Stakeholder-Engaged Research

Abstract

There is a need for intervention to support friendship for people living with aphasia. The purpose of this article is to describe a stakeholder engagement process that involved researchers, clinicians, people living with aphasia, and care partners to inform such intervention. Through reflection and firsthand accounts of non-university-based researchers, people not typically represented in the research process, we share details of two main lessons learned throughout the stakeholder engagement journey: (1) accessible engagement and (2) team correspondence. Finally, we describe

Stakeholder-Engaged Research: Examples From Aphasia

“…Then, Off et al (2023) describe their research, with students as engaged stakeholders further expanding the view and approach of stakeholder engagement in pedagogical research. The next two articles by Strong et al (2023) and Madden et al (2023) highlight the process and outcomes of stakeholder engagement in research about friendship and aphasia 1. Finally, Kim et al (2023) describe how their team, which included multiple stakeholders, conducted a project about creating more aphasia-friendly retail businesses in their area.…”

Stakeholder-Engaged Research: Examples From Aphasia

“…The fourth and fifth articles explore the topic of friendships; most people with aphasia lose their friends (Northcott & Hilari, 2011), so this is a critical topic for people living with aphasia. Strong and colleagues (2023) approach friendship using a Social Network Analysis method, which not only yielded a productive way for their multi-stakeholder team to communicate but also has clinical utility. Madden and colleagues (2023) collaborated with care partners to investigate how participant care partners perceive friendships after stroke and aphasia.…”