Spirituality and Spiritual Care of Adolescents and Young Adults with Cancer

Taylor, Elizabeth Johnston; Petersen, Cheryl L.; Oyedele, Oladele; Haase, Joan E.

doi:10.1016/j.soncn.2015.06.002

Cited by 42 publications

(56 citation statements)

References 67 publications

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“…Despite the potential beneficial influence of spiritual perspective on outcomes, there is a paucity of research on spirituality in general and specifically for AYA. 35-37 This significant influence of spiritual perspective is supported by the National Consensus Project Guidelines and National Quality Preferred Practices for Spiritual Domain Guidelines encouraging provision of spiritual care as a fundamental component of compassionate, patient-centered, and developmentally appropriate care; 36 however, additional research is needed on ways to appropriately implement the guidelines for AYA. Additional AYA-specific research needs include: 1) evaluation and, if necessary, adaptation of existing theories of spirituality for their relevance to AYA, or development of AYA specific theories; 2) use of mixed methods approaches to provide a holistic perspective of spirituality in AYA; 3) research on AYA spiritual perspectives in the context of illness (e.g., how spiritual perspectives influence or are influenced by the illness experience); 4) interventions that help AYA express their spiritual perspectives in the context of illness; and, 5) development of measures of spiritual perspective that are based on AYA perceptions.…”

Section: Discussionmentioning

confidence: 99%

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

et al. 2017

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Background Empirically derived and tested models are necessary to develop effective, holistic interventions to improve positive health outcomes in adolescents and young adults (AYA) with cancer, yet few exist. This paper is the second of two papers reporting on evaluation of the Resilience in Illness Model (RIM) as a predictive model to guide positive health research and practice. Objective To report the confirmatory model evaluation of the RIM. Methods A confirmatory evaluation of RIM was done using baseline data from a sample of 113 AYA aged 11 to 24 years who were undergoing hematopoietic stem cell transplant and enrolled in a randomized controlled trial of a behavioral intervention to enhance resilience. Data were analyzed using latent variable structural equation modeling. Results Goodness-of-fit indices supported RIM as a confirmed model and accounted for large amounts of variance in the outcomes of self-transcendence (62%) and resilience (72%), and in three of five mediators, specifically social integration (74%), courageous coping (80%), and hope-derived meaning (87%) as well as small to moderate amounts of variance in the remaining mediators of defensive coping (1%) and family environment (35%). Conclusions Findings establish the RIM as a plausible predictive framework for explaining ways AYA with cancer transcend their illness and achieve resilience resolution, and for guiding intervention studies in this population. Additional research is needed to explore RIM's transferability based on stage of illness, other chronic diseases, and cultural diversity. Implications for Practice Results support the RIM as an appropriate guide for developing and evaluating interventions to foster positive adjustment in AYA with cancer.

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Section: Discussionmentioning

confidence: 99%

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

et al. 2017

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“…During this period, they have unique spiritual needs that must be met; otherwise, it can lead to spiritual distress [5]. They use different adaptation strategies to find meaning in life and spirituality can provide a way of goodness and hope [4].…”

Section: Introductionmentioning

confidence: 99%

“…Spirituality based on culture and religion is expressed in different ways and must be considered as a domain of humans by care providers [5]. All people, regardless of belief, culture, race or religion, have a spirituality that is interpreted uniquely [12].…”

Section: Introductionmentioning

confidence: 99%

“…Spiritual needs of children, adolescents and their parents in a review included praying, receiving support from a clergyman, positive thinking, meaning and purpose, belief in the relationship with the child after his death and the opportunity to keep alive the memory of the deceased child [5].…”

Section: Introductionmentioning

confidence: 99%

“…Spirituality is an individual experience; therefore, qualitative research is suitable for it because questionnaires and quantitative research may not be able to investigate a personal experience of spirituality [18]. Qualitative research has the potential of providing a foundation of adolescents' knowledge in the field of spirituality and spiritual care [5].…”

Section: Introductionmentioning

confidence: 99%

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Spiritual/Religious Needs of Adolescents with Cancer

Zeighamy

Sadeghi

2016

Religions

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Adolescents, when faced with cancer and hospitalization, experience different needs that can have a profound impact on the adolescent and their family. Spirituality and religion are helpful in order to find meaning in the experience of cancer. Therefore, the aim of this study was to explore the spiritual/religious needs of adolescents with cancer in Iran. This study was an exploratory qualitative research. Adolescents with cancer, their families and nurses working in cancer unit formed the participants. The study environment was the cancer unit and the study population was adolescents with cancer in Kerman, Iran. Purposeful sampling and, semi-structured interviews with 14 adolescents with cancer and their families and six nurses were performed individually. To analyze the data, qualitative content analysis was used. From the data analysis four main themes emerged: the need for a relationship with God; the need for a relationship with the self; the need for a relationship with others; and the need for a relationship with the environment and nature. The results of this study provided a new vision in meeting the spiritual/religious needs of adolescents with cancer. According our result, adolescents with cancer, in addition to their developmental stage, need to face the other needs that can come along with the needs of this age period. Regarding these needs, it is helpful to find purpose and meaning in the experience of suffering and pain, and it can prevent spiritual distress.

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Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature

Robert

Stavinoha

Jones

et al. 2019

Pediatric Blood & Cancer

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Children with cancer and their families experience shifts in spiritual wellness from diagnosis through treatment and survivorship or bereavement. An interdisciplinary team conducted a systematic review of quantitative and qualitative research on spiritual assessments, interventions, and outcomes in childhood cancer following PRISMA guidelines using a PROSPERO registered protocol. Thirty‐nine well‐designed studies were included in the final analysis. The findings from this systematic review indicate the need for early spiritual assessment with offering of continued support for the spiritual functioning of children with cancer and their families as a standard of care.

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Spirituality and Spiritual Care of Adolescents and Young Adults with Cancer

Cited by 42 publications

References 67 publications

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

Spiritual/Religious Needs of Adolescents with Cancer

Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature

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