Abstract:Objective: To understand the spiritual needs of the patients' family caregiver under Oncology palliative care. Method: A descriptive, qualitative study with 20 family caregivers of patients hospitalized in an Oncology palliative unit. The data were collected through a phenomenological interview, and analyzed by the method of Amadeo Giorgi supported in the Merleau-Ponty's Phenomenology of Perception. Results: The categories were unveiled: "Spirituality as a foundation for life"; "Spiritual needs sublimated by… Show more
“…Families were confident in the care their loved ones were receiving when they were able to see the healthcare providers express love towards their relatives:The principle of everything is sincerity and love for the person they are caring for. (Rocha et al, )…”
Section: Resultsmentioning
confidence: 99%
“…The principle of everything is sincerity and love for the person they are caring for. (Rocha et al, )…”
Section: Resultsmentioning
confidence: 99%
“…Other families reported thoughtlessness of providers, as health professionals appeared desensitised (Rocha et al, ) to dying and suffering:People here are very fragile, nervous. So try to understand our side.…”
Section: Resultsmentioning
confidence: 99%
“…Research articles that scored below 30 were deemed to be low of quality, and were further reviewed by the team to ascertain their relevance to the review. Four studies fell within the 'low quality' category (Donnelly & Donnelly, 2009;Rocha et al, 2018;Sonemanghkara, Rozo, & Stutsman, 2019;Swinton et al, 2017), and were included, given the depth of material and relevance to the aims of the review. In qualitative reviews, inclusion of lower quality papers is permitted, once deemed permissible by the research team (Lundgren et al, 2012).…”
Aims and objectives
To systematically review qualitative studies exploring families' experiences of spiritual care at the end of life in acute hospital settings.
Background
Although there is a widespread belief that the consideration of spiritual and religious needs is outdated in the context of secularism, from a practical perspective patients and families appear to benefit from spiritual support at the end of life.
Methods
Six key databases, CINAHL, MEDLINE, EMBASE, Global Health Library, Web of Science and Applied Social Sciences Index and Abstracts (ASSIA), were searched, and three reviewers independently extracted the data and coded them into themes and subthemes. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) was used as a reporting framework.
Results
Five main themes emerged: anticipating needs; honouring the family by honouring the patient; personal connection; lack of sensitivity; and making space for religious and spiritual practices.
Conclusions
Families experiencing end‐of‐life care in acute hospital settings may benefit from spiritual care. While this can also be considered as fundamental care, understanding this through the lenses of spiritual care allows for incorporation of religious and spiritual practices that many seek at this time, irrespective of their faith perspectives.
Relevance to clinical practice
Although hospice care is well established internationally, many families experience end‐of‐life care in acute hospital settings. Nurses usually get to know families well during this time; however, the demands of the clinical environment place restrictions on family care and perceptions of lack of communication, limited support and/or limited sensitivity can compound families' suffering. Consideration of families' spiritual needs can help to support families during this time. Nurses are ideally placed for this and can anticipate and plan for patient and family needs in this regard, or refer to a specialist, such as the Healthcare Chaplain.
“…Families were confident in the care their loved ones were receiving when they were able to see the healthcare providers express love towards their relatives:The principle of everything is sincerity and love for the person they are caring for. (Rocha et al, )…”
Section: Resultsmentioning
confidence: 99%
“…The principle of everything is sincerity and love for the person they are caring for. (Rocha et al, )…”
Section: Resultsmentioning
confidence: 99%
“…Other families reported thoughtlessness of providers, as health professionals appeared desensitised (Rocha et al, ) to dying and suffering:People here are very fragile, nervous. So try to understand our side.…”
Section: Resultsmentioning
confidence: 99%
“…Research articles that scored below 30 were deemed to be low of quality, and were further reviewed by the team to ascertain their relevance to the review. Four studies fell within the 'low quality' category (Donnelly & Donnelly, 2009;Rocha et al, 2018;Sonemanghkara, Rozo, & Stutsman, 2019;Swinton et al, 2017), and were included, given the depth of material and relevance to the aims of the review. In qualitative reviews, inclusion of lower quality papers is permitted, once deemed permissible by the research team (Lundgren et al, 2012).…”
Aims and objectives
To systematically review qualitative studies exploring families' experiences of spiritual care at the end of life in acute hospital settings.
Background
Although there is a widespread belief that the consideration of spiritual and religious needs is outdated in the context of secularism, from a practical perspective patients and families appear to benefit from spiritual support at the end of life.
Methods
Six key databases, CINAHL, MEDLINE, EMBASE, Global Health Library, Web of Science and Applied Social Sciences Index and Abstracts (ASSIA), were searched, and three reviewers independently extracted the data and coded them into themes and subthemes. The Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) was used as a reporting framework.
Results
Five main themes emerged: anticipating needs; honouring the family by honouring the patient; personal connection; lack of sensitivity; and making space for religious and spiritual practices.
Conclusions
Families experiencing end‐of‐life care in acute hospital settings may benefit from spiritual care. While this can also be considered as fundamental care, understanding this through the lenses of spiritual care allows for incorporation of religious and spiritual practices that many seek at this time, irrespective of their faith perspectives.
Relevance to clinical practice
Although hospice care is well established internationally, many families experience end‐of‐life care in acute hospital settings. Nurses usually get to know families well during this time; however, the demands of the clinical environment place restrictions on family care and perceptions of lack of communication, limited support and/or limited sensitivity can compound families' suffering. Consideration of families' spiritual needs can help to support families during this time. Nurses are ideally placed for this and can anticipate and plan for patient and family needs in this regard, or refer to a specialist, such as the Healthcare Chaplain.
“…3 The primary family caregiver plays a key role in providing care to a terminally ill patient. 4 Usually, home-based palliative care (HBPC) programs provide unpaid care and assistance with daily activities to terminally ill patients' family members, 5,6 which is the most favored choice among patients and family members who have a preferred place of care. 7 However, most people will have to die in a hospital instead of their homes due to patient observation and emergency responses, psychological issues, social resources and assistance related to end-of-life or emergency treatment situations, health problems linked to role nervousness and overwork, professional HBPC skills, and medication side effects (with the issue of pain relief being particularly tricky to manage).…”
Background: An increasing number of patients with terminal illnesses prefer to die in their own homes due to aging, high medical payments, a limited number of hospitalization days, and the ability to receive care from family members. However, few studies have been conducted on the subjective perception and value of caregivers for home-based palliative care (HBPC). Objective: To identify common themes and topics of primary family caregivers’ lived experiences with HBPC when taking care of terminally ill family members. Methods: We conducted audio-recorded transcripts of one-on-one in-depth interviews of primary family caregivers of HBPC. Through a purposive sampling method, the participants were all interviewed; these interviews were transcribed verbatim and analyzed using a grounded theory approach. Results: A total of 22 primary family caregivers participated in the study. “Wholeheartedly accompanying one’s family to the end of life at home” was the core category. Six main themes describing caregivers’ experiences emerged from the interviews: (1) learning the basic skills of end-of-life home care, (2) arranging the sharing and rotation of care, (3) preparing for upcoming deaths and funerals, (4) negotiating the cultural and ethical issues of end-of-life home care, (5) ensuring a comfortable life with basic life support, and (6) maintaining care characterized by concern, perseverance, and patience. Conclusions: Primary family caregivers of HBPC need support and must learn home care skills by means of the holistic approach. It is crucial to establish assessment tools for caregivers’ preparedness for HBPC, including biopsychosocial and cultural considerations.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
