Socioeconomic position and the pre-diagnostic interval among patients diagnosed with head and neck squamous cell carcinoma - a population-based study from DAHANCA

Halgren Olsen, Maja; Maltesen, Thomas; Lassen, Pernille; Kjaer, Trille Kristina; Johansen, Jørgen; Primdahl, Hanne; Andersen, Elo; Kristensen, Claus Andrup; Andersen, Maria; Farhadi, Mohammad; Overgaard, Jens; Dalton, Susanne Oksbjerg

doi:10.1080/0284186x.2023.2254478

Cited by 2 publications

(2 citation statements)

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“…A reason for this may be that people with higher education are more interested in new research and are more willing to participate in such surveys. HNC patients are usually reported to have a lower educational level compared to the general public and other tumors [13,14]. However, the HNC patients in our study compared more to the general Danish population, which may reflect the above-mentioned greater interests in participating in survey studies among persons with higher educations.…”

Section: Discussionmentioning

confidence: 53%

“…Due to different risk factors and epidemiology of the various subsites in HNC, certain groups may have different demography and social status compared to others (e.g., patients with thyroid and salivary gland tumors compared to patients with SCC). Disparities are also found within the SCC groups as patients with HPV-positive oropharyngeal tumors have been shown to have longer education compared to patients with HPV-negative tumors [14].…”

Section: Introductionmentioning

confidence: 99%

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Survey of Danish Head and Neck Cancer Patients’ Positions on Personalized Medicine, Gene Tests, and Personalized Follow-Up

Danstrup,

Andersen,

Lundbye-Christensen

et al. 2024

JPM

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The field of personalized medicine (PM) has grown rapidly because of the “omics revolution”, but PM may be difficult for patients to comprehend. This study sought to explore head and neck cancer (HNC) patients’ positions and knowledge of PM, gene tests, and follow-up and to compare HNC patients’ positions to a sample from a national Danish questionnaire. To do this, patients with prior HNC were invited to participate in a questionnaire. Initial interviews revealed a heterogenic understanding of PM between patients. A total of 226 patients were included in the survey and 177 patients with complete data were included for analysis. Most patients were more positive than negative towards gene tests and gene research (83% and 93%, respectively), but 72% had little or no knowledge of the subject. Almost all patients, 98%, were satisfied with their follow-up. Significantly more patients with HNC were positive towards gene research compared to a sample from a national Danish questionnaire (p < 0.001). Patients with HNC were positive towards gene tests and PM, but patients may not understand or comprehend the information given, and it is important to inform and educate patients and health professionals to establish common ground in PM.

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Section: Discussionmentioning

confidence: 53%

Section: Introductionmentioning

confidence: 99%