Spina bifida cystica and family stress.

Hare, Elizabeth; Laurence, K. M.; Payne, H.; Rawnsley, K.

doi:10.1136/bmj.2.5516.757

Cited by 70 publications

(26 citation statements)

References 4 publications

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“…Specific defects which have been investigated from this point of view include spina bifida (Hare, et al, 1966;Timson, 1970;Walker, Thomas, and Russell, 1971;Richards and McIntosh, 1973;Hunt, 1973), congenital heart disease (Polani and Campbell, 1955;Apley, Barbour, and Westmacott, 1967;Boon, 1972), and Down's disease (Newcombe, 1965). There are also a few references to reproductive behaviour following stillbirths and infant deaths (Newcombe and Rhynas, 1962;Sheps, 1965;Vogel and Knox, 1975) where no attempt was made to distinguish between malformations and other causes of death.…”

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confidence: 99%

The influence of the birth of a malformed child on the mother's further reproduction.

Record¹,

Armstrong²

1975

Journal of Epidemiology & Community Health

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-273. The influence of the birth of a malformed child on the mother's further reproduction. Births which occurred in Birmingham in 1964-70 were assembled into fraternities by computer linkage. By calculating the frequency with which one birth was followed by another and the interval between births the reproductive behaviour of mothers after the birth of a malformed child was compared with that of all mothers, taking account of differences in maternal age, parity, and period of observation. It was found that malformations which resulted in stillbirth or early death were more frequently followed by another birth and that the interval to the following birth was shorter than usual. In this respect malformations did not differ in their effect from other causes of stillbirth and infant death. The birth of children with severe malformations who survived, however, acted as a slight deterrent to further reproduction. The malformation rate among children born after a malformation was double the usual rate; the recurrence rate was particularly high for neural tube defects, 5 % of subsequent children being affected. In spite of this parents of children with central nervous system malformations were not deterred from further reproduction unless the affected child survived.

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confidence: 99%

The influence of the birth of a malformed child on the mother's further reproduction.

Record¹,

Armstrong²

1975

Journal of Epidemiology & Community Health

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“…Improved techniques did not lead to fewer, but to more, handicapped children, because with the increased survival rate many more severely affected infants survive (Lorber, 1971a). The policy of offering active treatment to all infants, irrespective of the type and degree of their physical condition and their social background, resulted in great suffering for the patients and in grave family, social, educational, financial, and community problems (Hare et al, 1966;Freeston, 1971;Lightowler, 1971;Walker, Thomas, and Russell, 1971). For these reasons an attempt was made in an earlier study to define certain criteria which can be readily recognized soon after birth, without the use of elaborate investigations, and which would serve as a basis for selection.…”

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Spina Bifida Cystica: Results of Treatment of 270 Consecutive Cases with Criteria for Selection for the Future

Lorber¹

1972

Archives of Disease in Childhood

122

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“…Parents of children with special problems need and want, in varying degrees, "help and advice~' (Laurence, Payne and Rawnsley, 1966). In their study of 97 cases, one-third of the mothers expressed a wish for more services, with particular emphasis on empathy.…”

Section: Chapter II Review Of the Literature L Presenting Informationmentioning

confidence: 99%

“…(9) Remember that we are parents and you are professionals, i.e., do not in front of us: belittle the opinion of your professional partner; make critical remarks about other parents; jump to conclusions about our case; or, try to do a job that is outside your professional discipline. (1) Remember the importance of your attitude towards us. We expect you to be objective about our problem but never about us.…”

Section: Chapter II Review Of the Literature L Presenting Informationmentioning

confidence: 99%

Diagnostic congruence: a study on presentation of clinical information to parents and recall

Maier¹

2000

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The pr~sent study was an investigation of recall following presentation of diagnostic information. The setting was the Crippled Children's Division of the University of Oregon Medical School.The purpose of the study was to test the hypothesis that one session conferencing imparting diagnostic information to parents of handicapped children reduces recall. Additionally, it was hypothesized that multi-discipline conferencing is related to greater diagnostic recall than single discipline conferencing. The sample was made up of 20 parent units whose children were evaluated at the Crippled The results supported the hypotheses. Diagnostic congruence was by far, more the exception than the rule• Implications suggest that additiona,l follo"".' up services are necessary.

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Spina bifida cystica and family stress.

Cited by 70 publications

References 4 publications

The influence of the birth of a malformed child on the mother's further reproduction.

The influence of the birth of a malformed child on the mother's further reproduction.

Spina Bifida Cystica: Results of Treatment of 270 Consecutive Cases with Criteria for Selection for the Future

Diagnostic congruence: a study on presentation of clinical information to parents and recall

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