Stroke survivors? experiences of the fundamentals of care: A qualitative analysis

Kitson, Alison; Dow, C.; Calabrese, Joseph D.; Locock, Louise; Athlin, Åsa Muntlin

doi:10.1016/j.ijnurstu.2012.09.017

Cited by 87 publications

(162 citation statements)

References 26 publications

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“…Sin embargo, la evidencia cualitativa sobre la experiencia de sobrevivientes de ACV señala la necesidad de considerar, para la atención, categorías relacionadas con la interrupción biográfica (cambio, transición, transformación), las pérdidas, el aislamiento social, la adaptación y la reconciliación, más que sobre la enfermedad en sí misma, e invitan a no dejar de lado la discapacidad residual neurológica del sobreviviente de ACV y señalan cómo una revisión sistemática con metaanálisis demostró que el 10 % de pacientes pueden desarrollar demencia en el año posterior al primer ACV (3,18,19).…”

Section: Discussionunclassified

Cuidado popular de familias con un adulto mayor sobreviviente del primer accidente cerebrovascular

2016

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Introducción: el accidente cerebrovascular afecta a numerosas personas en el mundo y se constituye en la principal causa de muerte. Los sobrevivientes pueden padecer discapacidad y sufrir modificaciones en las actividades cotidianas. La familia es el principal apoyo del sobreviviente y al ser parte de una misma cultura, construye acciones de cuidado en búsqueda del bienestar. Objetivo: describir las acciones del cuidado popular de las familias con un adulto mayor sobreviviente del primer accidente cerebrovascular. Método: estudio etnográfico, con observación participante y entrevistas en profundidad. Participaron siete familias bogotanas (siete adultos mayores entre los dos y diez meses posteriores al primer accidente cerebrovascular y los siete cuidadores principales respectivos). Resultados: cuidadores y adulto mayor comparten acciones de cuidado para la recuperación, relacionadas con la alimentación, el cuidado personal y la ingesta de medicamentos permeadas por la creencia religiosa, fuente de soporte y vínculo afectivo. Conclusión: conocer el cuidado popular de esta población posibilita proponer acciones culturalmente congruentes con sus valores y creencias para potencializar las capacidades familiares e intermediar en los procesos de tratamiento.

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Cuidado popular de familias con un adulto mayor sobreviviente del primer accidente cerebrovascular

2016

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“…The Framework is well-integrated and developed, with empirical evidence to support its conceptual understanding, such as that fundamental care involves physical, psychosocial and relational elements (Kitson et al 2013b). …”

Section: Context Of Carementioning

confidence: 99%

“…condition or healthcare setting (Kitson et al 2010). The term "fundamental" communicates the centrality of these activities for human welfare, optimizing recovery when ill (Kitson et al 2013a, Vollman 2013) and ensuring positive patient experiences (Kitson et al 2013b, Kitson andMuntlin Athlin 2013). Traditionally, in acute settings, discrete fundamental care activities, such as helping people with eating, drinking and elimination, have been carried out by nurses on behalf of and with patients (with or without their carers) on behalf of the wider healthcare team (Kitson et al 2013a).…”

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confidence: 99%

“…One reason for this renewed focus is the increased emphasis on patient-centred care. Patient-centred care focuses on healthcare that involves patients in greater decision-making and choice, and which is sensitive to patients' unique physical, psychosocial, cultural and emotional needs (Kitson et al 2013b, Kitson andMuntlin Athlin 2013). In addition to the patient-centred care movement, the higher burden of disease brought about by an aging population, global migration, complex health conditions characterized by multi-morbidities and increases in chronic, incurable illnesses is creating higher demand for highquality fundamental care and placing increased scrutiny on the way in which such care is delivered in acute care settings (Feo and Kitson 2016).…”

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confidence: 99%

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Why Do We Need to Study the Fundamentals of Care?

