Subjective Burden and Cultural Motives for Caregiving in Informal Caregivers of Older People

Casado, Rafael del Pino; Frías-Osuna, RN Antonio; Palomino-Moral, RN Pedro A.

doi:10.1111/j.1547-5069.2011.01407.x

Cited by 52 publications

(75 citation statements)

References 52 publications

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“…Therefore, the prevalence of the female sex is in accordance with the result of other national and international studies (11)(12)(17)(18)(32)(33) . The high average age found was similar to other national studies (14,(34)(35) .…”

Section: Discussionsupporting

confidence: 87%

Association between filial responsibility when caring for parents and the caregivers overload

et al. 2017

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Objective: To analyze the association between filial responsibility and the overload of the children when caring for their older parents. Method: Cross-sectional study with 100 caregiver children of older adults. Filial liability was assessed by the attitudes of the responsible child (scale of expectation and filial duty) and by care behaviors (assistance in activities of daily living, emotional and financial support, and keeping company). The overload was assessed by the Caregiver Burden Inventory. To assess the associations, the correlation coefficients of Pearson and Spearman, Kruskal-Wallis Test, and Mann-Whitney were employed. Variables that presented p-value<0.20 in the bivariate analysis were inserted in a multivariate linear regression model. Results: The factors associated with overload were: formal employment (p=0.002), feelings regarding family life (p<0.001), financial support (p=0.027), and assistance with Activities of Daily Living (ADLs) (p<0.001). Conclusion: Children who were more involved with the ADLs and provided financial support showed higher levels of overload.

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Section: Discussionsupporting

confidence: 87%

Association between filial responsibility when caring for parents and the caregivers overload

et al. 2017

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“…This type of burden is influenced by caregiver’s reappraisal of their ability to master dementia care, coping resources, and satisfaction with their caregiver role [22-24]. Other factors such as objective burden and the care recipient’s dependence level are less important in predicting subjective burden [9,20,21].…”

Section: Introductionmentioning

confidence: 99%

Family caregiver challenges in dementia care in Australia and China: a critical perspective

et al. 2014

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BackgroundBoth Australia and China have a large proportion of people with dementia and the prevalence will triple in Australia and increase five times in China by 2050. The majority of people with dementia are reliant on family caregivers to provide daily care and to maintain the dignity in both countries. As a consequence, caregiver burden has become a major concern because of the negative impact on the care recipients’ and the caregivers’ health. It is strongly recommended that cross-national collaboration should be conducted to share experiences in fighting dementia. The aim of this study was to compare socially and culturally constructed enablers and barriers pertinent to dementia caregivers in one capital city in Australia and one capital city in China through critical reflection on the caregivers’ subjective and objective experiences for the improvement of dementia care services in both countries.MethodsGiddens’ Structuration Theory was used as a framework to guide a concurrent mixed methods design with the qualitative strand as a priority. In the qualitative strand, data were collected by focus groups and in-depth interviews while in the quantitative strand, data were collected by questionnaire survey.ResultsIn total 148 caregivers participated in the project with 57 of them from Australia (26 and 31 in the qualitative and quantitative strands respectively) and 91 of them from China (23 and 68 in the qualitative and quantitative strands respectively). Findings from the qualitative and quantitative strands were presented as three categories: A higher objective burden in the Chinese cohort versus a higher subjective burden in the Australian cohort; Unmet need for caregiver support in Australia and China; and Expectations for improving dementia services in Australia and for developing dementia services in China.ConclusionsDementia policy, services and resources need to be grounded on current research evidence in an ever-changing society like China. In Australia, dementia services need to have more components of preventing or reducing caregivers’ subjective burden. As subjective burden is mediated by culture, caregiver support mechanisms should consider caregivers’ needs associated with their cultural values.

