Stigma, burden of care, and family functioning in family caregivers of people with mental illnesses: a cross-sectional questionnaire survey

Hoseinzadeh, Farzaneh; Miri, Sakineh; Foroughameri, Golnaz; Farokhzadian, Jamileh; Shahrbabaki, Mahin Eslami

doi:10.1080/15332985.2021.2024480

Cited by 5 publications

(7 citation statements)

References 35 publications

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“…Psychosocial factors (i.e., affiliate stigma and family empowerment) in the present study were the main predictors of changes in family functioning among primary family caregivers of individuals with schizophrenia over a 6‐month period. In line with previous cross‐sectional work (Hoseinzadeh et al, 2022; Muralidharan et al, 2016), affiliate stigma significantly undermined family functioning among primary family caregivers in the groups with unhealthy and healthy family functioning across 6 months following hospital discharge. Given cultural values and reputational concerns associated with mental illness in Taiwanese society, affiliate stigma is salient among primary family caregivers of individuals with schizophrenia.…”

Section: Discussionsupporting

confidence: 85%

“…Due to the advent of antipsychotics and deinstitutionalized mental health care, most patients with schizophrenia live with their families after hospital discharge. Thus, family members become frontline caregivers providing long‐term assistance for patients (Hoseinzadeh et al, 2022; Hsiao et al, 2020; Peng et al, 2022).…”

Section: Introductionmentioning

confidence: 99%

“…Family functioning is defined as an outcome in which family members work together to adapt to life challenges and meet individual members' needs (McCubbin & McCubbin, 1993). Existing cross‐sectional research has indicated that family functioning is decreased among primary family caregivers of individuals with schizophrenia (Hoseinzadeh et al, 2022; Hsiao et al, 2020; Khatimah et al, 2022). A 2‐year longitudinal study of 100 families with individuals experiencing psychosis showed that high levels of criticism from family caregivers significantly predicted patient relapse (Koutra et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

“…Family caregivers may be frustrated with and embarrassed about being associated with patients who are perceived to “bring shame” to the family (Zhang et al, 2018). Prior cross‐sectional studies elucidated that affiliate stigma was inversely associated with family functioning for family caregivers of individuals with mental disorders (Hoseinzadeh et al, 2022; Muralidharan et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

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Changes in family functioning among primary family caregivers of patients with schizophrenia

Hsiao

Hsieh

Chung³

et al. 2023

J of Nursing Scholarship

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IntroductionFamily functioning, particularly among primary family caregivers for patients with schizophrenia, is a global concern that poses unprecedented challenges. The family unit is a pivotal agent for the preservation of the integrity of individual members. Little attention has been paid to the changes in family functioning and their predictors in primary family caregivers. This study aimed to examine the changes in and the correlates of family functioning in primary family caregivers of individuals with schizophrenia over a 6‐month post‐discharge period.DesignA prospective, longitudinal study was conducted.MethodsA total of 58 primary family caregivers of patients with schizophrenia were recruited from two psychiatric hospitals in Taiwan. Data were collected four times, including 1 week before hospital discharge and at 1‐, 3‐, and 6‐month intervals post‐discharge. Demographic and clinical questionnaires, the Affiliate Stigma Scale, the Family Empowerment Scale, and the General Functioning subscale were used to collect data. Generalized Estimating Equations were applied for data analysis.ResultsApproximately 59.6%–77.6% of primary family caregivers presented unhealthy family functioning during the 6‐month post‐discharge period. Significant reductions in family functioning of primary family caregivers were noted in the group with unhealthy family functioning; however, family functioning of primary family caregivers remained unchanged in the group with healthy family functioning over 6 months. Affiliate stigma and family empowerment significantly accounted for the changes in family functioning of primary family caregivers in the groups with unhealthy and healthy family functioning, respectively.ConclusionThis study highlights affiliate stigma and family empowerment as long‐term predictors of changes in family functioning for primary family caregivers and as pivotal targets of mental health care.Clinical RelevanceFamily‐centered interventions with a focus on ameliorating affiliate stigma and enhancing family empowerment are recommended to improve family functioning for primary family caregivers of patients with schizophrenia at different periods after hospital discharge.