Kitson¹

2016

cjnl

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This paper makes the case for revisiting our understanding and valuing of basic or fundamental nursing care. Despite the interest in movements such as the personcentred or patient-centred care agenda, there continues to be concern about patient safety, quality of experience and getting the simple things right. Part of this debate is around whether meeting patients' fundamental care needs (such as personal hygiene, elimination and eating and drinking) within acute care settings constitutes legitimate nursing responsibilities or whether these needs ought to become part of "hotel services" executed by care assistants with elementary training or, as in many lower-income health systems, undertaken by relatives.

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“…Analyses of the data have been published in peer-reviewed journals over the past 10 years. [16][17][18][19][20][21] Illustrated lay summaries of the research findings are also disseminated via a website, owned by the DIPEx (Database of Individual Patient Experiences) charity: www.healthtalkonline.org. The website has NHS Information Standard approval and the collections are reviewed every 2 years and updated with further interviews if considered necessary, for example to capture the experiences of people who have used new treatments or therapies.…”

Section: Quality Standardsmentioning

confidence: 99%

Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences

Ziébland

Locock

Fitzpatrick

et al. 2014

Health Services and Delivery Research

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BackgroundWe set out to explore if, and how, an archive of qualitative, narrative interviews covering over 60 health issues could be used to inform the development of National Institute for Health and Care Excellence (NICE) quality standards. We also sought to identify which aspects of health care are important to people facing different health conditions and to test a set of ‘core components’ in focus groups with people who tend to be less well represented in interview research studies.Objectives(1) To conduct qualitative secondary analysis (of collections of narrative interviews) to identify common, core components of patients’ experiences of the NHS. (2) To test these candidate components with (i) further purposive sampling of the interview collections and (ii) a series of focus groups with users. (3) To embed the project alongside the development of NICE clinical guidelines and quality standards. (4) To inform the development of measurement tools on patients’ experiences. (5) To develop and share resources and skills for secondary analysis of qualitative health research.Methods and data sourcesWe used qualitative methods including qualitative secondary analysis, interviews with team members and focus groups. We also ran a workshop on secondary analysis practice and a dissemination seminar. The secondary analysis used narrative interviews from the archive held by the Health Experiences Research Group in Oxford. These interviews have been collected over a 12-year period, number over 3500 and are copyrighted to the University of Oxford for research publications and broadcasting. Other data were digital recordings of interviews and observations at meetings. We prepared reports intended to contribute to NICE clinical guidelines and quality standards development.ResultsWe identified eight consistently important aspects of care: involving the patient in decisions; a friendly and caring attitude; an understanding of how life is affected; seeing the same health professional; guiding through difficult conversations; taking time to explain; pointing towards further support; and efficiently sharing health information across services. Expectations varied but we found few differences in what is valued, even when we tested the reach of these ideas with groups who rarely take part in mainstream health research. The asthma report for NICE highlighted several issues, but only the importance of proper inhaler training contributed to a quality statement. Several barriers were identified to using (unpublished) tailor-made analyses in NICE product development.ConclusionsWe compared the perspectives about what is most valued in health care between people with different health conditions. They were in agreement, even though their experiences of health-care relationships varied enormously. With regard to the NICE clinical guideline and quality standard development process, the usual source of evidence is published qualitative or quantitative research. Unpublished secondary analysis of qualitative data did not fit the usual criteria for evidence. We suggest that targeted secondary analysis of qualitative data has more potential when the qualitative literature is sparse, unclear or contradictory. Further work might include further testing of the identified core components in other patient groups and health conditions, and collaboration with NICE technical teams to establish whether or not it is possible to identify areas of patient experience research where targeted secondary analyses have potential to add to a qualitative literature synthesis.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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Stroke survivors? experiences of the fundamentals of care: A qualitative analysis

Cited by 87 publications

References 26 publications

Cuidado popular de familias con un adulto mayor sobreviviente del primer accidente cerebrovascular

Cuidado popular de familias con un adulto mayor sobreviviente del primer accidente cerebrovascular

Why Do We Need to Study the Fundamentals of Care?

Informing the development of NICE (National Institute for Health and Care Excellence) quality standards through secondary analysis of qualitative narrative interviews on patients’ experiences

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