Staffs’ documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities

Abstract

A deeper focus on participation in the implementation plans and all life areas in the component Activities and participation is needed. It is important that the documentation clearly shows what the adult wants, wishes, and likes in everyday life. It is also important to ensure that the job description for staff contains both life areas and individual preferences so that staff have the possibility to work to fulfill social and individual participation for the target group. Implications for rehabilitation There is a need for functioning working models to increase participation significantly for adults with profound intellectual disability or profound intellectual and multiple disabilities. For these adults, participation is achieved through the assistance of others and support and services carried out must be documented in an implementation plan. The International Classification of Functioning, Disability and Health can be used to support staff and ensure that information about the most important factors in an individual's functioning in their environment is not omitted in documentation.

Improving the participation of adults with visual and severe or profound intellectual disabilities: A process evaluation of a new intervention

“…In addition, no efforts were made to change or introduce new social roles for adults with VSPID that could enhance their participation. These findings are in line with those of other studies, which also showed that direct support professionals (DSPs) in residential facilities experience difficulty developing new social roles for individuals with intellectual disabilities [17,18]. Because adults with severe or profound intellectual disabilities are highly dependent on their environment and the support they receive from others [3], a possible explanation for their limited participation could lie in the attitudes and resources of DSPs.…”

Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention

“…In addition, no efforts were made to change or introduce new social roles for adults with VSPID that could enhance their participation. These findings are in line with the results of a study of Talman, Gustafsson, Stier, and Wilder [20], which also showed that support professionals find it difficult to define potential roles for adults with profound intellectual (and multiple) disabilities. The importance of social roles have previously been described by Wolfensberger [21].…”

“…This emphasis on varying roles that such individuals can assume within and outside the residential facility may induce changes in the attitudes of DSPs regarding the possibilities, opportunities, and activities that apply to the adults with VSPID with whom they work. The importance of attitudinal changes has been demonstrated in a study conducted by Talman et al [20], who found that DSPs experience difficulty in developing new roles for individuals with profound intellectual disabilities. Experiences of implementing the preliminary version of the CFP+ intervention revealed that as a result of the intervention, DSPs focused more on possibilities and less on the disabilities of adults with VSPID.…”

Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities

“…For example, DSPs’ views on the inclusion of individuals with intellectual disabilities considered as a component of participation according to the aforementioned definition reportedly influence their associated efforts (Venema, Otten, & Vlaskamp, 2015). Other studies have shown that the DSPs of individuals with severe or profound intellectual disabilities find it difficult to apply inclusive principles (Bigby, Clement, Mansell, & Beadle‐Brown, 2009) or to identify activities that match the roles of this target group (Talman, Gustafsson, Stier, & Wilder, 2017). Because of the limitations of adults with VSPID, DSPs may be inclined to focus on these limitations and care tasks and less on the capabilities, wishes and participation of such individuals (McConkey & Collins, 2010).…”