2023
DOI: 10.1007/s00520-023-07626-5
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Sources of informal financial support among adolescent and young adult cancer survivors: a mixed methods analysis from the HIAYA CHAT study

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Cited by 5 publications
(7 citation statements)
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References 26 publications
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“…While we know of no current policy nor procedural steps to ameliorate this inherent crowdfunding inequity, what is certain is that such inequity is not due to the individual user's fault, but rather the systemic wealth inequalities across social networks, limiting the crowdfunding potential for many 25 . The findings of this study are consistent with the existing literature, suggesting that when cancer patients are forced to rely on crowdfunding to afford their medical and non‐medical costs, such mechanisms mirror systems of oppression that drive economic inequity in the population 9,25,35,36 . Crowdfunding is not a solution to cancer‐related financial burden but rather one source of financial support used by patients in an often unaffordable healthcare system.…”
Section: Discussionsupporting
confidence: 76%
See 1 more Smart Citation
“…While we know of no current policy nor procedural steps to ameliorate this inherent crowdfunding inequity, what is certain is that such inequity is not due to the individual user's fault, but rather the systemic wealth inequalities across social networks, limiting the crowdfunding potential for many 25 . The findings of this study are consistent with the existing literature, suggesting that when cancer patients are forced to rely on crowdfunding to afford their medical and non‐medical costs, such mechanisms mirror systems of oppression that drive economic inequity in the population 9,25,35,36 . Crowdfunding is not a solution to cancer‐related financial burden but rather one source of financial support used by patients in an often unaffordable healthcare system.…”
Section: Discussionsupporting
confidence: 76%
“…crowdfunding to afford their medical and non-medical costs, such mechanisms mirror systems of oppression that drive economic inequity in the population. 9,25,35,36 Crowdfunding is not a solution to cancer-related financial burden but rather one source of financial support used by patients in an often unaffordable healthcare system.…”
Section: Non-lgbtq+ Campaigns Differential Effect ($) [95% Ci] Predic...mentioning
confidence: 99%
“…This finding may be particularly important for low income and other at-risk patients who often do not have access to informal financial support from their family and friends. 38 Further, this finding supports recommendations for systematic screening for financial burden in the pediatric oncology setting, as systematic screening may result in better access to formal financial support. 39 At the same time, however, systematic screening may prove unethical if health systems do not have the capacity to close the resource referral loop (e.g., assist caregivers with filling out complicated applications) among caregivers with limited health literacy or time to apply to formal financial support.…”
Section: Discussionsupporting
confidence: 64%
“…In other words, caregivers with the highest financial toxicity and cost‐coping behaviors may not have appropriate access to formal financial support resources through their hospital or other external sources. This finding may be particularly important for low income and other at‐risk patients who often do not have access to informal financial support from their family and friends 38 . Further, this finding supports recommendations for systematic screening for financial burden in the pediatric oncology setting, as systematic screening may result in better access to formal financial support 39 .…”
Section: Discussionsupporting
confidence: 55%
“…More than other age groups, AYAs are uninsured 48 and report insufficient financial support to manage their cancer care. 28 Over 25% of reported a coverage gap within the 35 months after cancer diagnosis, and 20% found that physician-recommended medical care was not covered even when they were insured. 29 Moreover, AYAs with lower SES, even with insurance coverage, may be at additional risk for poorer outcomes.…”
Section: The Role Of Insurance Ses and The Aca In Aya Outcomesmentioning
confidence: 99%