Stakeholders’ Views on Reducing Psychological Distress in Chronic Obstructive Pulmonary Disease

Hart, Joanna L.; Hong, David; Summer, A.; Schnoll, Robert A.

doi:10.1016/j.jpainsymman.2021.06.021

Cited by 3 publications

(1 citation statement)

References 34 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The family caregiver also contributes to reducing and treating the patient's psychological distress caused by suffering from a disabling disease and breathlessness. HCPs often prioritize physical symptoms and medication management, leaving the emotional issues untreated (Hart et al., 2022). Family caregivers know that patients with COPD can suffer from anxiety during exacerbations and that anxiety can worsen the dyspnoea, activating a vicious circle (Robinson et al., 2018).…”

Section: Discussionmentioning

confidence: 99%

Contributing to self‐care of a person with chronic obstructive pulmonary disease: A qualitative study of the experiences of family caregivers

Pendoni,

Albanesi,

Clari

et al. 2023

Journal of Advanced Nursing

View full text Add to dashboard Cite

AimTo explore family caregivers' experiences of contributing to self‐care of patients with chronic obstructive pulmonary disease (COPD).DesignA qualitative description study.MethodsIndividual semi‐structured interviews were conducted face‐to face, by telephone or video calls in a purposive sample of 17 family caregivers of patients with COPD recruited in Italy, and analysed through content analysis. The consolidated criteria for reporting qualitative studies (COREQ) checklist was used for study reporting.ResultsTen subcategories were derived from 106 codes grouped into three main categories: family caregiver contributions to maintaining disease stable and ensuring a normal life for patients; family caregiver contributions to disease monitoring; and family caregiver contributions to coping with disease exacerbations. Family caregivers provided practical and emotional support, and their contribution was essential to improve treatment adherence, to enable the patient to continue living a normal life, and to have access to the healthcare services. Family caregivers were constantly vigilant and monitored patients daily to detect worsening conditions, and they managed exacerbations especially when patients were unable to do it due to their critical conditions.ConclusionThis study broadens knowledge of family caregivers' contributions to patients' self‐care in COPD, describing the different ways family members provide daily care to patients and the many responsibilities they take on.ImpactFamily caregivers perform a variety of behaviours when supporting patients with COPD in self‐care, especially when patients are more dependent and the disease more severe. Nurses should acknowledge the various contributions provided by family caregivers and develop educational interventions aiming to support them in patient care and improve patient outcomes.Patient or Public ContributionResearchers shared the draft study report with participants for validation and feedback. This helped to strengthen the study design and results.

show abstract

Section: Discussionmentioning

confidence: 99%

Contributing to self‐care of a person with chronic obstructive pulmonary disease: A qualitative study of the experiences of family caregivers

Pendoni,

Albanesi,

Clari

et al. 2023

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

A Structural Equation Model of the Relationship Between Symptom Burden, Psychological Resilience, Coping Styles, Social Support, and Psychological Distress in Elderly Patients With Acute Exacerbation Chronic Obstructive Pulmonary Disease in China

Lan,

Yang,

Zhang

et al. 2024

Asian Nursing Research

View full text Add to dashboard Cite

Advance care planning for patient with chronic obstructive pulmonary disease: An evolutionary concept analysis

Minami,

Kamei

2024

Japan Journal Nursing Sci

View full text Add to dashboard Cite

AimThis study aimed to analyze the concept of advance care planning (ACP) for patients with chronic obstructive pulmonary disease (COPD), by systematically clarifying the attributes, antecedents, consequences, surrogate terms, related concepts, and historical transition of the concept.MethodsFollowing Rodgers' method of concept analysis, the academic development of concepts related to ACP for patients with COPD, as well as changes in the concept over time, is comprehensively organized and described. A search formula for relevant literature was created using the two keywords “chronic obstructive pulmonary disease” and “advance care planning”. The databases of CENTRAL, PubMed, CINAHL Plus with Full Text, Embase, and PsycInfo were searched without limitation by the year of publication and restricted to English and Japanese languages.ResultsOf the 3433 retrieved articles, 30 peer‐reviewed articles were included in the analysis. Data extraction was conducted to identify concepts relevant to ACP for patients with COPD, resulting in the identification of four antecedents (COPD progression, decline in QOL, attitude toward facing death and dying, and interdisciplinary team approach); four attributes (discussion process, documentation, support for facing death, and dying, holistic approach); and four consequences (dialogical process, improved support of decision‐making, physical impacts, and psychological impacts).ConclusionsThis conceptual framework, identified through this analysis, shows an evolution from a medical perspective to encompassing humanistic perspectives in addressing patient needs and emphasizes the importance of nursing practices. The elucidated concept characteristics may enhance its application, practice promotion, and interdisciplinary understanding across healthcare professions in the end‐of‐life field.

show abstract

Stakeholders’ Views on Reducing Psychological Distress in Chronic Obstructive Pulmonary Disease

Cited by 3 publications

References 34 publications

Contributing to self‐care of a person with chronic obstructive pulmonary disease: A qualitative study of the experiences of family caregivers

Contributing to self‐care of a person with chronic obstructive pulmonary disease: A qualitative study of the experiences of family caregivers

A Structural Equation Model of the Relationship Between Symptom Burden, Psychological Resilience, Coping Styles, Social Support, and Psychological Distress in Elderly Patients With Acute Exacerbation Chronic Obstructive Pulmonary Disease in China

Advance care planning for patient with chronic obstructive pulmonary disease: An evolutionary concept analysis

Contact Info

Product

Resources

About