%

Growing up in a Mainstream World: A Retrospective Enquiry into the Childhood Experiences of Young Adults with a Physical Disability

Lumsdaine

Thurston

2016

International Journal of Disability, Development and Education

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a tayside centre for counselling, abertay university, Dundee, scotland; b school of social & Health sciences, abertay university, Dundee, scotland ABSTRACT Children with disabilities are at greater risk of developing mental health problems than their peers, yet the emotional well-being of this group is largely overlooked and there is scant literature about children with a mobility disability. This study examined the retrospective experiences of growing up with mobility disability. The sample comprised 16-25 year olds with mobility disability. A thematic analysis, informed by grounded theory was used. Themes identified included a common socio-educational journey, conflict between care and independence in school and the impact of being singled out because of disability outside school. The result was a range of psychosocial issues that affected participants' view of themselves and the world around them. The study also looked at what the participants found helpful in dealing with the emotional impact of their disability. Whilst some sought help through talking therapies, others found involvement in disability sport was helpful.

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Socio-emotional effects of the transition from sight to blindness

Cited by 55 publications

References 19 publications

From self-awareness to self-identification with visual impairment: a qualitative study with working age adults at a rehabilitation setting

From self-awareness to self-identification with visual impairment: a qualitative study with working age adults at a rehabilitation setting

Eye clinic liaison officers service in the United Kingdom

Growing up in a Mainstream World: A Retrospective Enquiry into the Childhood Experiences of Young Adults with a Physical Disability

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