Study of factors determining caregiver burden among primary caregivers of patients with intracranial tumors

Dhandapani, Manju; Gupta, Sandhya; Dhandapani, Sivashanmugam; Kaur, Prabhjot; Samra, Kanwaljit; Sharma, Kirti; Dolma, Kunchok; Mohanty, Manju; Singla, Navneet; Gupta, Sunil

doi:10.4103/2152-7806.167084

Cited by 34 publications

(30 citation statements)

References 37 publications

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“…Cognitive behavioral and functional impairment adds more burden on patient and caregivers. [ 13 14 15 ] Nurses need to guide, motivate, and counsel patient and caregivers to utilize rehabilitation services in indoor departments as well as at outdoor departments.…”

Section: Discussionmentioning

confidence: 99%

Assessment of Utilization of Rehabilitation Services among Stroke Survivors

Mahak

Shashi

Yashomati

et al. 2018

Journal of Neurosciences in Rural Practice

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Background:Rehabilitation is probably one of the most important phases of recovery for many stroke survivors. The current study was conducted with the objective to assess the utilization of rehabilitation services and factors affecting nonutilization of rehabilitation services among the stroke survivors.Materials and Methods:The current study was carried out in the Neuro Outpatient Department of a tertiary care hospital in India. It was a descriptive study. Consecutive 55 stroke survivors who had met the inclusion and exclusion criteria were recruited in this study. Self-structured rehabilitation tool was used to collect the data.Results:Data were analyzed using the descriptive and inferential statistics. Majority of the patients comprised 70.9% of males and 29.1% of females. Among participants, 70.90% were aware about rehabilitation, 67% were utilizing rehabilitation services, whereas 33% were not utilizing rehabilitation services. In the current study, certain reasons were found behind not utilizing rehabilitation services. There were 83.3% of participants who had lack of awareness about rehabilitation services and 61.1% of participants who had no availability of rehabilitation services. Only 45.5% of rural inhabitants were utilizing rehabilitation services as compared to 81.2% of urban inhabitants and 83.23% of suburban inhabitants.Conclusion:Rehabilitation is of utmost importance. Hemiparesis, difficulty in performing activity of daily living, difficulty in performing social activities, and difficulty in reasoning were the most common problems faced by people suffering stroke after discharge from the hospital. There was lack of awareness and utilization of rehabilitation services by patients among Indian stroke population. Hence, health workers have an immense role in educating, motivating, and ensuring that rehabilitation services in rural inhabitants.

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Section: Discussionmentioning

confidence: 99%

Assessment of Utilization of Rehabilitation Services among Stroke Survivors

Mahak

Shashi

Yashomati

et al. 2018

Journal of Neurosciences in Rural Practice

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“…Caregiver burden is reported to be high with more neuropsychiatric inventory symptoms present in the patient. Symptoms of agitation, depression, irritability, and disturbed night-time behavior are reported to influence the severity of the burden experienced by the caregiver [26,27] . Patients who are irritable and agitated are difficult to be convinced to do any activities because of their rebellious nature [5] .…”

Section: Discussionmentioning

confidence: 99%

Prevalence and Trends in the Neuropsychological Burden of Patients having Intracranial Tumors with Respect to Neurosurgical Intervention

et al. 2017

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Background: The burden of neuropsychological symptoms evidenced by behavioral changes among patients with intracranial tumors has not been studied in detail. Purpose: This study was conducted to prospectively assess the neuropsychological symptoms in patients with intracranial tumors undergoing treatment. Methods: A longitudinal study was conducted using purposive sampling to assess the neuropsychological symptoms in conscious and consenting patients with intracranial tumors who were availing treatment from a tertiary care center. Neuropsychiatric Inventory Questionnaire (NPI-Q), which identifies 12 behavioral disturbances, was assessed at baseline, and later at 1 month and 6 months after treatment, and scored as symptom severity as well as symptom scores. Results: Among the 34 patients studied, all had experienced at least one neuropsychological symptom. The commonest neuropsychological symptoms at baseline were anxiety (82%), agitation (75%), irritability (74%), depression (74%), and sleep disturbances (70%). The neuropsychiatric symptom and severity scores were 5.84 (SD ±2.7) and 11.8 (±7.1) at baseline, which reduced significantly to 4.3 (±3.1) and 5.6 (±3.2) at 1 month, and further to 2.3 (±2.9) and 3.6 (±3.2) at 6 months, respectively. The neuropsychological symptoms persistent at 6 months were anxiety (33%), depression (33%), sleep disturbances (33%), agitation (25%), irritability (25%), and disinhibition (25%). Conclusion: There is substantial neuropsychological burden among patients with intracranial tumors. The severity score improved immediately after surgery, while the symptom score improved gradually. The variable spectrum of improvement in neuropsychological symptoms at 6 months after surgical treatment needs further consideration. Addressing these symptoms should be one of the long-term goals of the neuro-oncology teams.

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“…For example, children with microcephaly are totally dependent on caregivers for daily activities, demanding their total attention and devotion, which causes a negative impact on work activities or any other activities outside their homes (PIMENTEL; FURTADO; SALDANHA, 2018). This affects mainly women -especially when they are the child's mother -that tend to quit their jobs to take care of the child, adding to the financial burden (DHANDAPANI et al, 2015).…”

Section: Level Of Microcephalymentioning

confidence: 99%

Qualidade do sono de cuidadores primários de crianças com microcefalia em uma unidade de saúde pública de Alagoas, Brasil

Lira

Silva

Santos

et al. 2019

R. bras. Qual. Vida

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OBJECTIVE: To evaluate the sleep quality of primary caregivers of children with microcephaly that receive treatment in a public health facility.METHODS: This is a transversal, descriptive and quali-quantitative study. Ten informal primary caregivers of children with microcephaly from a public health facility in Alagoas were interviewed one-on-one for 20 minutes using the mini-sleep questionnaire (MSQ). MSQ scores were statistically analyzed to describe sleep disturbances (mean, median and standard deviation), and the relationship between the level of microcephaly and sleep quality was tested by Kruskal-Wallis non-parametric test.RESULTS: Results found herein shows the predominance of women as caregivers of children with microcephaly. Overall, the studied population showed a high prevalence of alteration in sleep quality, with 70% of sampled caregivers showing severe sleep disturbances (scores greater than 30). No relationship between the level of microcephaly and sleep disturbances were found (p>0.05).CONCLUSIONS: There is a high prevalence of sleep disturbances among primary caregivers of children with microcephaly in the studied facility. This pattern is of great concern as such disorders may negatively affect not only the caregivers’ life quality, but also the quality of provided care.

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Study of factors determining caregiver burden among primary caregivers of patients with intracranial tumors

Cited by 34 publications

References 37 publications

Assessment of Utilization of Rehabilitation Services among Stroke Survivors

Assessment of Utilization of Rehabilitation Services among Stroke Survivors

Prevalence and Trends in the Neuropsychological Burden of Patients having Intracranial Tumors with Respect to Neurosurgical Intervention

Qualidade do sono de cuidadores primários de crianças com microcefalia em uma unidade de saúde pública de Alagoas, Brasil

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