Stabilität von häuslichen Versorgungsarrangements für Menschen mit Demenz

Kutzleben, Milena von; Köhler, Katrin; Dreyer, Jan; Holle, Bernhard; Roes, Martina

doi:10.1007/s00391-015-0990-0

Cited by 15 publications

(13 citation statements)

References 29 publications

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“…The stability of the home-based care arrangements was assessed by the informal caregivers using a four-level scale (Score: 0–3) developed by von Kutzleben et al [ 48 ]. The caregivers are asked to evaluate their monthly supply situation in general.…”

Section: Methodsmentioning

confidence: 99%

Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads

Wiegelmann

Wolf‐Ostermann

Brannath

et al. 2021

BMC Health Serv Res

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Background Studies revealed the importance to assess dementia care dyads, composed of persons with dementia and their primary informal caregivers, in a differentiated way and to tailor support services to particular living and care circumstances. Therefore, this study aims first to identify classes of dementia care dyads that differ according to sociodemographic, care-related and dementia-specific characteristics and second, to compare these classes with regard to healthcare-related outcomes. Methods We used data from the cross-sectional German DemNet-D study (n = 551) and conducted a latent class analysis to investigate different classes of dementia care dyads. In addition, we compared these classes with regard to the use of health care services, caregiver burden (BIZA-D), general health of the informal caregiver (EQ-VAS) as well as quality of life (QoL-AD) and social participation (SACA) of the person with dementia. Furthermore, we compared the stability of the home-based care arrangements. Results Six different classes of dementia care dyads were identified, based on best Bayesian Information Criterion (BIC), significant likelihood ratio test (p < 0.001), high entropy (0.87) and substantive interpretability. Classes were labelled as “adult child parent relationship & younger informal caregiver”, “adult child parent relationship & middle aged informal caregiver”, “non family relationship & younger informal caregiver”, “couple & male informal caregiver of older age”, “couple & female informal caregiver of older age”, “couple & younger informal caregiver”. The classes showed significant differences regarding health care service use. Caregiver burden, quality of life of the person with dementia and stability of the care arrangement differed also significantly between the classes. Conclusion Based on a latent class analysis this study indicates differences between classes of informal dementia care dyads. The findings may give direction for better tailoring of support services to particular circumstances to improve healthcare-related outcomes of persons with dementia and informal caregivers.

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Section: Methodsmentioning

confidence: 99%

Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads

Wiegelmann

Wolf‐Ostermann

Brannath

et al. 2021

BMC Health Serv Res

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“…For the primary caregiver, the sociodemographic characteristics include gender, age, education, living arrangement, hours of care per week, relationship to the PwD, and self-perceived stability of the care arrangement [40].…”

Section: Methodsmentioning

confidence: 99%

A Tablet App– and Sensor-Based Assistive Technology Intervention for Informal Caregivers to Manage the Challenging Behavior of People With Dementia (the insideDEM Study): Protocol for a Feasibility Study

Kernebeck¹,

Holle²,

Pogscheba³

et al. 2019

JMIR Res Protoc

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BackgroundDespite the enormous number of assistive technologies (ATs) in dementia care, the management of challenging behavior (CB) of persons with dementia (PwD) by informal caregivers in home care is widely disregarded. The first-line strategy to manage CB is to support the understanding of the underlying causes of CB to formulate individualized nonpharmacological interventions. App- and sensor-based approaches combining multimodal sensors (actimetry and other modalities) and caregiver information are innovative ways to support the understanding of CB for family caregivers.ObjectiveThe main aim of this study is to describe the design of a feasibility study consisting of an outcome and a process evaluation of a newly developed app- and sensor-based intervention to manage CB of PwD for family caregivers at home.MethodsIn this feasibility study, we perform an outcome and a process evaluation with a pre-post descriptive design over an 8-week intervention period. The Medical Research Council framework guides the design of this feasibility study. The data on 20 dyads (primary caregiver and PwD) are gathered through standardized questionnaires, protocols, and log files as well as semistructured qualitative interviews. The outcome measures (neuropsychiatric inventory and Cohen-Mansfield agitation inventory) are analyzed by using descriptive statistics and statistical tests relevant to the individual assessments (eg, chi-square test and Wilcoxon signed-rank test). For the analysis of the process data, the Unified Theory of Acceptance and Use of Technology is used. Log files are analyzed by using descriptive statistics, protocols are analyzed by using documentary analysis, and semistructured interviews are analyzed deductively using content analysis.ResultsThe newly developed app- and sensor-based AT has been developed and was evaluated until July in 2018. The recruitment of dyads started in September 2017 and was concluded in March 2018. The data collection was completed at the end of July 2018.ConclusionsThis study presents the protocol of the first feasibility study to encompass an outcome and process evaluation to assess a complex app- and sensor-based AT combining multimodal actimetry sensors for informal caregivers to manage CB. The feasibility study will provide in-depth information about the study procedure and on how to optimize the design of the intervention and its delivery.International Registered Report Identifier (IRRID)DERR1-10.2196/11630

