Sources of Frustration Among Patients Diagnosed With Renal Cell Carcinoma

Bergerot, Cristiane Decat; Battle, Dena; Bergerot, Paulo Gustavo; Dizman, Nazlı; Jonasch, Eric; Hammers, Hans J.; George, Daniel J.; Bex, Axel; Ljungberg, Börje; Pal, Sumanta K.; Staehler, Michael

doi:10.3389/fonc.2019.00011

Cited by 11 publications

(10 citation statements)

References 19 publications

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“…Hope is also a necessary and crucial element of survival and life expectancy. 50 The effect size of the present study was 1.74, which was large enough. However, the effects size of a hope-based intervention for colorectal cancer was small in a previous study.…”

Section: Discussionmentioning

confidence: 53%

<p>The Effect of Peer Support on Hope Among Patients Under Hemodialysis</p>

Pasyar¹,

Rambod²,

Jowkar³

2020

IJNRD

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Introduction: Providing social support for patients under hemodialysis treatment can reduce their psychological, social, and physical problems. The present study aimed at determining the effect of peer support on hopefulness in patients under hemodialysis. Methods: This clinical trial with a pre/posttest design was conducted on 128 patients who had referred to the hemodialysis centers of Shiraz University of Medical Sciences in 2019. The patients were randomly divided into an intervention and a control group. The patients in the intervention group were supported by their peers for eight weeks and were provided with the usual care, but the controls were only provided with the usual care. The data were collected using Snyder Hope Scale. Then, the data were entered into the SPSS software, version 18 and were analyzed using independent t-test and paired t-test. Results: At baseline, the participants in both groups were similar with respect to the mean scores of hope and its subscales (p>0.05). However, there was a significant difference between the two groups in terms of hope and its subscales eight weeks after the intervention (p<0.001). Conclusion: The results confirmed the effect of peer support on increasing hope among the patients under hemodialysis. Peer support in informational, emotional, instrumental, and spiritual forms could create a positive incentive and increase hope among the patients. Clinical Trial Number: This clinical trial has been registered in the Iranian Registry of Clinical Trials (IRCT20190126042498N1).

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Section: Discussionmentioning

confidence: 53%

<p>The Effect of Peer Support on Hope Among Patients Under Hemodialysis</p>

Pasyar¹,

Rambod²,

Jowkar³

2020

IJNRD

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“…Uncertainty in cancer is one of the most significant forms of distress in cancer patients [ 11 ]. It could be that the specter of future costs, fear related to inability to care for their family as their disease progresses, could be more important drivers to consider when measuring financial toxicity.…”

Section: Discussionmentioning

confidence: 99%

COVID-19 and financial toxicity in patients with renal cell carcinoma

Staehler

Battle²,

Bergerot

et al. 2020

World J Urol

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Purpose To ascertain renal cell carcinoma (RCC) financial toxicity on COVID-19 during the COVID-19 crisis as patients are struggling with therapeutic and financial implications. Methods An online survey was conducted from March 22 to March 25, 2020. It included baseline demographic, clinicopathologic, treatment-related information, anxiety levels related to COVID-19, questions related to financial concerns about COVID-19 as well as the validated 11-item COST measure. Results Five-hundred-and-thirty-nine patients (39%:58% male:female) from 14 countries responded. 23% of the patients did not feel in control of their financial situation but 8% reported being very satisfied with their finances. The median COST score was 21.5 (range 1–44). Metastatic patients who have not started systemic therapy had a COST score (19.8 range 2–41) versus patients on oral systemic therapy had a COST score (23.9 range 4–44). Patients in follow-up after surgery had a median COST score at 20.8 (range 1–40). A low COST scores correlated (p < 0.001) were female gender (r = 0.108), younger age (r = 0.210), urban living situation (r = 0.68), a lower educational level (r = 0.155), lower income (r = 0.165), higher anxiety about acquiring COVID-19 (r = 0.198), having metastatic disease (r = 0.073) and a higher distress score about cancer progression (r = 0.224). Conclusion Our data highlight severe financial impact of COVID-19. Acknowledging financial hardship and thorough counseling of cancer patients should be part of the conversation during the pandemic. Treatment and surveillance of RCC patients might have to be adjusted to contemplate financial and medical needs.

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“…As might be expected, patients diagnosed with metastatic cancer, regardless of type, tend to report high levels of distress, with subsequent impairment in QoL, worse clinical outcomes, and increased health care resource utilization [3,18]. Fear of cancer recurrence/progression is also an important contributor and has been associated with greater distress [19]. Such fear can also fail to diminish over time and is characterized by intrusive thoughts about cancer, interpretation of symptoms as a sign of recurrence/progression, limited capacity to plan for the future, and negative belief patterns [20].…”

mentioning

confidence: 95%