Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue

Wiener, Lori; Kazak, Anne E.; Noll, Robert B.; Patenaude, Andrea Farkas; Kupst, Mary Jo

doi:10.1002/pbc.25675

Cited by 345 publications

(401 citation statements)

References 27 publications

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“…As noted previously, families of children with cancer are at heightened risk for significant financial burden, which may negatively impact parental coping and mental health [4,20,22,23]. Some evidence has even suggested a relationship between financial insecurity and risk of relapse in childhood cancer [24].…”

Section: Recognize the Financial Impact Of A Childhood Cancer Diagnosmentioning

confidence: 92%

“…Evidence-and consensus-based guidelines for providing comprehensive psychosocial care to children with cancer and their families were published in 2015 by Pediatric Blood & Cancer, the official journal of the American Society of Pediatric Hematology/Oncology and the International Society of Paediatric Oncology [20,21]. Among the adopted standards included recommendations for routine assessment of psychosocial needs of patients and families and access to psychosocial support and interventions, including psychiatric or other mental health treatment as appropriate [20]. Notably, the standards specifically reference the need to ensure that parents or other caregivers have access to mental health care [21,22].…”

Section: What Can Clinicians Do To Help?mentioning

confidence: 99%

“…As there is significant variation in psychosocial resources among institutions, clinicians may also need to advocate for the hiring of qualified individuals-including psychologists, social workers, and child life specialists-and for productive collaboration with psychiatry departments [20]. Clinician-educators in pediatric oncology-including physician-and nurse-educators-must also support the development and implementation of training standards so that new graduates enter the specialty prepared to integrate psychosocial care into their practice [29].…”

Section: Promoting Systemic Change To Meet Families' Needsmentioning

confidence: 99%

See 2 more Smart Citations

Should Clinicians Intervene If They Suspect That a Caregiver Whose Child Has Cancer Is at Risk of Psychological Harm?

2017

AMA Journal of Ethics

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Section: Recognize the Financial Impact Of A Childhood Cancer Diagnosmentioning

confidence: 92%

Section: What Can Clinicians Do To Help?mentioning

confidence: 99%

Section: Promoting Systemic Change To Meet Families' Needsmentioning

confidence: 99%

See 1 more Smart Citation

Should Clinicians Intervene If They Suspect That a Caregiver Whose Child Has Cancer Is at Risk of Psychological Harm?

2017

AMA Journal of Ethics

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“…4 More recently, another group of experts 5 developed care standards related to 15 psychosocial topics, 6 mostly consistent with those proposed by the SIOP.…”

Section: H E I N T E R N a T I O N A L S O C I E T Y O F P E D I A T mentioning

confidence: 99%

Psychosocial care in the Department of Pediatric Hematology and Oncology of public hospitals in Argentina

Farberman

Méndez²,

García³

et al. 2017

Arch Argent Pediat

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Background. Blood diseases and cancer are part of a group of rare conditions in pediatrics. In general, cancer treatments are prolonged (months or years), so psychosocial support has been introduced to provide comprehensive care to these patients. Objective: To explore psychosocial care provided at the public hospitals of Argentina to children and adolescents with cancer. Population and Methods. An electronic questionnaire was sent to the heads of the Departments of Hematology and Oncology, Mental Health, and Social Services of 27 public hospitals providing care to pediatric patients with cancer. The survey included questions related to psychosocial care provided to this group of patients. Answers were collected and processed in the 2013-2014 period. Results. Of the total number of health care providers contacted, 62.6% (47/75) completed the questionnaire. As per hematologistoncologists, the three specialties complied with the recommendations made by the International Society of Pediatric Oncology to a greater extent than that reported by the psychosocial area. Such difference was repeatedly observed in all answers. The standards that were observed more consistently were continuation of education and care of healthy siblings. The health care providers from the three specialties indicated that they lacked formal mechanisms to detect failures in treatment adherence in an early manner, although treatment withdrawal interventions were systematized. Providers from the psychosocial area indicated that human resources were lacking and perceived little interdisciplinary work. Conclusions. This study reported partial adherence to the standards recommended by the International Society of Pediatric Oncology. The assessment made by hematologists-oncologists was different from that made by health care providers from the psychosocial area.

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“…For example, among level I trauma centers that see children, only 20 percent systematically address posttraumatic stress in pediatric patients [15], and surveys of health care professionals indicate wide variation in knowledge and practice of trauma-informed pediatric care [16][17][18]. Nevertheless, practice standards are beginning to enumerate elements of trauma-informed care as key components of pediatric health care in such diverse areas as pediatric oncology [19] and pediatric trauma care [20].…”

Section: Practice Standards and The Ethical Case For Trauma-informed mentioning

confidence: 99%

What Do Clinicians Caring for Children Need to Know about Pediatric Medical Traumatic Stress and the Ethics of Trauma-Informed Approaches?

Kassam‐Adams¹,

Butler

2017

AMA Journal of Ethics

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Medical experiences can be frightening and traumatic for children. Ill and injured children can experience pediatric medical traumatic stresspsychological and physiological distress responses related to their medical event and subsequent medical treatment experiences-which can lead to symptoms of posttraumatic stress disorder (PTSD) and suboptimal health outcomes. Trauma-informed care provides a framework for acknowledging, addressing, and mitigating the risks of psychological trauma associated with medical treatment experiences and is congruent with the ethical principles of respect for autonomy, beneficence, nonmaleficence, and justice. Health care systems and professionals are encouraged to apply the principles of trauma-informed care to address the effects of pediatric medical traumatic stress. IntroductionFor the sick or injured child, being treated in the emergency department (ED) or admitted to the hospital can be a frightening and confusing experience that leads to subsequent psychological distress [1]. Experiencing pain, feeling helpless and out of control, and being separated from one's parents are all factors that contribute to the potentially traumatic nature of medical events. How does a physician's ethical obligation to "first, do no harm" square with the prospect of providing a therapeutically necessary procedure for a frightened child who does not understand what is being done and why? How do we understand the ethical issues involved when a medically beneficial course of treatment for a pediatric patient also has the potential to engender stress, fear, anxiety, pain, or discomfort for this child? In this brief review, we first describe two concepts that are key to understanding and addressing the psychological distress that can affect ill and injured children: pediatric medical traumatic stress and trauma-informed pediatric care. We then discuss four core principles of medical ethics (respect for autonomy, beneficence, nonmaleficence, and justice [2]) and explain how the application of these principles underscores the need for trauma-informed care.

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Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue

Cited by 345 publications

References 27 publications

Should Clinicians Intervene If They Suspect That a Caregiver Whose Child Has Cancer Is at Risk of Psychological Harm?

Should Clinicians Intervene If They Suspect That a Caregiver Whose Child Has Cancer Is at Risk of Psychological Harm?

Psychosocial care in the Department of Pediatric Hematology and Oncology of public hospitals in Argentina

What Do Clinicians Caring for Children Need to Know about Pediatric Medical Traumatic Stress and the Ethics of Trauma-Informed Approaches?

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