Spaces out of reach? Service user involvement in residents’ meetings at recovery-oriented social housing facilities for young people with mental health disorders

Steno, Anne Mia; Jønsson, Alexandra Brandt Ryborg

doi:10.1177/13634593221075950

Cited by 3 publications

(5 citation statements)

References 23 publications

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“…The anthropologist in our author group saw a connection between the informants’ descriptions of feeling labelled, even stigmatised, because of their chronic conditions and her previous studies on Subjective health inequity when living with multimorbidity. 49 , 50 , 52 The informants recognised, gave examples, and thereby validated but modified the two preliminary domains and 10 items. They did not use the term Self-perceived health inequity but spoke in detail of experiences of feeling that their illnesses negatively influenced how they felt they were perceived by the people around them.…”

Section: Resultsmentioning

confidence: 99%

“…The anthropologist in our author group saw a connection between the informants' descriptions of feeling labelled, even stigmatised, because of their chronic conditions and her previous studies on Subjective health inequity when living with multimorbidity. 49,50,52 The informants recognised, gave examples, and thereby validated but modified the two preliminary domains and 10…”

Section: Resultsmentioning

confidence: 99%

“…The preliminary domains and items were based on transcribed interviews, extensive ethnographical fieldwork including notes and transcribed interviews from previous studies regarding subjective health inequity, and theory and frameworks on stigma. [44][45][46][47][48][49][50][51][52][53] The author group revised the items before they were tested in subsequent interviews along with the items from the item bank.…”

Section: Interviewsmentioning

confidence: 99%

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Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

Bissenbakker,

Møller,

Jønsson

et al. 2023

PROM

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Purpose To describe the processes of developing domains and items for the MultiMorbidity Questionnaire (MMQ), a multimorbidity-specific PROM for the assessment of Needs-based QoL. Patients and Methods We developed items and domains for the MMQ through 17 qualitative content validity questionnaire interviews with adults with multimorbidity by testing items from an item bank (covering items with content inspired by existing Needs-based QoL measures for single diseases). The interviews alternated between an explorative part and more focused cognitive interview techniques. Results Testing the 47 items from the first draft of the MMQ items showed that the Needs-based approach as a framework did not cover all the QoL aspects our informants stated as being important. Therefore, the conceptual framework was supplemented by Self-perceived health inequity, and new items were generated. MMQ, measuring Needs-based QoL (MMQ1) and Self-perceived health inequity (MMQ2), was assembled. MMQ1 covers the domains: “Physical ability” (10 items), “Limitations in everyday life” (15 items), “Worries” (11 items), “My social life” (11 items), “Self-image” (12 items), and “Personal finances” (2 items). Self-perceived health inequity proved to be a relevant framework for other aspects of QoL not covered by the Needs-based approach to QoL. MMQ2 covers the domains: “Experiences of being stigmatized” (five items), “Experiences of not being seen and heard” (four items), “Insufficient understanding of the burden of disease” (three items) and “Experiences of feeling powerless” (five items). Conclusion We have developed the final MMQ draft, a multimorbidity-specific PROM for the assessment of Needs-based QoL (MMQ1) and Self-perceived health inequity (MMQ2) with high content validity (regarding content relevance and comprehensiveness). The final MMQ draft will be assessed for its psychometric properties using Modern Test Theory.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Interviewsmentioning

confidence: 99%

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Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

Bissenbakker,

Møller,

Jønsson

et al. 2023

PROM

Self Cite

View full text Add to dashboard Cite

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“…It is not solely a feeling but also something the body senses. A space that is too narrow to navigate with a walker becomes out of reach for someone who uses a walker, signaling that this is not suitable for their body (Ahmed 2006;Steno 2023;Steno and Jønsson 2022). This, as I show through my research, can trigger feelings of loneliness.…”

Section: Spaces Of Lonelinessmentioning

confidence: 99%

Social and Spatial Aspects of Loneliness: Challenges to Belong and Acquiring a Sense of Home in a Senior Housing Facility in Denmark

Steno

2023

A&A

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This paper contributes to the literature on loneliness by exploring how loneliness is impacted by a sense of home and experiences and negotiations of belonging. With an ethnographic point of departure in a newly established senior housing facility for older adults experiencing loneliness in Denmark, the paper discusses loneliness as a social and spatial phenomenon that is not static and does not exclusively pertain to the individual. Instead, it is something that is reshaped and (re)negotiated among the residents and their surroundings. This holds promise for welfare professionals to work on alleviating loneliness among older adults at senior housing facilities through working with the arrangements of the social and physical environments. This paper also notes that structures and physical settings that are purportedly supportive can also alienate older adults and hence risk worsening their experiences of loneliness.

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“…In our study, certain GPs were cognizant of the risk of overshadowing and how symptoms from various illnesses might intertwine. Adding to this complexity, individuals with SMI frequently encounter prejudice and societal marginalization [28], fostering distrust in authorities, including healthcare personnel. This further impedes the nurturing of a robust patient-GP relationship [29,30].…”

Section: Diagnosing (New) Diseases and Risk Factors In The Consultationmentioning

confidence: 99%

General practitioners’ experiences of providing somatic care for patients with severe mental illness: a qualitative study

Jønsson,

Brodersen,

Reventlow

et al. 2024

BMC Prim. Care

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Background Patients dealing with severe mental illnesses (SMI) often face suboptimal clinical outcomes and higher mortality rates due to a range of factors, including undetected physical health conditions. The provision of care for individuals with SMI is frequently disjointed, as they engage with diverse healthcare providers. Despite this fragmentation, primary care, particularly general practitioners (GPs), assumes a pivotal role in the care of SMI patients. Our study aimed to delve into the first-hand experiences of GPs in delivering somatic care to SMI patients, concentrating on the challenges they encounter and the strategies they employ to navigate these difficulties. Methods We conducted in-depth interviews with fifteen GPs, utilizing a semi-structured interview guide, supplemented by ethnographic observations during clinical consultations in general practice. Through inductive coding, interview transcripts and observational field notes were systematically analysed using interpretative phenomenological analysis (IPA). The findings were then deliberated upon within the author group. Results GPs revealed that managing the chronic somatic care of SMI patients posed significant challenges. These challenges encompassed the multifaceted needs of patients, their behavior tied to symptoms, a lack of care continuity, and overarching time constraints. To tackle these challenges, the GPs had devised various strategies. However, all participants underscored the critical importance of having adequate time to properly prepare for, conduct, and follow up on consultations. Conclusion The GPs’ interactions with SMI patients brought numerous challenges, although treating these patients were concurrently acknowledged as vital and fulfilling. The findings suggest that increased allocated time in general practice consultations for patients with SMI is important to support the somatic treatment requirements of this patient group.

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Spaces out of reach? Service user involvement in residents’ meetings at recovery-oriented social housing facilities for young people with mental health disorders

Cited by 3 publications

References 23 publications

Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)

Social and Spatial Aspects of Loneliness: Challenges to Belong and Acquiring a Sense of Home in a Senior Housing Facility in Denmark

General practitioners’ experiences of providing somatic care for patients with severe mental illness: a qualitative study

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