Strategies Developed by Service Providers to Enhance Treatment Engagement by Immigrant Parents Raising a Child with a Disability

Brassart, Elise; Prévost, Claudia; Bétrisey, Carine; Lemieux, Maude; Desmarais, Chantal

doi:10.1007/s10826-016-0646-8

Cited by 31 publications

(63 citation statements)

References 47 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The use of medical terminology [48,49], lack of intercultural communication skills, and lack of training pertaining to working with families from diverse backgrounds were also communication challenges that immigrant families in our study faced. Healthcare providers may unintentionally devalue immigrant families' perspectives and perceptions, assuming that the "Western way" is the "best and only way" [50].…”

Section: Discussionmentioning

confidence: 97%

See 1 more Smart Citation

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Arfa

Solvang

Berg

et al. 2020

BMC Health Serv Res

View full text Add to dashboard Cite

Background: Immigrants and their Norwegian-born children make up approximately 18% of the total population in Norway. While several studies have been conducted on immigrants' utilization of healthcare services, immigrant families are systematically underrepresented in international studies of children with disabilities. By focusing on experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway, this study generated knowledge of how accessible and tailored the services were from their point of view. Methods: This study took a qualitative approach, using semi-structured interviews to explore the experiences of immigrant parents of children with disabilities from non-Western countries. The interviews were transcribed, coded, and analyzed via an inductive thematic analytic approach. Results: The findings show how the "immigrant experience" influenced the way the parents looked at, experienced, and even praised the services. The parents appreciated the follow-up services provided by the pediatric rehabilitation centers, which they experienced as predictable and well-organized. While navigating the services, they experienced several challenges, including the need for information, support, and timely help. They felt exhausted because of years of struggle in the healthcare system to access the help and services they needed. They expressed how this struggle had affected their own health. The feeling of being treated differently from the majority was another challenge they experienced while navigating the services. The findings also show how parents' experiences of communication with healthcare providers were influenced not only by their own language and communication skills but also by the healthcare providers' intercultural communication skills and dominant organizational culture. Conclusions: The parents' experiences show that there is still a gap between the public ideal of equal healthcare services and the reality of the everyday lives of immigrant families of children with disabilities. By exploring immigrant parents' experiences, this study highlights the importance of mobilization at both the individual and systemic levels to fill the current gap and provide tailored and accessible services to the entire population.

show abstract

Section: Discussionmentioning

confidence: 97%

“…It is the healthcare providers' responsibility to ensure that their clients have understood the content of the conversation and to use a professional interpreter instead of relatives. Improvement of access to and use of professional interpreters is also important for both linguistic and cultural reasons [48].…”

Section: Discussionmentioning

confidence: 99%

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Arfa

Solvang

Berg

et al. 2020

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…While the need for rehabilitation services has an important impact on all individuals and families, cultural minorities experience additional compounding issues. They encounter language barriers, limited social support systems and cultural barriers, all while often undergoing acculturation [ 6 – 8 ]. Such challenges can affect access to care, leading to issues with treatment compliance and outcome success [ 6 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

Barriers and facilitators to cultural competence in rehabilitation services: a scoping review

