Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

Abstract

Investigations evaluating the effectiveness of music-based interventions as a complementary approach to symptom management and health promotion for cognitively-impaired children with life-limiting conditions and their families are needed to minimize the physical and psychological burdens on individuals and their caregivers. Songwriting is one music-based strategy for a remote family-centered complementary approach to improve outcomes for cognitively-impaired children with life-limiting conditions, their parents, and families. The overall purpose of this study is to test the feasibility and preliminary efficacy of a songwriting intervention for cognitively-impaired children (ages 5–17 years) who are receiving palliative or complex care and their parents. Specific aims are to: (1) determine the feasibility of songwriting for cognitively-impaired children with life-limiting conditions and their parents, and (2) examine preliminary efficacy of songwriting for child psychological distress and physical symptoms, parent psychological distress, and family environment. The protocol for this 1-group pre-and post-intervention clinical trial ( N = 25) is described.

Ethical Considerations in Oncology and Palliative Care Research During COVID-19

“…We have other ongoing research that has included in-person interventions (e.g., music therapy intervention, yoga) successfully delivered via videoconferencing platforms, despite initial thinking this was not possible. Our music therapy intervention study ( Akard et al, 2021 ), in particular, has resulted in unanticipated gains, including decreased participant burden by not being required to come to the hospital/clinic for services and greater patient access. Researchers should be open-minded to consider remote intervention delivery methods if such approaches might allow for their research to continue during COVID-19.…”

A Musicoterapia como estratégia de cuidados a criança elegível para cuidados paliativos: revisão integrativa / Music therapy as a care strategy for children eligible for palliative care: integrative review

“…As composições musicais tiveram um fator importante nas crianças obtendo a melhora dos fatores psíquicos de ambos e também a melhora da comunicação entre os familiares que também é prejudicada (AKARD et al, 2021). A partir da intervenção há uma facilitação da interação familiar, melhora na comunicação entre o paciente e família e entre paciente e equipe (LAHAM et al, 2012), que por conta da dor é afetado esse âmbito social.…”