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“…Therefore, the synthesis method should lead to an interpretation and configuration of the included findings that generates new theory and not to an aggregation of results. As a result of our previous groundwork 16 on the phenomenon of stability, we had learnt that we would exclude relevant evidence if we would restrict the studies to be included to only one type of research design. Therefore, the synthesis method should be able to combine the strengths of qualitative, quantitative and mixed-method study designs and (systematic) reviews.…”

Section: Methods and Analysismentioning

confidence: 99%

“…As a first important step in the preparation of the meta-study, we developed a working definition of ‘stability of home-based care arrangements for people living with dementia’ (see figure 2 ) in a consensus process with scientific experts. 16 46 With this definition, we framed stability as a dynamic process over the dementia care trajectory that is shaped by all the actors involved and which can be achieved only if their needs and demands are successfully addressed. Furthermore, this definition reflects our theoretical alignment with the scientific tradition of symbolic interactionism, 47 specifically that of Strauss 48 and Corbin and Strauss, 49 50 who focus on the trajectory of chronic illness and describe its management as work.…”

Section: Methods and Analysismentioning

confidence: 99%

“…During the consensus process in which we developed our working definition, 16 we started to search for, collect and read publications which inspired our initial ideas regarding the phenomenon of stability. In the process we learnt that very few studies explicitly investigate the stability of home-based care arrangements for people living with dementia, although a huge body of knowledge contributes to the conceptualisation of stability.…”

Section: Methods and Analysismentioning

confidence: 99%

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Stability of home-based care arrangements for people living with dementia: protocol of a meta-study on mixed research

et al. 2018

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IntroductionWorldwide, most people with dementia live at home and are cared for by informal carers. During the dementia care trajectory, creating and maintaining a stable care situation is a guiding principle of informal carers and a desirable outcome of contemporary healthcare policies. However, though there is an extensive body of research focusing on the course of dementia care trajectories, it remains unclear how stability of home-based care arrangements is constituted and what are the essential factors that influence this stability. This paper outlines a protocol of a systematic review that aims to address these gaps in knowledge.Methods and analysisTo theorise the complex phenomenon of stability of home-based care arrangements for people with dementia, we will conduct a meta-study. Meta-studies include three analytical components (meta-data analysis, meta-method and meta-theory) that are combined and finally culminate in an integrative knowledge synthesis. Originally, meta-study was designed to include qualitative studies only. To capture relevant contributions to our target phenomenon from all types of evidence, we will extend the original methodology and apply it to studies with qualitative, quantitative and mixed-methods designs and to (systematic) reviews. Eligible studies will be identified by systematic database searches (PubMed, CINAHL and PsycINFO), backward/forward citation tracking, snowballing and theoretical sampling. All identified studies will be screened against predefined inclusion criteria. The main analytical approach for all analyses is thematic synthesis. The meta-study will generate a more comprehensive understanding of dementia care trajectories and will be used to identify research gaps, develop future research questions and define relevant outcomes.DisseminationThe findings of the meta-study will be published in a series of articles in peer-reviewed scientific journals and will be presented at national and international scientific conferences.PROSPERO registration numberCRD42016041727.

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Stabilität von häuslichen Versorgungsarrangements für Menschen mit Demenz

Cited by 15 publications

References 29 publications

Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads

Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads

A Tablet App– and Sensor-Based Assistive Technology Intervention for Informal Caregivers to Manage the Challenging Behavior of People With Dementia (the insideDEM Study): Protocol for a Feasibility Study

Stability of home-based care arrangements for people living with dementia: protocol of a meta-study on mixed research

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