Socioeconomic consequences of traumatic and non-traumatic spinal cord injuries: a Danish nationwide register-based study

Soendergaard, Pernille Langer; Norup, Anne; Kruse, Marie; Biering‐Sørensen, Fin

doi:10.1038/s41393-021-00724-3

Cited by 5 publications

(4 citation statements)

References 50 publications

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“…In our study, the high post-injury level of benefit receipt was probably partly influenced by the pre-injury level of sickness and disability benefits in the SCI sample (17%), which was elevated compared to controls (9%). This difference in pre-injury benefit status is in line with findings from a nationwide Danish register-based SCI study that showed approximately two times higher health care costs for persons with SCI two years before injury, compared to controls [ 25 ]. We found their explanation, that this might be related to ongoing disease in advance of non-traumatic SCI, and a traumatic SCI group that could be more accident-prone, both resulting in higher costs, plausible and relevant for our findings.…”

Section: Discussionsupporting

confidence: 83%

Labour market participation after spinal cord injury. A register-based cohort study

et al. 2023

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Study design A register based cohort study. Objectives To investigate labour market participation following spinal cord injury (SCI) and to describe the impact of personal and SCI characteristics. Setting Norway. Methods Persons registered with SCI in the Norwegian SCI registry 2011–2017, and matched reference individuals without SCI from the general population (named controls) were followed for up to six years after injury using national registry data on employment, education, income, and social security benefits. Main measures of labour market participation were: (1) Receiving any amount of pay for work, and (2) Receiving sickness and disability benefits. Results Among the 451 persons with SCI (aged 16–66 years and working before injury), the estimated percentages receiving pay for work and sickness and disability benefits in the sixth years after injury were 63% (95% CI 57–69) and 67% (95% CI 61–72). Corresponding percentages for the controls (n = 1791) were 91% (95% CI 90–93) for receiving pay for work and 13% (95% CI 12–15) for receiving sickness and disability benefits. Among persons with SCI, less severe neurological outcome, higher level of education, younger age at injury, and a stronger pre-injury attachment to employment (higher employment income, having an employer, less receipt of benefits), were associated with higher labour market participation. Conclusion SCI substantially decreased labour market participation up to six years after injury compared to matched controls. Even if a relatively large proportion of persons with SCI remained in some degree of work activity, more than half did so in combination with receiving benefits.

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Section: Discussionsupporting

confidence: 83%

Labour market participation after spinal cord injury. A register-based cohort study

et al. 2023

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“…Adverse consequences have been reported such as long-term stress ( 8 ), decreased health-related quality of life ( 9 – 11 ), burnout ( 12 ), and symptoms of anxiety and depression ( 13 , 14 ). In line with these results, recent studies have found that family members of individuals with SCI or TBI had higher healthcare use following the injury ( 3 , 15 ).…”

supporting

confidence: 71%

“…Adverse consequences have been reported such as long-term stress (8), decreased health-related quality of life (9)(10)(11), burnout (12), and symptoms of anxiety and depression (13,14). In line with these results, recent studies have found that family members of individuals with SCI or TBI had higher healthcare use following the injury (3,15). The caregiver group is heterogeneous, and furthermore different consequences of stroke, SCI, and TBI might affect caregivers differently, resulting in diverse and complex needs (6).…”

mentioning

confidence: 77%

Psychometric properties of the Danish version of the Caregiver Burden Scale: Investigating predictors and severity of burden after stroke, spinal cord injury, or traumatic brain injury

Norup,

Soendergaard,

Wolffbrandt

et al. 2024

JRM

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Objective: To investigate (i) psychometric properties of the Danish version of the Caregiver Burden Scale, (ii) predictors of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury, and (iii) severity of caregiver burden, and compare level of severity of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury. Design: Cross-sectional study. Participants: Pooled sample of 122 caregivers. Methods: Psychometric properties including internal consistency, floor and ceiling effects, inter-item and item-total correlation were investigated using the Caregiver Burden Scale. Severity of burden was compared using Fisher’s exact test and ANOVA, and predictors of burden were investigated using multiple linear regression models. Results: The total burden score exhibited good internal consistency (α = 0.93), with no floor or ceiling effects. Longer time as a caregiver was a significant predictor of higher total score. The majority (52.2%) reported a low level of caregiver burden (below cut-off of 2.00). Mean scores on the Caregiver Burden Scale were not significantly different among caregivers across diagnostic groups. Differences were found when comparing spinal cord injury caregivers with brain injury caregivers (traumatic brain injury and stroke, collectively), χ2(2) = 6.38, p = 0.04, as spinal cord injury caregivers were more likely to report low levels of burden. Conclusion: Good psychometric properties were reported, and most caregivers reported a low level of burden, and longer time as a caregiver was associated with higher burden. Consequently, the Caregiver Burden Scale is a valid measure to use when measuring burden in caregivers of stroke, spinal cord injury, and traumatic brain injury patients.

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“…An injury can affect family functioning in the long-term, with increased emotional burden, high frequencies of symptoms of anxiety and depression, and lower quality of life (QoL) reported up to 20 years after the injury [1,5,[10][11][12][13][14][15][16][17]. Furthermore, despite the treatment provided from a formal health care system, informal care relies on family members, which can pose a significant caregiver burden [15,[18][19][20][21][22], causing an imbalance in the family system [2,23] and a threat to the family relationship [17,[24][25][26]. Increased levels of burden on family members can furthermore have an impact on their level of psychological distress, which can affect their ability to provide care.…”

Section: Introductionmentioning

confidence: 99%

Investigating the Effectiveness of a Family Intervention after Acquired Brain or Spinal Cord Injury: A Randomized Controlled Trial

Soendergaard

Arango-Lasprilla

Wolffbrandt

et al. 2023

JCM

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(1) Background: Acquired brain injury (ABI) or spinal cord injury (SCI) constitutes a severe life change for the entire family, often resulting in decreased quality of life (QoL) and increased caregiver burden. The objective of this study was to investigate the effectiveness of a family intervention in individuals with ABI or SCI and in their family members. (2) Methods: An RCT of a family intervention group (FIG) vs. a psychoeducational group (PEG) (ratio 1:1) was performed. The FIG received an eight-week manual-based family intervention, and the PEG received one psychoeducational session. Self-reported questionnaires on QoL with the Mental Component Summary (MCS) and on caregiver burden with the Caregiver Burden Scale (CBS) were the primary outcomes. The data analysis involved linear mixed-effects regression models. (3) Results: In total, 74 participants were allocated randomly to the FIG and 84 were allocated randomly to the PEG. The FIG had significantly larger improvements on the MCS and significantly larger reductions on the CBS at the two-month follow-up than participants in the PEG (mean differences of 5.64 points on the MCS and −0.26 points on the CBS). At the eight-month follow-up, the between-group difference remained significant (mean difference of 4.59 points) on the MCS, whereas that on the CBS was borderline significant (mean change of −0.14 points). (4) Conclusions: Family intervention was superior to psychoeducation, with larger improvements in QoL and larger reductions in caregiver burden.

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Socioeconomic consequences of traumatic and non-traumatic spinal cord injuries: a Danish nationwide register-based study

Cited by 5 publications

References 50 publications

Labour market participation after spinal cord injury. A register-based cohort study

Labour market participation after spinal cord injury. A register-based cohort study

Psychometric properties of the Danish version of the Caregiver Burden Scale: Investigating predictors and severity of burden after stroke, spinal cord injury, or traumatic brain injury

Investigating the Effectiveness of a Family Intervention after Acquired Brain or Spinal Cord Injury: A Randomized Controlled Trial

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