Stress and Coping with Scoliosis

MacLean, William E.; Green, Neil E.; Pierre, Claudette B.; Ray, Diane C.

doi:10.1097/01241398-198905000-00001

Cited by 110 publications

(16 citation statements)

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“…The initial brace-wearing period was described as stressful by 84%. Contact with peers in the same situation and the possibility of counseling on their condition were the variables mentioned by the families as the most important to help them to cope with the treatment-related stress [84]. Considering these findings and similar results in our population, our adolescent patients are offered support from the Department of Mental Health and Social Work.…”

Section: Discussionmentioning

confidence: 76%

Quality of life and patient satisfaction in bracing treatment of adolescent idiopathic scoliosis

et al. 2018

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BackgroundBracing is used as a valid non-surgical treatment for adolescent idiopathic scoliosis (AIS) to avoid progression of the deformity and thereby surgery. The effect of bracing treatment on quality of life of patients with AIS has been a topic of interest in the international literature. The aim of this study was to evaluate the quality of life and patient satisfaction during bracing treatment for AIS of a pediatric hospital.Material and methodWe assessed a total of 43 non-consecutive female patients (mean age at questionnaire, 13 years and 1 month and 10 years and 8 months to 14 years and 5 months; mean period of usage of brace, 1 year and 7 months), with adolescent idiopathic scoliosis (AIS), older than 10 years of age until skeletal maturity, with a Risser sign less than 3 and scoliosis between 20 and 45°, treated with thoracolumbosacral orthosis (TLSO) for a period longer than 6 months, and without other comorbidities or previous surgeries, were evaluated. The patients were administered a previously validated to Spanish questionnaire on quality of life (Brace Questionnaire (BrQ); Grivas TB et al.). BrQ is a validated tool and is considered a disease-specific instrument; its score ranges from 20 to 100 points, and higher BrQ scores are associated with better quality of life.ResultsThe patients reported using the brace for a mean of 17.6 h daily and for a mean period of 1 year and 7 months at the time of the study. Overall, 72% of the study population reported to be in some way psychologically affected by the brace wearing, 56% felt their basic motor activities were affected, 54% felt socialization with their environment was affected, 46% considered their quality of life deteriorated due to pain, and 40% reported conflicts in the school environment.ConclusionPatients with AIS treated with bracing reported a negative impact (53.5% overall) on quality of life and treatment satisfaction in terms of psychological, motor, social, and school environment aspects. An interdisciplinary approach would be important for the integrated psychosocial care of these patients.

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Section: Discussionmentioning

confidence: 76%

Quality of life and patient satisfaction in bracing treatment of adolescent idiopathic scoliosis

et al. 2018

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“…While medical complications such as tubular thorax and reduced total lung capacity due to prolonged wearing, reflux esophagitis due to elevated intragastric pressure, reduced glomerular filtration ratio due to compression, and pressure sores could be addressed with careful follow-up and adjustment of the brace, the psychological repercussions are far more difficult to handle [8,9]. These repercussions have an overreaching negative impact on the psychology of the treated children and their families [8,10]. It has been reported that even within the first month after the initiation of brace treatment, the rate of psychological problems rose from 7.6% to 82.1% [8,11].…”

Section: Introductionmentioning

confidence: 99%

Three-Dimensional Analysis of Initial Brace Correction in the Setting of Adolescent Idiopathic Scoliosis

