Standard set of health outcome measures for older persons

Abstract

BackgroundThe International Consortium for Health Outcomes Measurement (ICHOM) was founded in 2012 to propose consensus-based measurement tools and documentation for different conditions and populations.This article describes how the ICHOM Older Person Working Group followed a consensus-driven modified Delphi technique to develop multiple global outcome measures in older persons.The standard set of outcome measures developed by this group will support the ability of healthcare systems to improve their care pathways and quality of care. An additional benefit will be the opportunity to compare variations in outcomes which encourages and supports learning between different health care systems that drives quality improvement. These outcome measures were not developed for use in research. They are aimed at non researchers in healthcare provision and those who pay for these services.MethodsA modified Delphi technique utilising a value based healthcare framework was applied by an international panel to arrive at consensus decisions.To inform the panel meetings, information was sought from literature reviews, longitudinal ageing surveys and a focus group.ResultsThe outcome measures developed and recommended were participation in decision making, autonomy and control, mood and emotional health, loneliness and isolation, pain, activities of daily living, frailty, time spent in hospital, overall survival, carer burden, polypharmacy, falls and place of death mapped to a three tier value based healthcare framework.ConclusionsThe first global health standard set of outcome measures in older persons has been developed to enable health care systems improve the quality of care provided to older persons.Electronic supplementary materialThe online version of this article (10.1186/s12877-017-0701-3) contains supplementary material, which is available to authorized users.

Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

“…After the intervention, a booklet is created by the research team, integrating the person's important elements evoked during implementation of the Revie Da Rocha Rodrigues et al, 2016 (feasibility, mixed-method) Tf8 It was not unexpected that "Dignity-related distress" (used in 13 of the articles) and "Quality of life" (used in 16 of the articles) were among the most studied outcomes identified, as these concepts are concrete and central in palliative care (Ho et al, 2014;World Health Organization, 2018). These outcomes have also been listed by other researchers as essential (Johnston et al, 2017a;Akpan et al, 2018). Therefore, health organizations must enable healthcare professionals to emphasize aspects such as these.…”

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The holistic assessment and care planning in partnership intervention study (HAPPI): A protocol for a feasibility, cluster randomized controlled trial

“…Objectives a–h will be met in the feasibility randomized controlled trial: To assess compliance with the holistic assessment and care planning intervention (HAPPI). To verify that proposed outcome measurement and follow‐up schedules are feasible to collect. To determine achievable targets for recruitment and follow‐up rates. To evaluate method of recruitment using the electronic frailty index (eFI). To evaluate characteristics and feasibility of the proposed outcome measures and to determine suitable outcome measures for the definitive trial. Outcome measures to be evaluated have been taken from the ICHOM Older Persons Reference Guide (Akpan et al, ). To calculate standard deviation of the outcome measures to estimate sample size for the definitive trial. To assess availability of clinical data and time needed to collect and analyse data required for numeric outcome measures. To explore factors that will enable future economic evaluation alongside the main trial. …”

“…e To evaluate characteristics and feasibility of the proposed outcome measures and to determine suitable outcome measures for the definitive trial. Outcome measures to be evaluated have been taken from the ICHOM Older Persons Reference Guide (Akpan et al, 2018). f To calculate standard deviation of the outcome measures to estimate sample size for the definitive trial.…”