Structured approaches to promote patient and family engagement in treatment in acute care hospital settings: protocol for a systematic scoping review

Goodridge, Donna; Henry, Chrysanthus; Watson, Erin; McDonald, Meghan; New, Lucia; Harrison, Elizabeth; Scharf, Murray; Penz, Erika; Campbell, Steve; Rotter, Thomas

doi:10.1186/s13643-018-0694-9

Cited by 17 publications

(15 citation statements)

References 26 publications

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“…While effective engagement of patients and their families in treatment is viewed as a priority in many healthcare systems , our study uncovered that despite family being present, healthcare staff did not modify their interpersonal communication style to promote their involvement. The communication strategies employed by staff in this acute care setting need to be considered when developing strategies that are directed at enhancing family participation in patient care.…”

Section: Resultsmentioning

confidence: 76%

Patient and family members’ perceptions of family participation in care on acute care wards

Mackie

Mitchell

Marshall

2018

Scandinavian Caring Sciences

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Background Hospital leaders, policymakers and healthcare professionals are realising the benefits of delivering care that promotes family participation because it is known to enhance the quality of care, and improve patient satisfaction. Aim The aim of this study was to explore, from the perspective of patients and family members within an adult acute care ward: (a) their beliefs and attitudes towards family participation in patient care and (b) staff behaviours that support or hinder family participation in patient care. Design and methods A naturalistic approach with an exploratory sequential design was used in a medical assessment and planning unit of a regional referral hospital in Australia. Purposeful maximum variation sampling was used to recruit patients and family members who differed in age, ethnicity, relationship to patient and gender. Observer‐as‐participant observation data and semi‐structured interviews were undertaken. Following separate inductive content analysis, data were triangulated. Results Thirty‐two patients and 26 family members were recruited. Thirty hours of observational data were gathered. Eighteen patients and 15 family members were interviewed. Analysis uncovered two contrasting categories: (a) disconnected communication and (b) family influence quality. Conclusion The findings of our study demonstrated that most patients and families perceived staff communication as disconnected and inadequate, which constrained them from engaging in care processes or decision‐making. However, when family felt empowered and participated in patient care, the quality of health care was enhanced. Healthcare professionals can use these findings to make informed evidence‐based changes to the way they practice and communicate to ensure family participation in patient care is optimised in the acute care setting.

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Section: Resultsmentioning

confidence: 76%

Patient and family members’ perceptions of family participation in care on acute care wards

Mackie

Mitchell

Marshall

2018

Scandinavian Caring Sciences

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“…To date, there have been no syntheses of the interventions designed to build capacity of hospitalised patients to participate in care. The original protocol for this review was published in 2018 23…”

Section: Methodsmentioning

confidence: 99%

Building patient capacity to participate in care during hospitalisation: a scoping review

et al. 2019

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ObjectivesTo map the existing literature and describe interventions aimed at building the capacity of patients to participate in care during hospitalisation by: (1) describing and categorising the aspects of care targeted by these interventions and (2) identifying the behaviour change techniques (BCTs) used in these interventions. A patient representative participated in all aspects of this project.DesignScoping review.Data sourcesMEDLINE, Embase and CINAHL (Inception −2017).Study selectionStudies reporting primary research studies on building the capacity of hospitalised adult patients to participate in care which described or included one or more structured or systematic interventions and described the outcomes for at least the key stakeholder group were included.Data extractionTitle and abstract screening and full text screening were conducted by pairs of trained reviewers. One reviewer extracted data, which were verified by a second reviewer. Interventions were classified according to seven aspects of care relevant to hospital settings. BCTs identified in the articles were assigned through consensus of three reviewers.ResultsDatabase searches yielded a total 9899 articles, resulting in 87 articles that met the inclusion criteria. Interventions directed at building patient capacity to participate in care while hospitalised were categorised as those related to improving: patient safety (20.9%); care coordination (5.7%); effective treatment (5.7%) and/or patient-centred care using: bedside nursing handovers (5.7%); communication (29.1%); care planning (14%) or the care environment (19.8%). The majority of studies reported one or more positive outcomes from the defined intervention. Adding new elements (objects) to the environment and restructuring the social and/or physical environment were the most frequently identified BCTs.ConclusionsThe majority of studies to build capacity for participation in care report one or more positive outcomes, although a more comprehensive analysis is warranted.

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“…Evidence suggests that patient-engaging and familycentred research leads to positive health outcomes and increased satisfaction, based on the perspectives of patients, parents, families, and health care providers [36]. A growing body of literature has also found benefits of empowering patients in decision-making, not only through the use of health information decision tools [9,37], but by engaging them in exploratory and participatory healthcare intervention activities early on [38][39][40], aiding researchers in designing study protocols and choosing appropriate outcomes [41]. Unfortunately, research within the inpatient setting is rudimental and the evidence-base literature is highly limited, highlighting the need for more standardised, robust, and scientifically valid studies [42].…”

Section: Comparison With Previous Literaturementioning

confidence: 99%

Designing a paediatric hospital information tool with children, parents, and healthcare staff: a UX study

et al. 2020

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Background The hospital patient pathway for having treatment procedures can be daunting for younger patients and their family members, especially when they are about to undergo a complex intervention. Opportunities to mentally prepare young patients for their hospital treatments, e.g. for surgical procedures, include tools such as therapeutic clowns, medical dolls, or books and board games. However, while promising in reducing pre-operative anxiety and negative behaviours, they may be resource intensive, costly, and not always readily available. In this study, we co-designed a digital hospital information system with children, parents and clinicians, in order to prepare children undergoing medical treatment. Method The study took place in the UK and consisted of two parts: In part 1, we purposively sampled 37 participants (n=22 parents, and n=15 clinicians) to understand perceptions and concerns of an hospital information platform specifically design for and addressed to children. In part 2, 14 children and 11 parents attended an audio and video recorded co-design workshop alongside a graphic designer and the research team to have their ideas explored and reflected on for the design of such information technology. Consequently, we used collected data to conduct thematic analysis and narrative synthesis. Results Findings from the survey were categorised into four themes: (1) the prospect of a hospital information system (parents’ inputs); (2) content-specific information needed for the information system (parents’ and clinicians’ inputs); (3) using the virtual information system to connect young patients and parents (parents’ inputs); and (4) how to use the virtual hospital information system from a clinician’s perspective (clinicians’ inputs). In contrast, the workshop highlighted points in times children were most distressed/relaxed, and derived the ideal hospital visit in both their and their parents’ perspectives. Conclusions The findings support the use of virtual information systems for children, in particular to explore and learn about the hospital, its facilities, and the responsibilities of healthcare professionals. Our findings call for further investigations and experiments in developing safer and more adequate delivery of care for specific age groups of healthcare users. Practical and theoretical implications for improving the quality and safety in healthcare delivery are discussed.

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Structured approaches to promote patient and family engagement in treatment in acute care hospital settings: protocol for a systematic scoping review

Cited by 17 publications

References 26 publications

Patient and family members’ perceptions of family participation in care on acute care wards

Patient and family members’ perceptions of family participation in care on acute care wards

Building patient capacity to participate in care during hospitalisation: a scoping review

Designing a paediatric hospital information tool with children, parents, and healthcare staff: a UX study

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