Almansour

Pepke

Brückner

et al. 2019

JCM

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The three-dimensional nature of adolescent idiopathic scoliosis (AIS) necessitates a tridimensional assessment and management. Bracing constitutes the mainstay conservative treatment for mild adolescent idiopathic scoliosis. In the literature hitherto, there has been uncertainty regarding the behavior of the spine, pelvis, and vertebral orientations in the context of bracing, especially in the transverse plane. This poses a challenge to healthcare providers, patients, and their families, as brace treatment, although not as invasive as surgery, is laden with medical and psychological complications and could be considered traumatizing. Hence, a thorough understanding of initial three-dimensional spinal behavior in the context of bracing is important. The purpose of this retrospective study was to investigate the immediate 3D impact of Chêneau-type brace. Thirty-eight patients with AIS undergoing Chêneau-type bracing were included. Patients were stratified according to their structural curve topography into thoracic, thoracolumbar, and lumbar groups. 3D reconstruction of the spine using a dedicated biplanar stereoradiography software with and without the brace was performed. The examined anthropometric radiographic measures were pre- to in-brace variations and differences of spinopelvic parameters and vertebral orientations in the coronal, sagittal, and transverse planes. The complex impact of the Chêneau-type brace on different curves in three planes was delineated. In the coronal plane, the Cobb angle was significantly decreased in all types of curves, and the coronal tilt correction was concentrated in specific segments. The impact of the brace in this study on the sagittal profile was variable, including the loss of thoracic kyphosis and lumbar lordosis. In the transverse plane, an axial vertebral rotation change and detorsion above the apex occurred in the thoracolumbar curves. The results from this exploratory study could shed some light on the initial 3D spinal behavior in the context of bracing and may be of beneficial for treating physicians and brace makers.

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“…Female patients with scoliosis have been shown to experience low selfesteem related to their deformity and are more prone to depression, alcohol abuse, and suicide. [1][2][3][4][5][6] Surgically indicated AIS patients are more likely to experience scoliosis-related body image disturbance, an alteration in behavior due to body image concerns, and have lower SRS scores than normal controls. 26 Scoliotic deformity often involves distortion of truncal appearance and breast asymmetry that leads to decreased quality of life and poor self-image.…”

Section: Discussionmentioning

confidence: 99%

“…elf-image and body shape are of paramount importance to the individual with adolescent idiopathic scoliosis (AIS) and can have a detrimental psychological impact on these patients. [1][2][3][4][5][6] Patients and their parents have been found to place high importance on the potential for deformity correction in AIS surgery. 7,8 The severity of the thoracic curve, rib prominence, shoulder, hip, and waist imbalance has traditionally been considered the most prominent physical aspects of a scoliotic deformity.…”

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confidence: 99%

What a Patient Sees in the Mirror: Validation of the Truncal Anterior Asymmetry Scoliosis Questionnaire

et al. 2022

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Introduction: Self-image and body shape are important to adolescent idiopathic scoliosis (AIS) patients. The impact of scoliosis on anterior trunk shape has been incompletely studied. The Truncal Anterior Asymmetry Scoliosis Questionnaire (TAASQ) was developed to assess anterior truncal appearance concerns and mental preoccupation and behavioral modification related to those concerns. The purpose of this study is to validate TAASQ in AIS. Methods: A total of 105 female surgical AIS patients (average age, 14.9 years; mean Cobb, 53°) completed the TAASQ, Spinal Appearance Questionnaire (SAQ), and Scoliosis Research Society Questionnaire (SRS-22) questionnaires. TAASQ was developed with breast cancer researchers and piloted in 13 perioperative adolescent and adult idiopathic scoliosis patients. TAASQ contains 14 questions, both response scale and free response. Questions are categorized into three domains: breast, appearance, and clothing. Internal consistency/reliability (Cronbach's α) and concurrent validity were determined. Results: Internal consistency was 0.86, 0.77, and 0.84 for clothing, appearance, and breast domains, respectively (good to excellent). Domains and subdomains of the TAASQ correlate well with the image domain of the SRS-22 but not with the SAQ. However, given that the TAASQ was designed to assess concerns with anterior appearance, the correlation with the image domain establishes concurrent validity of the questionnaire. Conclusions: TAASQ is a reliable and valid measure of the concerns and behavioral modifications related to anterior truncal appearance in female AIS patients. Further study of TAASQ will help clinicians counsel patients on the impact of surgery on anterior truncal deformity. Clinical Relevance: There is a clinical lack of knowledge about the significant self-image and anterior body shape concerns of adolescent females with AIS. The TAASQ has been developed to assess concerns related to anterior truncal appearance and mental preoccupation and behavioral modification. (

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Stress and Coping with Scoliosis

Cited by 110 publications

References 0 publications

Quality of life and patient satisfaction in bracing treatment of adolescent idiopathic scoliosis

Quality of life and patient satisfaction in bracing treatment of adolescent idiopathic scoliosis

Three-Dimensional Analysis of Initial Brace Correction in the Setting of Adolescent Idiopathic Scoliosis

What a Patient Sees in the Mirror: Validation of the Truncal Anterior Asymmetry Scoliosis Questionnaire

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