Stroke survivor and carer perspectives of the concept of recovery: a qualitative study

Graven, Christine; Sansonetti, Danielle; Moloczij, Natasha; Cadilhac, Dominique A.; Joubert, Lynette

doi:10.3109/09638288.2012.703755

Cited by 26 publications

(33 citation statements)

References 20 publications

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“…Engagement in valued occupations is critical for a satisfying life after stroke (Dowswell et al, 2000;Graven et al, 2013;Hafsteinsdottir & Grypdonck, 1997;Levasseur et al, 2004).…”

Section: Introductionmentioning

confidence: 99%

Engagement in Personally Valued Occupations Following Stroke and a Move to Assisted Living

Egan

Dubouloz

Léonard

et al. 2014

Physical & Occupational Therapy In Geriatrics

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Research regarding valued occupations following stroke has been carried out almost exclusively with stroke survivors who have returned to their own homes following hospital discharge. We explored engagement in personally valued occupations following stroke and discharge to an assisted living facility. Four women aged 72-87 were followed at 6, 9, and 12 months post stroke. All of the women desired to engage in personally valued occupations to continue to: (1) develop skills and knowledge and contribute to others through occupations of personal interest and (2) improve their health, mobility and function. Opportunities to engage in such occupations were generally present within the AL facilities. However, there were barriers to making use of these opportunities. Challenges for AL facilities wishing to make changes that would allow for enhanced engagement in personally valued occupations included recognition of residents' individual skills and desires to use these skills and identification of individualized information regarding residents' interests.

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“…Engagement in valued occupations is critical for a satisfying life after stroke (Dowswell et al, 2000;Graven et al, 2013;Hafsteinsdottir & Grypdonck, 1997;Levasseur et al, 2004).…”

Section: Introductionmentioning

confidence: 99%

Engagement in Personally Valued Occupations Following Stroke and a Move to Assisted Living

Egan

Dubouloz

Léonard

et al. 2014

Physical & Occupational Therapy In Geriatrics

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“…While in clinical and rehabilitation contexts home is often narrowly conceptualised as a physical space (Healey-Ogden 2013), the work to accommodate stroke-affected partners prompted readjustments at affective, practical, and relational levels in addition to physical adaptations. Their recovery was interwined with social and emotional recovery, senses of relational and biographical continuity, belonging, and hope (Erikson et al 2010;Graven et al 2013;Warren and Manderson 2008).…”

Section: Resultsmentioning

confidence: 99%

“…The tensions in spousal relationships that can occur in the process of rehabilitation, especially in the first few years (Banks and Pearson 2004;Graven et al 2013), were evident in Ben's account. Given Amy's age, Ben was hopeful about her continued and steady physical recovery.…”

Section: Tensions In Home Orchestrationmentioning

confidence: 93%

“…These physical aspects of the home interacted with and facilitated the symbolic, ideational, and practical dimensions of home. Such enacted 'atmospheres' of sociality, belonging, and optimism contributed to Ned's recovery (Duff 2015;Gesler 1996), insofar as recovery was understood as a process of resuming previously valued activities and social connections (Graven et al 2013).…”

Section: Methodsmentioning

confidence: 99%

“…Everyday routines in home spaces become time consuming and difficult, familial and social relationships are disrupted, and a lack of mobility can lead people to feel they are trapped in the house, impacting on their social and emotional well-being (Achten et al 2012;Nanninga et al 2014;Salter et al 2008). The home environment in and of itself, then, is not necessarily conducive to the elements of recovery that may be especially important, including the social and emotional domains of a sense of belonging, continuity, control, and hope (Benz 2003;Carlsson et al 2009;Cott et al 2007;Erikson et al 2010;Gallagher 2011;Graven et al 2013;Vanhook 2009). …”

Section: Introductionmentioning

confidence: 99%

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Orchestrating home

Karasaki¹,

Warren²,

Manderson³

2017

MAT

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The private space of the home is an important site of health care in most industrialised countries, and rehabilitation following intensive in-hospital treatment largely takes place in domestic settings. Home in this context is implicitly understood by individuals affected by illness (people with illness, family members, friends, carers), health care providers, and policy makers as an a priori entity that naturally provides continuity and stability. This takes for granted that family carers will maintain both therapeutic activities and the sense of 'being at home' -and all of the accompanying emotional dimensions -within the home environment. Drawing on ethnographic research with relatively young spousal carers in Victoria, Australia, we explore how the reconstruction of home as a site for post-stroke recovery changed the experiences and meanings given to the idea of home. Home as a therapeutic place depended on constant orchestrating work that reconfigured the physical, symbolic, and practical elements of home. This was not a straightforward or singular process, as tensions arose in trying to integrate the new, post-stroke therapeutic landscape and pre-stroke conceptualisations and lived realities of home life.

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