Stigma and Burden Among Relatives of Persons With Schizophrenia: Results From the Swedish COAST Study

Allerby, Katarina; Sameby, Birgitta; Brain, Cecilia; Joas, Erik; Quinlan, Patrick; Sjöström, Nils; Burns, Tom; Wærn, Margda

doi:10.1176/appi.ps.201400405

Cited by 22 publications

(18 citation statements)

References 36 publications

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“…A certain number of family members reported they were stigmatized by the public, and prejudice, blame, avoidance, rejection, and discrimination were directed towards them (Angermeyer et al 2003;Corrigan & Miller 2004;Dinos et al 2004;Grover et al, 2017;Perlick et al, 2007;Phelan et al 1998;Struening et al 2001). Stigma experienced by family members leads to an array of negative consequences, including withdrawal from social relationships, low self-esteem, reduced quality of life, long-term stress and burden, and so on (Allerby et al, 2015;Angermeyer et al 2003;O'Grady 2004;Perlick et al, 2007;Zhang et al, 2018). Hence, it is essential for mental health professionals to better understand this phenomenon, especially from the perspectives of family members themselves, to help families alleviate the harmful impacts of stigma.…”

Section: Introduction and Aimsmentioning

confidence: 99%

Experience of stigma among family members of people with severe mental illness: A qualitative systematic review

Yin

Zhou

2019

Int J Mental Health Nurs

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Family members of people with severe mental illness are subjected to stigmatization, and a better understanding of their experience of stigma is important for developing anti‐stigma interventions to reduce the related adverse consequences. This review aimed to systematically identify, evaluate, and synthesize existing findings from qualitative studies regarding the experience of stigma among family members of people with severe mental illness. A systematic literature search for primary studies was conducted in PubMed, EMBASE, Ovid MEDLINE, Web of Science, PsycINFO, CINAHL, ProQuest Dissertations and Theses (PQDT), SinoMed (China), Chinese Citation Database (CNKI), and Wanfang Data (China) until March 2019. Findings from the included qualitative studies were extracted and aggregated using meta‐synthesis, guided by the Joanna Briggs Methodology for Qualitative Systematic Reviews. The results revealed that family members experienced stigma and suffered from various negative consequences related to it. Five major categories were identified in 20 studies: ‘negative public images of mental illness’, ‘structural discrimination against mental illness’, ‘stigma encountered in everyday life’, ‘psychological distress associated with stigmatization’, and ‘coping with stigma’. The study contributes to our understanding of the stigma experienced by family members of people with severe mental illness. It is suggested that culturally appropriate multi‐level interventions targeting the general public, health professionals, communities, and family members need to be developed to reduce the harmful influence of associated family stigma.

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Section: Introduction and Aimsmentioning

confidence: 99%

Experience of stigma among family members of people with severe mental illness: A qualitative systematic review

Yin

Zhou

2019

Int J Mental Health Nurs

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“…Psychiatric diagnoses, especially psychosis and schizophrenia, already carry tremendous stigma [ 5 , 6 ], which exists even on digital platforms like Twitter [ 7 ]. Although there are limited data on smartphone usage among individuals with schizophrenia, it has been suggested that symptoms such as paranoia, disorganization, and cognitive impairment may limit the feasibility of technology-based interventions for this patient group.…”

Section: Introductionmentioning

confidence: 99%

Smartphone Apps for Schizophrenia: A Systematic Review

Firth¹,

Torous²

2015

JMIR mHealth uHealth

262

185

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BackgroundThere is increasing interest in using mobile technologies such as smartphones for improving the care of patients with schizophrenia. However, less is known about the current clinical evidence for the feasibility and effectiveness of smartphone apps in this population.ObjectiveTo review the published literature of smartphone apps applied for the care of patients with schizophrenia and other psychotic disorders.MethodsAn electronic database search of Ovid MEDLINE, the Cochrane Central Register of Controlled Trials, Health Technology Assessment Database, Allied and Complementary Medicine, Health and Psychosocial Instruments, PsycINFO, and Embase was conducted on May 24, 2015. All eligible studies were systematically reviewed, and proportional meta-analyses were applied to pooled data on recruitment, retention, and adherence to examine the overall feasibility of smartphone interventions for schizophrenia.ResultsOur search produced 226 results from which 7 eligible articles were identified, reporting on 5 studies of smartphone apps for patients with schizophrenia. All examined feasibility, and one assessed the preliminary efficacy of a smartphone intervention for schizophrenia. Study lengths varied between 6 and 130 days. Overall retention was 92% (95% CI 82-98%). Participants consistently used the smartphone apps on more than 85% of days during the study period, averaging 3.95 interactions per person per day. Furthermore, participants responded to 71.9% of automated prompts (95% CI 65.7-77.8%). Participants reported a range of potential benefits from the various interventions, and user experience was largely positive.ConclusionsAlthough small, the current published literature demonstrates strong evidence for the feasibility of using smartphones to enhance the care of people with schizophrenia. High rates of engagement and satisfaction with a broad range of apps suggest the nascent potential of this mobile technology. However, there remains limited data on the efficacy of such interventions.

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“…5 The attitudes adopted by the nurses in relation to the family will determine the care process. 13 Being aware of this need, we developed this way, and, although there are studies conducted into the attitudes towards families in several contexts, 7,14,15 few is directed to the person with mental disorder. 16,17 In the mental health sector, it is important that we involve the families to care to maximize the quality of intervention offered.…”

Section: Introductionmentioning

confidence: 99%

Importance of families in care of individuals with mental disorders: nurses' attitudes

et al. 2018

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Objectives: To characterize the attitudes of nurses working in primary health care on the importance of involving families in nursing care to the person with mental disorder. Method: A cross - sectional descriptive study with a quantitative approach performed with 328 nurses who work in primary health care in Porto, Portugal. Families Importance in Nursing Care - Nurses Attitudes (FINC-NA) scale was applied. Results: Scale scores were elevated, mean value was 85.9 (Maximum possible 104). The significant correlations were with the variables: academic qualifications (p = 0.001), specialization (p = 0.002) and professional activity context (p = 0.001). Conclusion and implications for practice: Nurses demonstrate a high degree of agreement about the importance of families in nursing care to the person with mental disorder. Positive attitudes of nurses regarding the importance of involving families in care are fundamental to enhance the quality of care in the presence of mental disorder.

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Stigma and Burden Among Relatives of Persons With Schizophrenia: Results From the Swedish COAST Study

Cited by 22 publications

References 36 publications

Experience of stigma among family members of people with severe mental illness: A qualitative systematic review

Experience of stigma among family members of people with severe mental illness: A qualitative systematic review

Smartphone Apps for Schizophrenia: A Systematic Review

Importance of families in care of individuals with mental disorders: nurses' attitudes

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