Stigma in Epilepsy

Fiest, Kirsten M.; Birbeck, Gretchen L.; Jacoby, Ann; Jetté, Nathalie

doi:10.1007/s11910-014-0444-x

Cited by 103 publications

(74 citation statements)

References 46 publications

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“…1 Epilepsy can be defined as a brain disorder that is characterized by episodes of vigorous shaking and disturbed brain activity )seizures( that can affect the patient's attention and behavior. neurological disorder around the world in terms of disability adjusted life years.…”

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confidence: 99%

Epidemiological study of epilepsy from a tertiary care hospital in kingdom of Saudi Arabia

Shahid

Nazish

Zafar

et al. 2018

NSJ

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Methods:In this retrospective epidemiological study, we analyzed the medical records of the patients with the diagnosis of epilepsy during the study period )January 1st 2016-December 2016( Results:The study included 184 patients, 91 )49.5%( were males and 93 )50.5%( females. Age ranged between 12 and 85 years )mean 35.4±19.5 SD years(. Most of the patients 150 )82%( had Generalized tonic clonic seizures followed by focal onset in 27 )14%( of the patients. Main EEG abnormality was focal to bilateral was recorded in 53 )41%(, idiopathic/ cryptogenic epilepsy was diagnosed in 61% of the patients. The most common abnormalities on brain imaging were temporal/hippocampal atrophy/stroke. The most common cause of symptomatic epilepsy was stroke found in 20)11%( followed by post infectious epilepsy and head trauma. Conclusion:Seizure types, EEG characteristics and etiologies of symptomatic epilepsy in our cohort of patients are in accordance with the current literature. Slight discrepancy observed in gender distribution and etiologies for symptomatic epilepsy compared with other studies from Saudi Arabia need to be studied further by prospective and population base studies.

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confidence: 99%

Epidemiological study of epilepsy from a tertiary care hospital in kingdom of Saudi Arabia

Shahid

Nazish

Zafar

et al. 2018

NSJ

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“…Epilepside nöbetlerin %70'e yakýný ilaçlarla kontrol edilmesine karþýn dünya çapýnda hastalýðýn tedavi edilebileceðine karþý olan olumsuz önyargý devam etmektedir (11). Özellikle geliþmekte olan ülke-lerde, doðaüstü yada mistik olaylara olan inancýn etkisi ile bu hastalýk bulaþýcý hastalýk olarak deðer-lendirilip, toplum tarafýndan dýþlanmaktadýr.…”

Section: Damganýn Bileþenleriunclassified

Epilepsy and Stigmatization: A review

Ay¹

2017

J Clin Psy

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SUMMARYEpilepsy, which is considered dangerous and scary by the society, is a frequent neurological disease. Although epileptic seizures can be controlled with drugs, prejudices towards this disease being scary still continue. There are several factors that determine the level of stigmatization directed to epilepsy. Age, marital status,education of the patient, age of disease onset, the treatment duration of the disease, drug side effects, accompanying physical and psychiatric disorders, education level of those stigmatizing and disease-related knowledge level are among these factors. Adverse outcomes are observed in many areas such as quality of life, treatment complience, social and occupational functionality. The aim of this article is to increase the awareness of stigmatization that hampers the treatment and quality of life of epilepsy patients.

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“…In addition to the clinical manifestations of the disease, people with epilepsy and their families are faced with the consequences of pervasive stigma. This can lead to prejudice and discrimination in legislation, schooling, employment, marriage, and other aspects of social life . Some forms of epilepsy are also associated with a major increase in mortality risk.…”

Section: How Did It All Start?mentioning

confidence: 99%

“…This can lead to prejudice and discrimination in legislation, schooling, employment, marriage, and other aspects of social life. 10 Some forms of epilepsy are also associated with a major increase in mortality risk. In a prospective study of 245 children with epilepsy over a period of 40 years, 33 (55%) of the 60 deaths during follow-up were related to epilepsy.…”

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confidence: 99%

From global campaign to global commitment: The World Health Assembly's Resolution on epilepsy

Covanis

Guekht

et al. 2015

Epilepsia

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Summary Tuesday May 26, 2015, will be remembered as an historic day in the fight against epilepsy. On that date, the World Health Assembly approved unanimously the Resolution on the “Global Burden of Epilepsy and the Need for Coordinated Action at the Country Level to Address its Health, Social and Public Knowledge Implications,” which urges Member States to implement a coordinated action against epilepsy and its consequences. This event, which comes almost 20 years after the establishment of the Global Campaign against Epilepsy, is another landmark in the longstanding collaboration among the World Health Organization (WHO), the International League Against Epilepsy (ILAE), and the International Bureau for Epilepsy (IBE) in addressing the needs of people with epilepsy. It also acted as a catalyst for other professional societies, including the World Federation of Neurology (WFN), to join forces in promoting a common action against epilepsy. The Resolution did not happen by chance, but came at the end of a long journey that involved the hard and tireless work of many dedicated individuals around the globe.

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Stigma in Epilepsy

Cited by 103 publications

References 46 publications

Epidemiological study of epilepsy from a tertiary care hospital in kingdom of Saudi Arabia

Epidemiological study of epilepsy from a tertiary care hospital in kingdom of Saudi Arabia

Epilepsy and Stigmatization: A review

From global campaign to global commitment: The World Health Assembly's Resolution on epilepsy

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