Structured Interview Assessment of Symptoms and Concerns in Palliative Care

Wilson, Keith G.; Graham, Ian; Viola, Raymond; Chater, Susan; Faye, Barbara J. de; Weaver, Lynda; Lachance, Julie

doi:10.1177/070674370404900603

Cited by 102 publications

(116 citation statements)

References 35 publications

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“…However, this item encompassed potential physical symptoms including fatigue, pain, dyspnoea, loss of appetite, nausea, constipation, diarrhoea, drowsiness and sleep problems. It is possible that some health professionals considered a number of these symptoms in making their assessment, while others focussed predominately on pain, the most prevalent physical symptom reported by patients with advanced cancer [32][33][34][35][36][37][38][39]. Given the importance of accurate assessment of physical concerns, the results suggest a need for greater specificity in this item.…”

Section: Discussionmentioning

confidence: 99%

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

et al. 2010

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Background: Needs assessment is a valuable approach for determining the way health and social services allocate resources to people with cancer and their caregivers.Aim: To assess the reliability, validity and acceptability of a Needs Assessment Tool (NAT) in a palliative care clinical setting.Methods: Psychometric properties of the NAT were initially explored in a pilot study involving filmed simulated advanced cancer patient and caregiver consultations. Further testing was undertaken in a clinical setting to determine the inter-rater reliability, validity and feasibility of the NAT.Results: The results of the pilot study suggested good reliability and acceptability in a simulated setting. Further testing indicated that the patient daily living item was positively correlated with the Resource Utilisation Groups-Activities of Daily Living (r 5 0.74) and negatively correlated with the Australian Karnofsky Performance Scale (r 5 À0.84). Prevalence-and bias-adjusted kappa values also indicated adequate agreement between Palliative Care Problem Severity Score items and the patient physical item (0.48), psychological item (0.45) and caregiver well-being item (0.42).Conclusions: Needs assessment not only facilitates the identification of people who have specific concerns or are dissatisfied with some aspect of their care, but also determines the person's desire for assistance and involvement with services. The NAT is a highly acceptable and efficient tool that can be used by health professionals with a range of clinical expertise to identify individuals' needs, thereby enabling a better match of interventions of specialist services more closely linked to needs.

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Section: Discussionmentioning

confidence: 99%

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

et al. 2010

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“…Two measures specifically assessing distress in the palliative care setting were identified: a clinician-administered single-item screening instrument for Best et al assessing desire for death, the Structured Interview for Symptoms and Concerns (SISC) (Wilson et al, 2004), and the Schedule of Attitudes toward Hastened Death (SAHD) (Rosenfeld et al, 2011;1999). The latter questionnaire appears promising for assessing desire for death in the context of advanced cancer, though further validation in a larger sample is recommended.…”

Section: Distress In the Palliative Care Settingmentioning

confidence: 99%

Assessment of spiritual suffering in the cancer context: A systematic literature review

et al. 2014

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Objective: An important goal of cancer medicine is relief of patients' suffering. In view of the clinical challenges of identifying suffering patients, we sought to identify valid instruments for assessing the spiritual suffering of people diagnosed with cancer.Method: A systematic review of the literature was conducted in the Medline, Embase, the Cochrane Library, and PsycINFO databases seeking assessment instruments that measure either suffering or one of its synonyms or symptoms. The psychometric properties of the identified measures were compared.Results: A total of 90 articles were identified that supplied information about 58 measures. The constructs examined were: suffering, hopelessness/demoralization, hope, meaning, spiritual well-being, quality of life where a spiritual/existential dimension was included, distress in the palliative care setting and pain, distress or struggle of a spiritual nature. The Pictorial Representation of Illness and Self Measure (PRISM) (patient completed) was the most promising measure identified for measuring the burden of suffering caused by illness due to its ease of use and the inclusion of a subjective component.Significance of Results: Although the appropriateness of any measure for the assessment of spiritual suffering in cancer patients will depend on the context in which it is intended to be utilized, the PRISM is promising for measuring the burden of suffering due to illness.

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“…(24). Pain behavior checklists have been developed that allow the assessment of nonverbal (e.g., grimacing) and audible (e.g., groaning) expressions of pain (25). Numerous measures exist to assess psychosocial distress (26).…”

Section: Sufferingmentioning

confidence: 99%

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

Hebert

Arnold

Schulz

2007

Journal of Pain and Symptom Management

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Family caregivers are integral to the care of patients with physical or mental impairments. Unfortunately, providing this care is often detrimental to the caregivers' health. As a result, in the last decade, there has been a proliferation of interventions designed to improve caregivers' wellbeing. Interventions for caregivers of persons at end-of-life, however, are relatively few in number and are often underdeveloped. They also are typically designed to help reduce the work of caregiving or to help caregivers cope with the physical and emotional demands of providing care. While useful, these interventions generally ignore a primary stressor for family caregivers-a loved one's suffering. Patient suffering, whether physical, psychosocial, or spiritual, has a major impact on family caregivers. However, interventions that focus on the relief of patient suffering as a way to improve caregiver well-being have rarely been tested. It is our view that more research in this area could lead to new and more effective interventions for family caregivers of seriously or terminally ill patients. In support of our view, we will define suffering and review the relationships between patient suffering and caregiver well-being. We will then discuss a conceptual framework for intervention design. Finally, we conclude with a discussion of implications and future directions for intervention research.

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Structured Interview Assessment of Symptoms and Concerns in Palliative Care

Cited by 102 publications

References 35 publications

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer

Assessment of spiritual suffering in the cancer context: A systematic literature review

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

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