Spiritual care as an integrated approach to palliative care for patients with neurodegenerative diseases and their caregivers: a literature review

Paal, Piret; Lex, Katharina Maria; Brandstötter, Cornelia; Weck, Christiane; Lorenzl, Stefan

doi:10.21037/apm.2020.03.37

Cited by 14 publications

(4 citation statements)

References 71 publications

(91 reference statements)

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“…Rogers and Wattis (2020) performed an in-depth analysis of the competences needed for the implementation of spiritual care and found the following competences as critical: intrapersonal spirituality, interpersonal spirituality, assessment and planning of spiritual care, and intervention and evaluation of spiritual care. Importantly, when nurses embrace spiritual care into their clinical practice, they can have a major impact in alleviate the suffering of the patient and enhance the meaning and purpose of the patient's life (Paal, Lex, Brandstötter, Weck, & Lorenzl, 2020).…”

mentioning

confidence: 99%

Spiritual Distress in Patients With Cancer Initiating Chemotherapy: A Cross‐Sectional Study

Martins

Caldeira

Carvalho

et al. 2021

J of Nursing Scholarship

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Spirituality is broadly concerned with life's meaning, connection to a higher power, and the possibility of transcendence. Spirituality is included with religion, but these are related but different concepts. Religion has a community foundation and embraces beliefs, practices, and rituals related to the transcendent (Koenig, 2012). Spirituality is a different concept than religion, universal and related with individual meaning in life and connection (Koenig, 2012;Weathers, McCarthy, & Coffey, 2016). Spirituality and religion beliefs and practices play a critical role in serious health conditions, such as cancer, rising coping in dealing and overcoming this complex situation (Cipriano-Steffens et al., 2020). For many, spirituality contributes to the alleviation of suffering and a sense of well-being, peace, and inner strength, and allows for coping in the face of a severe illness (Weathers et al., 2016). Cancer is characterized as a traumatic life event in which patients may experience spiritual distress (Hui et al., 2011).Patients with cancer who experience spiritual distress often report feelings of struggle regarding existential issues, lack of meaning and purpose in life, disconnectedness, loneliness, isolation, and an uncertain future (Cobb & Chang, 2018). The start of receiving chemotherapy is a life-changing event for patients with cancer. This life event is considered a transition from the scope of health or illness (Meleis, Sawyer, Im, Hilfinger Messias, & Schumacher, 2000). Personal factors, such as patients' spiritual beliefs, can play a major role as facilitators to overcome this process (Meleis et al., 2000). Recently, spirituality has been discussed as an inherent dimension of the transition theory of Meleis (Martins & Caldeira, 2021). In addition, nurses in clinical practice have a therapeutic intervention in helping patients to achieve a successful and healthy transition (Schumacher, Jones, & Meleis, 1999).Patients with poor spiritual well-being have been reported to be overwhelmed by spiritual distress

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mentioning

confidence: 99%

Spiritual Distress in Patients With Cancer Initiating Chemotherapy: A Cross‐Sectional Study

Martins

Caldeira

Carvalho

et al. 2021

J of Nursing Scholarship

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“…To describe this new existential perspective, I use the term "spirituality" which, in line with what is suggested in the literature, constitutes a broader and more inclusive category than that of "religion". Spirituality, a multidimensional and polysemic concept (Fisher 2011) that pertains to cognitive, emotional, value-based and behavioral aspects (Paal et al 2020), indicates the path of individual search for ultimate meaning, purpose, and transcendence and experiences of connection with the self, others, nature, and the sacred through beliefs, practices, and traditions (Best et al 2023;Sulmasy 2002;Puchalski et al 2014). Thus defined, spirituality is distinguished from religion which, instead, represents the organized, collective, and institutional form of the relationship with the sphere of the divine or the sacred (Hill et al 2000).…”

Section: Discussion-the Latent Dimension Of Spirituality In Illness N...mentioning

confidence: 99%

“Since I’ve Been Ill, I Live Better”: The Emergence of Latent Spirituality in the Biographical Pathways of Illness

Pannofino

2024

Religions

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Spirituality can be a crucial resource to draw on to make sense of critical situations that mark a turning point in individual and collective biographies. In these cases, a ritual and symbolic response to the trauma may occur, bringing to the surface a «latent spirituality», that is, a tacit propensity towards the sacred that manifests itself in unexpected ways, even in those who do not normally believe or practice, in extraordinary situations that engender fear, anomie or disorientation and that have profound existential repercussions. This article aims to investigate the latent spirituality in the face of the critical event represented by the onset of severe disease, based on the analysis of spiritual illness narratives collected in Italy through qualitative interviews with oncological patients. The narratives show how the condition of suffering can bring to light an unexpressed spirituality, consisting of the revitalization of previous traditional faith or the elaboration of an innovative lay spirituality. Data confirm how pathology constitutes a biographical fracture, accompanied by questions and needs of a religious and spiritual nature. In contrast to the prevailing approach in the medical humanities where spirituality is interpreted as a starting resource to which sufferers resort to cope toward the disease, these results indicate that the spiritual dimension is an emerging aspect along the therapeutic pathway and that it is transformed by reflecting the temporality of the biographical experience of illness.

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“…Es ist zudem wichtig festzuhalten, dass es sowohl eine religiöse Form von Spiritualität gibt, welche sich durch den Glauben an eine höhere Macht auszeichnet, als auch eine säkulare Spiritualität mit Fokus auf Zusammengehörigkeit, Ganzheitlichkeit, Individualität und Integrität [7].…”

Section: Spiritualitätunclassified

“…Auch der Einsatz von Freiwilligen kann dabei helfen, den spirituellen Bedürfnissen von Patient*innen zu begegnen [7]. Um Ehrenamtliche für diese Situationen vorzubereiten und um einer Überforderung entgegenzuwirken, wurden spezielle Fortbildungen und Konzepte zur Schulung von Freiwilligen entwickelt und konzipiert [22].…”

Section: Spirituelle Interventionenunclassified

Spiritual Care und Palliative Care: zentrale Aspekte

Brandstötter¹,

Grabenweger²,

Lorenzl³

et al. 2021

Zeitschrift für Palliativmedizin

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Spiritual care as an integrated approach to palliative care for patients with neurodegenerative diseases and their caregivers: a literature review

Cited by 14 publications

References 71 publications

Spiritual Distress in Patients With Cancer Initiating Chemotherapy: A Cross‐Sectional Study

Spiritual Distress in Patients With Cancer Initiating Chemotherapy: A Cross‐Sectional Study

“Since I’ve Been Ill, I Live Better”: The Emergence of Latent Spirituality in the Biographical Pathways of Illness

Spiritual Care und Palliative Care: zentrale Aspekte

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