Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines

Grammatikopoulou, Maria G.; Vassilakou, Tonia; Goulis, Dimitrios G.; Theodoridis, Xenophon; Nigdelis, Meletios P.; Petalidou, Arianna; Gkiouras, Konstantinos; Poulimeneas, Dimitrios; Alexatou, Olga; Tsiroukidou, Kyriaki; Marakis, Georgios; Daniil, Zoe; Bogdanos, Dimitrios P.

doi:10.3390/children8121180

Cited by 5 publications

(6 citation statements)

References 62 publications

(125 reference statements)

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“…However, a great body of evidence has related low BMI and poor nutritional status in CF to poorer respiratory function [ 65 , 66 ]. Thus, it has been suggested that a two-way relationship appears to exist between nutritional status and pulmonary function, with each one affecting the other and the “obesity paradox” prevailing, as patients with greater BMI have improved prognosis [ 1 ].…”

Section: Research On Disordered Eating Eds and Other Feeding And Eds ...mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…Cystic fibrosis (CF) is a chronic disease affecting several aspects of the nutritional status of patients, including appetite, risk for malnutrition, osteopenia, nutrient deficiencies, and malabsorption [ 1 , 2 , 3 ]. Attaining an adequate body weight is important for achieving improved respiratory health and low infection risk [ 1 ]. However, struggles with weight status are common in CF, with patients of younger ages often failing to maintain and gain body weight [ 4 ] and older individuals facing overweight and obesity more frequently [ 5 , 6 ].…”

Section: Introductionmentioning

confidence: 99%

“…As with the majority of chronic diseases having specific nutrition recommendations [ 1 , 7 ], in CF, the emphasis placed on patients regarding their diet and ideal weight status often increases the risk of developing disordered eating behaviors and abnormal eating patterns [ 8 ]. Disordered eating is often a precursor to the development of an ED, complicating any underlying pathology while disrupting psychosocial functioning.…”

Section: Introductionmentioning

confidence: 99%

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Eating Disorders and Disordered Eating Behaviors in Cystic Fibrosis: A Neglected Issue

et al. 2022

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As with the majority of chronic diseases having specific nutrition recommendations, in cystic fibrosis (CF), the emphasis placed on patients regarding their diet and ideal body weight status often increases the risk of developing disordered eating behaviors and by inference, eating disorders (EDs). Body weight appears to be an important concern for patients with CF, with many patients struggling to lose weight. Between sexes, women appear more preoccupied with dieting compared to men, but exhibit a better body image, mainly due to their preference for a lower weight. Several comorbidities appear to change these dynamics, and visibly apparent factors, including scars, ports, and tubes, and the need for supplementary oxygen supply, may also influence body image perception. Disordered eating is usually initiated during a bout of pulmonary infection, with the patient feeling unwell to eat. Regarding the prevalence of EDs, research appears conflicting on whether it is higher among individuals with a CF diagnosis or not. As for comorbidities, anxiety and depression consist of the most common psychiatric diagnoses in CF, also greatly prevalent in EDs. Despite the plethora of studies, non-specific CF tools, small samples, and lack of data regarding important outcomes, including lung health, indicate the need for more research.

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Section: Research On Disordered Eating Eds and Other Feeding And Eds ...mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Eating Disorders and Disordered Eating Behaviors in Cystic Fibrosis: A Neglected Issue

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“…Critical evaluation of the process used to synthesize the evidence when making recommendations for clinical practice (as in the EAT- Lancet report) enables users to assess the trustworthiness of these recommendations [ 61 ]. Health professionals are increasingly dependent on valid recommendations in everyday clinical practice since they do not always have the time to keep up with the medical literature, and for providing evidence-based practice [ 61 , 62 ]. According to Lunny and associates [ 61 ], high-quality systematic review products are required for the identification and pooling of the best available up-to-date evidence in order to inform clinical recommendations.…”

Section: The Eat- Lancet Reference Dietmentioning

confidence: 99%

Basics of Sustainable Diets and Tools for Assessing Dietary Sustainability: A Primer for Researchers and Policy Actors

et al. 2022

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Climate change can have economic consequences, affecting the nutritional intake of populations and increasing food insecurity, as it negatively affects diet quality parameters. One way to mitigate these consequences is to change the way we produce and consume our food. A healthy and sustainable diet aims to promote and achieve the physical, mental, and social well-being of the populations at all life stages, while protecting and safeguarding the resources of the planet and preserving biodiversity. Over the past few years, several indexes have been developed to evaluate dietary sustainability, most of them based on the EAT-Lancet reference diet. The present review explains the problems that arise in human nutrition as a result of climate change and presents currently available diet sustainability indexes and their applications and limitations, in an effort to aid researchers and policy actors in identifying aspects that need improvement in the development of relevant indexes. Overall, great heterogeneity exists among the indicators included in the available indexes and their methodology. Furthermore, many indexes do not adequately account for the diets’ environmental impact, whereas others fall short in the economic impact domain, or the ethical aspects of sustainability. The present review reveals that the design of one environmentally friendly diet that is appropriate for all cultures, populations, patients, and geographic locations is a difficult task. For this, the development of sustainable and healthy diet recommendations that are region-specific and culturally specific, and simultaneously encompass all aspects of sustainability, is required.

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Involvement of methodological experts and the quality of clinical practice guidelines: a critical appraisal of clinical practice guidelines and a questionnaire survey of the development groups in Japan

et al. 2023

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ObjectiveTo evaluate whether the involvement of methodological experts improves the quality of clinical practice guidelines (CPGs) after adjusting for other factors.SettingThe quality of Japanese CPGs published in 2011–2019 was assessed using the Appraisal of Guidelines, Research, and Evaluation (AGREE) II instrument. A questionnaire survey targeting CPG development groups was conducted through postal mail.Participants405 CPGs were retrieved from a Japanese CPG clearinghouse. Questionnaires were distributed to the 405 CPG development groups. Of the 178 respondents, 22 were excluded because of missing values. Finally, 156 participants representing their CPG development groups were included in the analysis.Primary and secondary outcome measuresCPG quality was assessed using the AGREE II tool. The characteristics of CPGs, including publication year, development organisation, versions, number of members in the development group and involvement of methodological experts, were corrected from the description in the CPGs and the questionnaire survey. We performed multiple logistic regressions using the quality of CPGs as the dependent variable and the involvement of experts as the independent variable, adjusting for other possible factors.ResultsA total of 156 CPGs were included. Expert involvement was significantly associated with the AGREE II instrument scores in domains 1 (β=0.207), 2 (β=0.370), 3 (β=0.413), 4 (β=0.289), 5 (β=0.375), 6 (β=0.240) and overall (β=0.344).ConclusionThis study revealed that the involvement of methodological experts in the CPG development process improves the quality of CPGs. The results suggest the importance of establishing a training and certification programme for experts and constructing expert referral systems that meet CPG developers’ needs to improve the quality of CPGs.

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Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines

Cited by 5 publications

References 62 publications

Eating Disorders and Disordered Eating Behaviors in Cystic Fibrosis: A Neglected Issue

Eating Disorders and Disordered Eating Behaviors in Cystic Fibrosis: A Neglected Issue

Basics of Sustainable Diets and Tools for Assessing Dietary Sustainability: A Primer for Researchers and Policy Actors

Involvement of methodological experts and the quality of clinical practice guidelines: a critical appraisal of clinical practice guidelines and a questionnaire survey of the development groups in Japan

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