BackgroundThe evidence on development of a health data exchange (HDX) in India is lacking, both in terms of the use of data for patient care (use) and aggregate data use (reuse) to improve maternal health services and programs. This study describes the requirements and proposes an HDX model development, focused on the adoption and use of design standardization.
MethodsA landscape analysis was conducted through a literature review to understand the existing HDX models. A qualitative case study focusing on a tertiary care state government hospital in India was performed. Twenty key informants were selected through purposive sampling and virtual interviews were undertaken. A mix of deductive and primarily inductive data analysis was conducted using the NVIVO 12.0 software.
FindingsFollowing an iterative design process and based on the essential requirements suggested by the key informants, an inter-organizational HDX scheme was developed. The HDX model leverages the electronic health records to enable the use of data for patient care, and use of aggregate patient data to support management and administrative decisions at the institutional, state-wide and national levels. The model describes how to balance the inter-organizational and intra-organizational data exchange needs. Integrating systems at the local level with those at the state and the national level was identified as one of the key components of this process.
ConclusionsThe patient-level data is critical for the delivery of best attainable health care. At the same time, the aggregate data is critical, especially in the domain of decision-making and global health. The development of a versatile HDX model is a pre-requisite for a successful use and reuse of data, by ensuring that no functionality is lost and that the data is used in the best way possible.Electronic health records (EHRs) are essential to a health services-oriented digital health framework 1 that strengthens health systems and improves the access, equity, safety, and quality of health services. However, the uptake of EHRs has been limited, despite the World Health Organization (WHO) publishing an EHR manual for lower-and middle-income countries (LMICs) more than a decade ago. 2 National EHRs are a high priority in high-income countries and there has been broad adoption of EHRs across different levels of healthcare service delivery in these countries. However, the development and use of modern EHR systems in LMICs are nascent or nonexistent. 3 EHRs enable the capture, analysis, use, and exchange of patient-level data for both patient care and population health management. 4,5 Yet, LMICs have limited capacity for health data exchange (HDX) across organizational boundaries. 6 A recent report by the WHO and United Nations Children's Fund highlights the limited or absence of data exchange capabilities in LMICs. 7 International donors and governments are increasingly prioritizing investments to support the use of patient data captured in EHRs for patient care and their reuse in the aggregate form fo...