Socioeconomic Status, Family Functioning and Delayed Care Among Children With Special Needs

Donley, Tiffany; King, Dione Moultrie; Nyathi, Nhlanganiso; Okafor, Anthony; Mbizo, Justice

doi:10.1080/19371918.2018.1504703

Cited by 16 publications

(13 citation statements)

References 41 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our analysis is consistent with this research detailing the mental/physical consequences of persistent stress and hidden emotional experiences of male caregivers (Caicedo, 2014;Edelstein et al, 2017;Heaman, 1995;Kvarme et al, 2016). As several male caregivers in our sample deprioritized some of their own needs, their voices support the need to include parental mental/emotional health within family-centered care models for CYSHCN (Donley et al, 2018;Thurston et al, 2011).…”

Section: Discussionsupporting

confidence: 87%

Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs

Lynch

Raziano

Feehan

et al. 2021

Matern Child Health J

View full text Add to dashboard Cite

ObjectivesThe caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sample of male caregivers of CYSHCN. Methods This mixed-methods study recruited a convenience sample of 30 men with CYSHCN who receive care for a chronic medical condition from primary care medical homes in Pennsylvania. We conducted semi-structured interviews (SSI), administered quantitative surveys to caregivers, and produced a thematic analysis. The SSI explored the health needs of male caregivers, assessed attitudes toward and preferences regarding supportive resources, and garnered their advice to other caregivers regarding parenting and health care system navigation. Results Participants' median age is 41 years (IQR: 33, 44), and most (80%) reside full time with their CYSHCN. Most male caregivers deprioritized their own emotional, mental, and physical health needs to support the needs of their families. Many male caregivers articulated interest in seeking emotionally supportive resources (not time-intensive). They advised other male caregivers to remain involved in the medical care and wellbeing of their CYSCHN and to openly seek and receive emotional support despite the daily challenges they face. Conclusions for Practice Male caregivers of CYSHCN experience intense daily stress and express the need for emotionally supportive resources. Programs designed to facilitate such support may benefit from flexible formats (time and location) and involve male caregivers of CYSHCN as both facilitators and participants. KeywordsChildren with special health care needs • Family centered care • Emotional support • Caregiver health • Social support • Male caregivers Abbreviations CYSHCN Children and youth with special health care needs CMC Children with medical complexity SSI Semi-structured interviews * Renee Turchi

show abstract

Section: Discussionsupporting

confidence: 87%

Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs

Lynch

Raziano

Feehan

et al. 2021

Matern Child Health J

View full text Add to dashboard Cite

show abstract

“…Using a selection of the few studies that have focused on the family structure-family functioning-health nexus, we reflect on how this research mirrors these two exemplars of a causal model. In a recent study, Donley et al [40] apply regression analysis to cross-sectional data collected from the parents of American children with special needs. The authors conclude that socio-economic factors are less impactful on delayed care than family dynamics.…”

Section: Empirical Workmentioning

confidence: 99%

Conceptual causal models of socioeconomic status, family structure, family functioning and their role in public health

2021

View full text Add to dashboard Cite

Social determinants of health frameworks are standard tools in public health. These frameworks for the most part omit a crucial factor: the family. Socioeconomic status moreover is a prominent social determinant of health. Insofar as family functioning is poorer in poor families and family structure and functioning are linked to health, it is critical to consider the pathways between these four constructs. In this correspondence, we reflect on how empirical studies of this conceptual nexus mirror two causal models. We conclude by reflecting on future directions for research in this field.

show abstract

“…Our rationale for this exclusion was that children with special health care needs are at increased risk for oral diseases and receive more dental care compared to children without such needs 20 . Also, parenting stress—our study mediator—is reportedly higher in children with special health care needs 21 …”

Section: Methodsmentioning

confidence: 83%

“…20 Also, parenting stress-our study mediator-is reportedly higher in children with special health care needs. 21 The present study is based on analysis of an anonymous publicly available dataset and thus was exempt from the University of British Columbia's Behavioral Research Ethics Board review.…”

Section: Participantsmentioning

confidence: 99%

Parenting stress as a mediator in the oral health of children and adolescents: A stress process model

Gazzaz

Carpiano

Aleksejūnienė

2020

Comm Dent Oral Epid

View full text Add to dashboard Cite

Objectives We tested hypotheses regarding socioeconomic status (SES) disparities in oral health amongst children and adolescents and the extent to which such SES disparities may be mediated by parenting stress. Methods We analysed data from the 2011/2012 US National Survey of Children's Health for ages 6‐11 years (n = 21 596) and 12‐17 years (n = 23 584). Our models estimated associations between SES indicators (family income and parental education) and parenting stress with two oral health outcomes: parent‐reported child oral health and preventive dental visits. Results For both age groups, SES was positively associated with both oral health outcomes. Parenting stress mediated the relationship between SES and child oral health, not preventive dental visits—such that lower SES was associated with worse oral health via higher parenting stress. Amongst children, the indirect effect of parenting stress was observed for parental education and family income, whilst amongst adolescents, no indirect effect of parenting stress was observed. Conclusion Parenting stress was an important determinant of children's oral health and partially explained the SES‐related oral health disparities in children. Future research is needed to explore the causal pathways in this association.

show abstract

Socioeconomic Status, Family Functioning and Delayed Care Among Children With Special Needs

Cited by 16 publications

References 41 publications

Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs

Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs

Conceptual causal models of socioeconomic status, family structure, family functioning and their role in public health

Parenting stress as a mediator in the oral health of children and adolescents: A stress process model

Contact Info

Product

Resources

About