Stigmatization Predicts Psychological Adjustment and Quality of Life in Children and Adolescents With a Facial Difference

Masnari, Ornella; Schiestl, Clemens; Rößler, Jochen; Gütlein, Stefanie K.; Neuhaus, Kathrin; Weibel, Lisa; Meuli, Martin; Landolt, Markus A.

doi:10.1093/jpepsy/jss106

Cited by 112 publications

(89 citation statements)

References 28 publications

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“…Sharing meals with others is known to have high social significance; hence, patients living with dietary restrictions experience numerous potentially stigmatising situations (Diesen et al 2014). Since perceived stigmatisation is a predictor for poorer psychological adjustment (Masnari et al 2013), it is of great importance that patients are supported in so-called stigma-handling strategies (Diesen et al 2014), such as social skills training or school-based interventions, in which peers are provided with basic information about the condition, resulting in better understanding (Sharman et al 2013).…”

Section: Discussionmentioning

confidence: 99%

Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

et al. 2016

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Introduction: Progress in diagnosis and treatment of patients with intoxication-type inborn errors of metabolism (IT-IEM) such as urea cycle disorders, organic acidurias or maple syrup urine disease is resulting in a growing number of long-term survivors. Consequently, health-related quality of life (HrQoL) of patients is increasingly regarded as a meaningful outcome parameter. To develop the first validated, disease-specific HrQoL questionnaire for IT-IEM, patients and parents were interviewed as content experts to identify major physical and psychosocial constraints and resources.Methods: Focus group interviews with 19 paediatric IT-IEM patients and 26 parents were conducted in four metabolic centres in Austria, Germany and Switzerland. Disease-specific HrQoL categories were established by qualitative content analysis.Results: Fourteen disease-specific topics related to the three well-established generic HrQoL dimensions of physi-

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Section: Discussionmentioning

confidence: 99%

Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

et al. 2016

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“…This data is consistent with the fi ndings of Hunt et al (2005), who evidenced some specifi c behavioral problems in children with orofacial cleft, such as anxiety and depression, however, found no signifi cant differences regarding the types of cleft. However, some studies have found that children with orofacial clefts may present a higher degree of anxiety according to the degree of facial deformity, speech diffi culties and social relationships (Ha et al, 2013;Masnari et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

Behavioral Problems in Preschool Children with Orofacial Clefts

Silva¹,

Rodrigues²,

Lauris³

2017

Temas Psicol.

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The present study aimed to evaluate behavioral problems in 83 children with orofacial clefts and to test for possible correlations between these problems and the following variables: gender, age and cleft type. The instruments used were: Interview Protocol and the CBCL. Descriptive analysis of the data was performed using measures of frequency and percentage and the Chi-squared test was used to test for possible correlations. The results showed a higher frequency of externalizing behavior problems in boys. Higher rates of internalizing problems (62.2%) and total problems (46.7%) were also found in older children. Regarding the relationship between cleft type and behavioral problems, a prevalence of internalizing behaviors was observed, regardless of the type. Considering the behavioral profi le that composes the internalizing and externalizing scales, an association between male gender and aggressive behavior was observed; between the 3 years to 4 years 3 months age group and aggressive behavior; and between the pre-incisive foramen cleft and trans-incisive foramen cleft types and internalizing behavior, with emphasis on anxiety/depression problems (50% and 27.1% respectively). It is considered that these data can contribute to the planning of preventive and interventional actions, as internalizing and externalizing behaviors reduce the opportunity for adequate interactions and, hence social development.Keywords: Children's behavior, behavior problems, cleft lip and palate. Problemas Comportamentais em Crianças Pré-Escolares com Fissura LabiopalatinaResumo O presente estudo objetivou identifi car problemas de comportamento de 83 crianças com fi ssura labiopalatina e testar a correlação entre esses problemas e as variáveis sexo, idade e tipo de fi ssura.

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“…Este dado é condizente com os achados de Hunt et al (2005) que encontraram alguns problemas comportamentais específi cos em crianças com fi ssura labiopalatina, tais como a ansiedade e a depressão, porém, não constataram diferenças signifi cativas quanto aos tipos de fi ssura. Todavia, alguns estudos constataram que crianças portadoras de fi ssuras labiopalatinas podem apresentar um maior grau de ansiedade quanto maior forem o grau de deformidade facial, difi culdades de fala e relacionamentos sociais também (Ha et al, 2013;Masnari et al, 2013).…”

Section: Discussionunclassified

Problemas comportamentais em crianças pré-escolares com fissura labiopalatina

Silva¹,

Rodrigues²,

Lauris³

2017

Temas Psicol.

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ResumoO presente estudo objetivou identifi car problemas de comportamento de 83 crianças com fi ssura labiopalatina e testar a correlação entre esses problemas e as variáveis sexo, idade e tipo de fi ssura.Os instrumentos utilizados foram: Protocolo de Entrevista e o CBCL.Procedeu-se a análise descritiva dos dados utilizando medidas de frequência e porcentagem e,para as associações, foi realizado o Teste Estatístico do Qui-quadrado. Os resultados mostraram maior frequência de problemas de comportamento externalizantes em meninos. Verifi cou-se porcentagem maior de problemas internalizantes (62,2%) e problemas totais (46,7%) em crianças mais velhas. Quanto à relação entre tipo de fi ssura e problemas comportamentais pode-se constatar a prevalência de comportamentos internalizantes, independentemente do tipo. Considerando o perfi l comportamental que compõem as escalas internalizantes e externalizantes, foi observada uma associação entre sexo e comportamento agressivo, com destaque para os meninos; idade e comportamento agressivo, com destaque para 3 a 4 anos e 3 meses e, tipo de fi ssura pré-forame e transforame e comportamento internalizante, com destaque para os problemas de ansiedade/depressão (50% e 27,1% respectivamente). Considera-se que tais dados podem contribuir para o planejamento de ações preventivas e interventivas, uma vez que comportamentos internalizantes e externalizantes reduzem as oportunidades de interações adequadas e, consequentemente, de desenvolvimento social. Palavras-chave:Comportamento infantil, problema de comportamento, fi ssura labiopalatina. Behavioral Problems in Preschool Children with Orofacial Clefts AbstractThe present study aimed to evaluate behavioral problems in 83 children with orofacial clefts and to test for possible correlations between these problems and the following variables: gender, age and cleft type. The instruments used were: Interview Protocol and the CBCL. Descriptive analysis of the data was performed using measures of frequency and percentage and the Chi-squared test was used to test for possible correlations. The results showed a higher frequency of externalizing behavior problems in 1 Endereço para correspondência:

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Stigmatization Predicts Psychological Adjustment and Quality of Life in Children and Adolescents With a Facial Difference

Abstract: Identification of stigma experiences and appropriate support may be crucial to enhancing psychological adjustment and quality of life in children with facial disfigurement.

Cited by 112 publications

References 28 publications

Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

Living with Intoxication-Type Inborn Errors of Metabolism: A Qualitative Analysis of Interviews with Paediatric Patients and Their Parents

Behavioral Problems in Preschool Children with Orofacial Clefts

Problemas comportamentais em crianças pré-escolares com fissura labiopalatina

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