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Section: Discussionsupporting

confidence: 85%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Changes in family functioning among primary family caregivers of patients with schizophrenia

Hsiao

Hsieh

Chung³

et al. 2023

J of Nursing Scholarship

View full text Add to dashboard Cite

show abstract

“…Family functioning is defined as the efficient problem-solving procedues and strategies used by family members, such as having social and emotional communication, to this end, family members try to coordinate or adapt to life changes by staying together, negotiating, observing the differences, to protect the family system. However, a comprehensive understanding requires attention to cultural and contextual factors [ 36 ]. And also findings may indicate that because married nurses have experienced life stress, they are better able to manage psychological stress than single, resulting in less moral stress.…”

Section: Discussionmentioning

confidence: 99%

Alarm fatigue and moral distress in ICU nurses in COVID-19 pandemic

et al. 2022

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Introduction Most ICU nurses feel overwhelmed by the variety of alarms at the same time. Therefore, nurses experience very stressful situations in relation to many responsibilities and care demands. This stressful condition has recently been exacerbated by COVID-19 and potentially endangers patient safety. The aim of this study was to investigate the alarm fatigue and moral distress of ICU nurses in COVID-19 crisis. Method This is a descriptive-analytical cross-sectional study (April-May 2021). Sampling was done by convenience among ICU nurses affiliated to Isfahan University of Medical Sciences, Iran. Data were collected using Nurses’ alarm fatigue and the moral distress scale (MDS). Data were analyzed using ANOVA, independent t-test and multivariate logistic regression. Result The results showed that the mean score of alarm fatigue was moderate)19.08 ± 6.26 (and moral distress was low (33.80 ± 11.60). The results showed that there was a significant relationship between alarm fatigue and related training courses)P = .012(.So that, alarm fatigue in nurses who were trained in working with ventilators and alarm settings was significantly less than other nurses. Also, a significant relationship was found between moral distress and marital status(P = .001) and Shift type(P = .01). On the other hand, the risk of alarm fatigue was higher in participants who have a PhD. The results showed that no significant correlation was found between alarm fatigue and moral distress (r = 0.111, P = 0.195). Conclusion It is suggested that practical training courses on alarm management be included in the curriculum and the ICU nurses should have practical training before starting work in the ICU and on an annual basis. In order to protect nurses and ensure quality care of patients, nurse managers should reduce the number of rotating shifts of ICU nurses.

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Internalized stigma and its correlates in families of persons with mental illness in Qatar: a cross-sectional study

Kehyayan,

Omar,

Ghuloum

et al. 2024

Curr Psychol

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Persons with mental illness (PWMI) experience rejection, isolation, and discrimination in employment, education, and housing due to the prejudice associated with the illness. Families affiliated with PWMI often internalize the public’s prejudice towards mental illness. Such internalized stigma can further impact the health and quality of life of both PWMI and their families. This study aimed to examine the level and correlates of internalized stigma in family members of PWMI in Qatar. A cross-sectional study of 106 family members was conducted using the Family Internalized Stigma Mental Illness Scale. The mean stigma score was 2.04 suggesting a mild level of stigma overall. Being married was found to be a predictor of higher levels of internalized stigma, while having college education or higher predicted lower levels of stigma. The overall stigma scores among family members were not high, which may reflect the protective stance families take towards about their relatives with mental illness. Some sociodemographic attributes predicted trends in internalized stigma among our surveyed sample. Future research efforts in this area may help increase understanding of internalized stigma in this population to inform stigma reduction efforts.

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Stigma, burden of care, and family functioning in family caregivers of people with mental illnesses: a cross-sectional questionnaire survey

Cited by 5 publications

References 35 publications

Changes in family functioning among primary family caregivers of patients with schizophrenia

Changes in family functioning among primary family caregivers of patients with schizophrenia

Alarm fatigue and moral distress in ICU nurses in COVID-19 pandemic

Internalized stigma and its correlates in families of persons with mental illness in Qatar: a cross-sectional study

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