Storytelling as part of cancer rehabilitation to support cancer patients and their relatives

Cour, Karen la; Ledderer, Loni; Hansen, Helle Ploug

doi:10.1080/07347332.2016.1217964

Cited by 14 publications

(25 citation statements)

References 38 publications

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“…This sub-theme identified the importance of the opportunity to express suffering and the ability for each participant to consider and offer true and experienced feelings associated with the illness. Six [14] Individuals had an opportunity to discuss fears and worries which were aspects of the situation that were exclusive to the group [15] [24] [26] [28]. The group environment represented a space where judgement from others about individual's story/ies was suspended or limited [15].…”

Section: Subtheme A: the Expressions Of Emotions Which Validated Suffmentioning

confidence: 99%

“…This sub-theme identified that in the process of storytelling individuals were able to describe and understand how to manage their condition because the information was shared by others enabling reflection. Four [14] [29]. One study [29] quantified this by scoring agreement with the statements out of a complete agreement of 4.…”

Section: Sub-theme (B) Developing a Shared Understanding Of Copingmentioning

confidence: 99%

“…However, another [15] identified a participant who regretted sharing personal information in a group setting. Another study [14] identified that the process of sharing developed slowly and it was unlikely to happen in the early stages of the group.…”

Section: Sub-theme (C) Impact On Social Well-beingmentioning

confidence: 99%

“…This sub-theme identified that individuals felt there was an important function of the group through which they could feel able to share their experiences and feel "heard" or listened to by others. Five studies [14] The following aspects of the storytelling intervention enhanced the experience of being heard and valued. This included; 1) feeling accepted by others [15], 2) entering a shared social-world of another person [14] [28], and 3) the ability to use and relate to metaphors and conversations with deep personal meaning [14].…”

Section: Sub-theme (D) Legitimising or Rationalising The Experiences mentioning

confidence: 99%

“…Past studies have used qualitative e.g. [14] [15], mixed methods e.g. [16] and quantitative studies e.g.…”

Section: Introductionmentioning

confidence: 99%

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The Psychosocial Impact and Value of Participating in a Storytelling Intervention for Patients Diagnosed with Cancer: An Integrative Review

Soundy¹,

Reid²

2019

OJTR

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Background: Interventions have recently been developed to test the therapeutic value of storytelling for people with cancer. This evidence includes different designs, as a result an integrative review is needed that can determine the impact and value of storytelling interventions for people with cancer. Aims: To undertake an integrative review of evidence identifying the impact and outcomes from storytelling interventions for people with cancer. Methods: An integrative review of group based storytelling interventions using a qualitative led-synthesis. Results: Eleven studies were identified with a total of 493 (49 female, 16 male, 428 not disclosed) people included. Two major themes were identified: 1) content of interaction and 2) outcomes from the interventions. Six sub-themes were identified. The results provided a unique insight into the psycho-emotional impact of storytelling interventions. Conclusions: It is essential that health care professionals understand the core benefits of storytelling for people with cancer. Further interventions are needed to identify an approach which could be applied within clinical settings.

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Section: Subtheme A: the Expressions Of Emotions Which Validated Suffmentioning

confidence: 99%

Section: Sub-theme (B) Developing a Shared Understanding Of Copingmentioning

confidence: 99%

Section: Sub-theme (C) Impact On Social Well-beingmentioning

confidence: 99%

Section: Sub-theme (D) Legitimising or Rationalising The Experiences mentioning

confidence: 99%

“…Past studies have used qualitative e.g. [14] [15], mixed methods e.g. [16] and quantitative studies e.g.…”

Section: Introductionmentioning

confidence: 99%

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The Psychosocial Impact and Value of Participating in a Storytelling Intervention for Patients Diagnosed with Cancer: An Integrative Review

Soundy¹,

Reid²

2019

OJTR

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Psychosocial interventions for informal caregivers of people living with cancer

Treanor

Santin

Prue

et al. 2019

Cochrane Database of Systematic Reviews

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A systematic mixed studies review of fear of cancer recurrence in families and caregivers of adults diagnosed with cancer

Smith

Lambert

et al. 2021

J Cancer Surviv

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Purpose Fear of cancer recurrence (FCR) may be equally prevalent, persistent and burdensome in cancer caregivers as in survivors. This systematic review evaluated FCR prevalence, severity, correlates, course, impact and interventions in cancer caregivers. Methods Electronic databases were searched from 1997 to May 2021. Two reviewers identified eligible peer-reviewed qualitative or quantitative studies on FCR in adult caregivers or family members of adult cancer survivors. The risk of bias was assessed using the Cochrane Risk of Bias tools for randomised and non-randomised studies and the Mixed-Methods Appraisal Tool. A narrative synthesis and thematic synthesis occurred on quantitative and qualitative studies, respectively. Results Of 2418 papers identified, 70 reports (59 peer-reviewed articles, 11 postgraduate theses) from 63 studies were included. Approximately 50% of caregivers experienced FCR. Younger caregivers and those caring for survivors with worse FCR or overall health reported higher FCR. Most studies found caregivers' FCR levels were equal to or greater than survivors'. Caregivers' FCR was persistently elevated but peaked approaching survivor follow-up appointments. Caregivers' FCR was associated with poorer quality of life in caregivers and survivors. Three studies found couple-based FCR interventions were acceptable, but had limited efficacy. Conclusions FCR in caregivers is prevalent, persistent and burdensome. Younger caregivers of survivors with worse overall health or FCR are at the greatest risk. Further research on identifying and treating caregivers' FCR is required. Implications for Cancer Survivors Caregiver and survivor FCR are similarly impactful and appear interrelated. Addressing FCR may improve outcomes for both cancer caregivers and survivors.

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Storytelling as part of cancer rehabilitation to support cancer patients and their relatives

Cited by 14 publications

References 38 publications

The Psychosocial Impact and Value of Participating in a Storytelling Intervention for Patients Diagnosed with Cancer: An Integrative Review

The Psychosocial Impact and Value of Participating in a Storytelling Intervention for Patients Diagnosed with Cancer: An Integrative Review

Psychosocial interventions for informal caregivers of people living with cancer

A systematic mixed studies review of fear of cancer recurrence in families and caregivers of adults diagnosed with cancer

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