Grandpierre

Milloy

Sikora

et al. 2018

BMC Health Serv Res

View full text Add to dashboard Cite

BackgroundThere is an important need to evaluate whether rehabilitation services effectively address the needs of minority culture populations with North America’s increasingly diverse population. The objective of this paper was therefore to review and assess the state of knowledge of barriers and facilitators to cultural competence in rehabilitation services.MethodOur scoping review focused on cultural competence in rehabilitation services. Rehabilitation services included in this review were: audiology, speech-language pathology, physiotherapy, and occupational therapy. A search strategy was developed to identify relevant articles published from inception of databases until April 2015. Titles and abstracts were screened by two independent reviewers according to specific eligibility criteria with the use of a liberal-accelerated approach. Full-text articles meeting inclusion criteria were then screened. Key study characteristics were abstracted by the first reviewer, and findings were verified by the second reviewer.ResultsAfter duplicates were removed, 4303 citations were screened. Included articles suggest that studies on cultural competence occur most frequently in occupational therapy (n = 17), followed by speech language pathology (n = 11), physiotherapy (n = 6), and finally audiology (n = 1). Primary barriers in rehabilitation services include language barriers, limited resources, and cultural barriers. Primary facilitators include cultural awareness amongst practitioners, cultural awareness in services, and explanations of health care systems.ConclusionTo our knowledge, this review is the first to summarize barriers and facilitators to cultural competence in rehabilitation fields. Insufficient studies were found to draw any conclusions with regards to audiological services. Minimal perspectives based on patient/caregiver experiences in all rehabilitation fields underscore a research gap. Future studies should aim to explore both patient/caregiver and practitioner perspectives as such data can help inform culturally competent practices.

show abstract

“…The use of medical terminology (48,49), the lack of intercultural communication skills, and the lack of training pertaining to working with families from diverse backgrounds were also communication challenges that immigrant families in our study faced. Healthcare providers may unintentionally devalue immigrant families' perspectives and perceptions, assuming that the 'Western way' is the 'best and only way' (50).…”

Section: Discussionmentioning

confidence: 97%

“…It is the healthcare providers' responsibility to ensure that their clients have understood the content of the conversation and to use a professional interpreter instead of relatives. Improvement of access to and the use of professional interpreters is also important for both linguistic and cultural reasons (48).…”

Section: Discussionmentioning

confidence: 99%

Disabled and immigrant, a double minority challenge. A qualitative study about the experiences of immigrant parents of children with disabilities navigating the Norwegian healthcare system in general and the pediatric rehabilitation services in particular.

Arfa¹,

Solvang²,

Berg³

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Immigrants and their Norwegian-born children make up approximately 18% of the total population in Norway. While several studies have been conducted on migrants’ utilization of healthcare services, immigrant families are systematically underrepresented in international studies of children with disabilities. This study, by focusing on experiences of immigrant parents of children with disabilities who are navigating the Norwegian healthcare system in general and the pediatric rehabilitation services in particular, will generate knowledge of how accessible and tailored the services are from their point of view. Methods: This study took a qualitative approach, using semi-structured interviews to explore the experiences of immigrant parents of children with disabilities from non-Western countries. The interviews were transcribed, coded, and analyzed via an inductive thematic analytic approach. Results: The findings show how the “immigrant experience” influenced the way the parents looked at, experienced, and even praised the services. The parents appreciated the follow-up services provided by the pediatric rehabilitation centers, which they experienced as predictable and well-organized. While navigating the services, they experienced several challenges, including the need for information, support, and timely help. They felt exhausted because of the years of struggle in the healthcare system to gain access to the help and services they needed. They expressed how this struggle had affected their own health. The feeling of being treated differently from the majority was another challenge they experienced while navigating the services. The findings also show how the parents’ experiences of communication with healthcare providers were influenced not only by their own language and communication skills but also by the healthcare providers’ intercultural communication skills and dominant organizational culture. Conclusions: The parents’ experiences show that there is still a gap between the public ideal of equal healthcare services and the reality of the everyday lives of immigrant families of children with disabilities. By exploring immigrant parents’ experiences, this study highlights the importance of mobilization at both the individual and system levels to fill the current gap and provide tailored and accessible services to the entire population. Keywords: Immigrant parents, Children with disabilities, Healthcare system.

show abstract

Strategies Developed by Service Providers to Enhance Treatment Engagement by Immigrant Parents Raising a Child with a Disability

Cited by 31 publications

References 47 publications

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway

Barriers and facilitators to cultural competence in rehabilitation services: a scoping review

Disabled and immigrant, a double minority challenge. A qualitative study about the experiences of immigrant parents of children with disabilities navigating the Norwegian healthcare system in general and the pediatric rehabilitation services in particular.

Contact Info

Product

Resources

About