Strategies To Facilitate Organ Donation among African Americans

Robinson, Dana H. Z.; Arriola, Kimberly R. Jacob

doi:10.2215/cjn.12561214

Cited by 7 publications

(6 citation statements)

References 18 publications

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“… 4 , 5 Prior research has identified a variety of reasons for this disparity, including mistrust in the medical community, cultural beliefs, poor understanding about the LDKT process, and lack of easy access to healthcare education and support. 6 , 7 , 8 , 9 , 10 Poor knowledge and erroneous beliefs about LDKT have been typically addressed via transplantation center-based education programs using take-home materials or transplant-center group sessions, 11 , 12 but these may not address the challenges for African Americans to approach and ask others to be evaluated as a kidney donor. Several other models that have been used include community-based grassroots education strategies, such as one promoted by Callender et al 13 to address disparities, to those focused on intentions and behaviors to become a deceased donor.…”

mentioning

confidence: 99%

Living Organ Video Educated Donors Program for Kidney Transplant-eligible African Americans to Approach Potential Donors: A Proof of Concept

Sieverdes

Treiber

Mueller

et al. 2018

Transplantation Direct

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mentioning

confidence: 99%

Living Organ Video Educated Donors Program for Kidney Transplant-eligible African Americans to Approach Potential Donors: A Proof of Concept

Sieverdes

Treiber

Mueller

et al. 2018

Transplantation Direct

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“…Black participants expressed a distinct mistrust of organ and tissue donation across all focus group sessions, more so than any other racial/ethnic group sampled. Mirroring well-documented concerns among this population, 37 – 41 respondents across generations pointed to a belief in a black market of organs and systemic racism that targeted and manipulated Black Americans, citing the Tuskegee Syphilis Study specifically. Clearly, medical mistrust remains a major barrier to organ donation among Black Americans, despite decades of public awareness campaigns and interventions targeting this community.…”

Section: Discussionmentioning

confidence: 99%

A mixed-methods examination of public attitudes toward vascularized composite allograft donation and transplantation

et al. 2022

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Background: This mixed-methods study examined the general public’s knowledge and attitudes about vascularized composite allografts. The availability of these anatomical gifts to treat individuals with severe disfiguring injuries relies largely on decisions made by family members. If vascularized composite allograft transplantation is to become more readily available, the knowledge and beliefs of the general public must be explored to ensure vascularized composite allograft donation approaches adequately support the donation decision-making process. Methods: We conducted six focus groups with 53 members of the general public, which were audio-recorded for accuracy and transcribed. Before each session, participants completed a brief survey assessing donation-related knowledge, attitudes, and beliefs. Analysis of qualitative data entailed the constant comparison method in the development and application of a schema for thematic coding. Descriptive statistics and Spearman’s rank coefficient were used in the analysis of the quantitative data. Results: Respondents were most knowledgeable about solid organ donation and least knowledgeable about vascularized composite allograft donation. Six major themes emerged: (1) strong initial reactions toward vascularized composite allografts, (2) limited knowledge of and reservations about vascularized composite allografts, (3) risk versus reward in receiving a vascularized composite allograft, (4) information needed to authorize vascularized composite allograft donation, (5) attitudes toward donation, and (6) mistrust of the organ donation system. Conclusion: The general public has low levels of knowledge and high levels of hesitation about vascularized composite allograft donation and transplantation. Education campaigns to familiarize the general public with vascularized composite allografts and specialized training for donation professionals to support informed family decision-making about vascularized composite allograft donation may address these issues.

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“…LDKT promotion is a focus for several US governmental agencies including the National Institutes of Health and other nonprofit organizations such as the National Kidney Foundation's "The Big Ask: The Big Give". Recent efforts to reorganize organ procurement policies have improved the utilization of available kidneys since December 2014 [4], but additional interventional programs are needed to enhance LDKT, especially in various ethnicities and races [5]. Behavioral interventions intended to enhance LDKTs need cultural tailoring and to be widely disseminated to overcome individual barriers to enhance patients' support systems, knowledge and skills [6][7][8].…”

Section: Introductionmentioning

confidence: 99%

“…and myths about kidney transplantation (e.g., religious misconceptions, more likely to become an ESRD patient if one donates a kidney, health consequences of the donor, etc.) [5,[9][10][11][12][13]. Of particular importance, the barriers to overcoming feelings to ask others and lacking relevant skills to develop personal strategies are critical to find a PD.…”

Section: Introductionmentioning

confidence: 99%

Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients

Sieverdes

Nemeth

Mueller

et al. 2021

IJERPH

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Marked racial disparities exist in rates of living donor kidney transplantation (LDKT). The Living Organ Video Educated Donors (LOVED) program is a distance-based, mobile health program designed to help Black kidney transplant wait-list patients advocate for a living donor. This study reported on the acceptability outcomes to aid in future refinements. Participants were randomized to LOVED (n = 24, mean age = 50.9 SD (9.2) years), male = 50%) and usual care groups (n = 24 (mean age 47.9 SD (10.0), male 50%). Four LOVED groups completed an eight-week intervention that consisted of six online video education modules and eight group video chat sessions led by a Black navigator. Qualitative analysis from post-study focus groups resulted in six themes: (1) video chat sessions provided essential support and encouragement, (2) videos motivated and made participants more knowledgeable, (3) connectivity with tablets was acceptable in most areas, (4) material was culturally sensitive, (5) participation was overall a positive experience and (6) participants were more willing to ask for a kidney now. The video chat sessions were pertinent in participant satisfaction, though technology concerns limited program implementation. Results showed that the LOVED program was acceptable to engage minorities in health behavior changes for living donor advocacy but barriers exist that require future refinement.

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Strategies To Facilitate Organ Donation among African Americans

Cited by 7 publications

References 18 publications

Living Organ Video Educated Donors Program for Kidney Transplant-eligible African Americans to Approach Potential Donors: A Proof of Concept

Living Organ Video Educated Donors Program for Kidney Transplant-eligible African Americans to Approach Potential Donors: A Proof of Concept

A mixed-methods examination of public attitudes toward vascularized composite allograft donation and transplantation

Acceptability of a Mobile-Health Living Kidney Donor Advocacy Program for Black Wait-Listed Patients

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