Stress among the family caregivers of liver transplant recipients

Cohen, Miri; Katz, Dafna; Baruch, Yaacov

doi:10.7182/prtr.17.1.a651683t34177n77

Cited by 24 publications

(26 citation statements)

References 40 publications

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“…Hence, there is an urgent need for further studies and interventions directed at caregivers because there is evidence of stress among caregivers after liver transplantation. 19 Some limitations of this study should be noted. Because this is a cross-sectional study, it is necessary to reassess the participants in a longitudinal study in order to collect information about the indices of burden, stress, and depression at other stages of the treatment, including the stage after transplantation.…”

Section: Discussionmentioning

confidence: 89%

“…[17][18][19][20] Among the participants, both a lack of information and feelings of not being prepared were identified as stress factors. According to Caballero et al, 21 50% of the relatives of patients with chronic liver disease reported that they felt poorly informed about the disease and its complications, with up to 25% of the participants demonstrating a lack of knowledge of the relationship between the symptoms of the disease (including edema and encephalopathy) and feeding, intestinal transit, and alcohol consumption.…”

Section: Discussionmentioning

confidence: 99%

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Patients on the waiting list for liver transplantation: Caregiver burden and stress

et al. 2010

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Over the last few decades, informal caregivers of patients with chronic diseases have received more attention, and there is a growing volume of studies demonstrating high rates of burden, stress, and mental disorders in this group of individuals. The objective of this study was to evaluate the burden, stress, and psychosocial characteristics of informal caregivers of liver transplantation candidates. Participants were assessed by individual evaluations with the following instruments: a semistructured interview, the Caregiver Burden Scale, the Inventá rio de Sintomas de Stress para Adultos de Lipp, and the Beck Depression Inventory. The Mann-Whitney test was used for statistical analysis with a significance level of 0.05. The characteristics of the study group (n ¼ 61) were similar to those of groups in other studies with respect to gender (82% were women), kinship (64% were spouses), and age (the mean age was 47.6 years). The main stressors identified by the participants were as follows: doubts about ways to react in a crisis or in emergency situations (42.6%), mood swings of the patient (29.5%), and care involving food and medications (27.9%). Approximately 25% of the caregivers reported that they felt unprepared to adequately perform their roles. Data analysis indicated a greater burden overall on caregivers when the patient's Model for End-Stage Liver Disease score was greater than or equal to 15 points (P ¼ 0.041). Furthermore, caregivers of patients with alcoholic liver disease showed higher depression (P ¼ 0.034) and overall burden scores (P ¼ 0.031) versus caregivers of patients with liver disease due to other etiologies. In conclusion, the participants showed significantly high levels of burden, stress, and depression. Support measures and caregiver preparation should be implemented by health care providers. A loss of health can be seen as a crisis situation, with effects extending to the relatives of patients and affecting their quality of life. Studies have warned of the high incidence of mental disorders among caregivers of the chronically sick. Anxiety, mood swings, stress, a lack of preparation for coping with the demands of patients, and feelings of anger, fear, guilt, and loneliness are all common complaints among informal caregivers.

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Section: Discussionmentioning

confidence: 89%

Section: Discussionmentioning

confidence: 99%

Patients on the waiting list for liver transplantation: Caregiver burden and stress

et al. 2010

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“…This can be coped with in different ways, from strategies facilitating adaptation to a new medical condition (for example, acceptance or positive reframing) to other strategies which would impede it. All this time, family members take on the role of caregivers, so they provide the patient with emotional support, take them to doctors’ appointments, look out for their dietary requirements, and do housework (Cohen et al, 2007). These caregivers may suffer from the frustration of their professional plans, employment complications, economic difficulties and even conflictive relations between the patients and their caregivers (Miyazaki et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

et al. 2017

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The purpose of this study was to analyze the differences in coping strategies employed by liver transplant recipients and their family members according to patient posttraumatic growth. Two matched groups of 214 liver transplant recipients and 214 family members were selected. The Posttraumatic Growth Inventory and Brief COPE were used. The most relevant results were: (1) Interactive effects in active coping, support (instrumental and emotional) and acceptance strategies, which were all used more by patients with higher growth levels, while their family members showed no differences in use of these strategies by patient growth level. Furthermore, while a low level of patient growth did not mark differences between them and their caregivers, a high level did, patients employing more active coping and support (instrumental and emotional), (2) In both groups a high level of patient growth was associated with more use of positive reframing and denial than a low one, and (3) Self-blame was employed by patients more than by their caregivers. It was concluded that a high level of posttraumatic growth in liver transplant recipients is associated with more use of healthy coping strategies, basically active coping, instrumental support, and emotional support.

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“…Although liver transplantation lengthens the life of patients with chronic liver failure, as well as increases their quality of life, liver transplant recipients continue to experience health problems and symptoms after transplantation (Cohen et al. 2007).…”

Section: Introductionmentioning

confidence: 99%

“…In addition, family members are affected by the need to perform emotional and instrumental caregiving tasks, e.g. providing emotional support, accompanying the patient to medical appointments, attending to dietary requirements, and assuming extra roles and duties at home (Cohen et al. 2007).…”

Section: Introductionmentioning

confidence: 99%

Primary caregiver stress in caring for a living-related liver transplantation recipient during the postoperative stage

Weng

Huang

Wang

et al. 2011

Journal of Advanced Nursing

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Stress among the family caregivers of liver transplant recipients

Abstract: Caregiving stress endures after transplantation. Professional intervention is needed to improve caregivers' quality of life and, consequently, that of transplant recipients as well.

Cited by 24 publications

References 40 publications

Patients on the waiting list for liver transplantation: Caregiver burden and stress

Patients on the waiting list for liver transplantation: Caregiver burden and stress

Coping Strategies in Liver Transplant Recipients and Caregivers According to Patient Posttraumatic Growth

Primary caregiver stress in caring for a living-related liver transplantation recipient during the postoperative stage

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