Sports and Children with Hemophilia: Current Trends

Moretti, Luigi; Bizzoca, Davide; Buono, Claudio; Ladogana, Teresa; Albano, Federica; Moretti, Biagio

doi:10.3390/children8111064

Cited by 7 publications

(6 citation statements)

References 56 publications

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“…The sense of belonging to a group and not feeling different from others are key. Likewise, it is very important to adapt the treatment to the child's physical activities as this will help minimize the negative impact of hemophilia [5]. It is also crucial not to keep patients away from school and make available the support resources they may need.…”

Section: Childhoodmentioning

confidence: 99%

Disability and the social impact of hemophilia

García-Ripoll,

De la Corte-Rodríguez

2023

Blood Coagulation &Amp; Fibrinolysis

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In addition to receiving the medical treatment they need, people with hemophilia or other coagulopathies must acquire the strategies required to deal with the physical, emotional and social challenges they will encounter at the different stages of their lives. To this end, it is necessary to offer support for any uncertainty that may arise for the patient or parents upon diagnosis of the disease, and to help them develop a healthy response pattern to bleeding episodes. First years and decades of life are essential because self-image is built and the foundations for socialization are laid, making it necessary to foster communication and self-esteem. However, in later life, the social impact of the consequences of hemophilia, including disability and dependency, require the introduction of technical and human adaptations and aids. Hematological, rehabilitative, orthopedic psychological and social approaches focus on improving the individual's ability to carry out daily activities independently and facilitate social integration. Patient associations play a key role in minimizing the social impact of hemophilia. Finally, recognition of disability helps to compensate to some extent for the difficulties faced by people with hemophilia.

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Section: Childhoodmentioning

confidence: 99%

Disability and the social impact of hemophilia

García-Ripoll,

De la Corte-Rodríguez

2023

Blood Coagulation &Amp; Fibrinolysis

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“…The most well-known deficiencies are factor VIII (hemophilia A) and factor IX (hemophilia B), both of which show X-linked inheritance [1]. Hemophilia is more common in males [2], with a prevalence of 17.1 cases of hemophilia A and 3.8 cases of hemophilia B per 100,000 males [3]. The number of patients with hemophilia worldwide is estimated at 1,125,000 [3].…”

Section: Introductionmentioning

confidence: 99%

Evaluation of Periodontal Status and Oral Health Habits with Continual Dental Support for Young Patients with Hemophilia

Kametani,

Akitomo,

Usuda

et al. 2024

Applied Sciences

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Hemophilia is a congenital disorder associated with impaired blood clotting. Routine dental intervention to prevent oral bleeding in patients with hemophilia is considered important, but its effectiveness remains unknown. In the present study, we evaluated the effect of continual dental support on periodontal status and oral health habits in young patients with hemophilia. Of the 168 young patients with hemophilia who visited our clinic for 5 years, we selected subjects who had visited annually since 2015 and were in the mixed and permanent dentitions. To evaluate the periodontal status of these subjects, Community Periodontal Index (CPI) values in the molars and anterior teeth were measured. In addition, a questionnaire regarding oral health habits, including floss use, frequency of brushing by parents, and attending a family dentist, was administered to the subjects and their parents. In the patients with mixed dentition, the CPI values for the upper right molars and lower left central incisor decreased significantly in later years compared with the first year (p < 0.05). In the patients with permanent dentition, only one year recorded a significant decrease in CPI values compared with the first year (p < 0.05), localized in the upper right molars. The results of the questionnaire revealed that continual dental support improved dental floss use and the frequency of brushing by parents only in the mixed dentition group. Furthermore, these oral health habits significantly affected CPI values only in the mixed dentition group (p < 0.01). These results suggest that continual dental support improves the periodontal condition and oral health habits of hemophilic patients, especially those with mixed dentition.

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“…Current treatment means a reduction in spontaneous bleeding [ 16 ] and promotes a change in attitude and normalization in patients’ activities of daily living. Currently, physical activity and low-impact exercise are recommended [ 17 , 18 ]; controlled physical activity in patients under treatment is not associated with a significant increase in the incidence of bleeding, as this will depend on the severity of the disease and adherence to treatment [ 19 ].…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study Exploring the Experiences and Perceptions of Patients with Hemophilia Regarding Their Health-Related Well-Being, in Salamanca

Ramos-Petersen,

Rodríguez-Sánchez,

Cortés-Martín

et al. 2023

JCM

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Hemophilia is a chronic, congenital/hereditary and X-linked disease, characterized by an insufficiency of factors VIII or IX, which are necessary for blood clotting. Those affected by hemophilia often suffer from particular psychosocial problems, both in the acceptance, coping, treatment and self-management of their disease and in their family and social relationships, which are often mediated by these circumstances. The aim of this study was to explore the experiences of people with hemophilia or their family members, of in a specific region of Spain, regarding the impact of having hemophilia. Structured interviews were conducted and developed, using the studies of the World Federation of Hemophilia and Osorio-Guzmán et al. as a guide, as well as a literature review of qualitative work on hemophilia. Data were analyzed using a six-step thematic analysis. A total of 34 interviews were thematically analyzed. The results showed that three key themes emerged from the data: (1) the daily impact of having hemophilia, (2) uncertainty about the disease, (3) the role of associations and (4) support from institutions. The results make it clear that the disease has a major impact on their lives (work, family, leisure and personal environment). The main conclusion is that hemophilia has a negative impact on the daily lives of patients, families and caregivers.

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Sports and Children with Hemophilia: Current Trends

Cited by 7 publications

References 56 publications

Disability and the social impact of hemophilia

Disability and the social impact of hemophilia

Evaluation of Periodontal Status and Oral Health Habits with Continual Dental Support for Young Patients with Hemophilia

A Qualitative Study Exploring the Experiences and Perceptions of Patients with Hemophilia Regarding Their Health-Related Well-Being, in Salamanca

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