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“…2,4,[22][23][24] However, the vast majority of caregivers in the current study were spouses residing with the patients. Although caregivers affected by a higher subjective burden may be more likely to ask for help, up to one-third of caregivers feel ''trapped by their roles,'' while 40% do not feel supported by health and social services.…”

Section: Discussionmentioning

confidence: 92%

“…2,4,[22][23][24] As there are wellestablished findings in these populations, the current authors excluded patients who were diagnosed with dementia and their caregivers, although the current authors this group might have had a higher caregiver burden at baseline, resulting in potentially more significant changes in burden inventory scores over time.…”

Section: Discussionmentioning

confidence: 94%

“…1 A substantial number of informal caregivers will be needed for this aging population, which is often affected by chronic medical illness and functional impairment. However, the caregiver role can be stressful and associated with physical, emotional, and financial burdens, [2][3][4][5][6][7][8][9][10][11] as an informal caregiver is most often an unpaid person voluntarily providing the majority of care for an ill or disabled person. 12 Currently, there is a paucity of literature reviewing the caregiver burden among postoperative geriatric patients.…”

Section: Introductionmentioning

confidence: 99%

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Perioperative Caregiver Burden in the Geriatric Urogynecologic Population: A Prospective Cohort Study

OakleySusan

CrispCatrina

EstanolMaria

et al. 2015

Journal of Gynecologic Surgery

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Background: Currently, there is a paucity of literature on caregiver burden among postoperative geriatric patients. This is of particular interest to the field of urogynecology, as many of these patients are 65 or older. Objective: Given the growing volume of geriatric patients and their utilization of health care resources, this study was conducted to characterize the burden of geriatric urogynecologic surgery patients on their caregivers. Materials and Methods: Using a prospective double cohort design for the study, researchers enrolled female patients ( ‡ 65 years) undergoing pelvic surgery and their caregivers. Patients were administered questionnaires, including the Short Form Health Survey-12 (SF-12) consisting of physical (PCS) and mental composites (MCS) at baseline, 2, 6, and 12 weeks postoperatively. Caregivers received the SF-12, Zarit Burden Inventory (ZBI), and Caregiver Burden Inventory (CBI) at the same intervals. Results: Forty-eight pairs were analyzed. The majority of caregivers were white (96.6%) and male (65.5%), and were spouses (54.2%). In patients, SF-12 PCS scores declined from 44.98 -1.74 at baseline to 31.47 -1.22 ( p = 0.0001) at 2 weeks, with a return by 12 weeks (45.92 -1.66; p < 0.0001), reflecting their recovery. As patient physical health temporarily declined, caregiver burden temporarily increased. In caregivers, ZBI scores worsened from 7.05 -1.0 to 9.09 -1.09 ( p = 0.002) and CBI from 4.66 -0.76 to 8.74 -0.78 ( p = 0.0001) at 2 weeks following surgery, suggesting a greater burden at that time. Nevertheless, resolution was noted by 12 weeks in ZBI scores (8.08 -1.18; p = 0.03) and CBI scores (5.68 -0.95; p = 0.0002), indicating improvement of these constraints. Among caregivers, there were no associations noted between total ZBI or CBI and demographics. Conclusions: Informal caregivers of urogynecologic surgery patients experience temporary burden postoperatively which is likely to resolve by 12 weeks. This information enables physicians to provide counseling to caregivers by including them in the patients' surgical consultations. ( J GYNECOL SURG 31:155)

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Subjective Burden and Cultural Motives for Caregiving in Informal Caregivers of Older People

Abstract: Balanced reciprocity is useful for early prevention and early intervention of subjective burden and must be included in nursing care plans for caregivers. Cultural factors support the comprehension of the caregiving process.

Cited by 52 publications

References 52 publications

Association between filial responsibility when caring for parents and the caregivers overload

Association between filial responsibility when caring for parents and the caregivers overload

Family caregiver challenges in dementia care in Australia and China: a critical perspective

Perioperative Caregiver Burden in the Geriatric Urogynecologic Population: A Prospective Cohort Study

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