Subjective Experience of Recovery from Schizophrenia-Related Disorders and                 Atypical Antipsychotics

Jenkins, Janis H.; Strauss, Milton E.; Carpenter, Elizabeth; Miller, Dawn M.; Floersch, Jerry; Sajatovic, Martha

doi:10.1177/0020764005056986

Cited by 44 publications

(39 citation statements)

References 62 publications

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“…Most interviews were conducted in Mandarin Chinese, verbatim transcribed, and then translated to English. This study focused on the question set addressing disclosure, which was based on the Subjective Experience of Medication Interview (SEMI; Jenkins et al, 2005). The first question asked, “Regarding your most recent hospitalization, do people know that you have been hospitalized?…”

Section: Methodsmentioning

confidence: 99%

Mental illness disclosure in Chinese immigrant communities.

Chen

Lai

Yang

2013

Journal of Counseling Psychology

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Support from social networks is imperative to mental health recovery of persons with mental illness. However, disclosing mental illness may damage a person’s participation in networks due to mental illness stigma, especially in Chinese-immigrant communities where social networks (the guanxi network) has specific social-cultural significance. This study focused on mental illness disclosure in Chinese-immigrant communities in New York City. Fifty-three Chinese psychiatric patients were recruited consecutively from two Chinese bilingual psychiatric inpatient units from 2006 to 2010. Two bilingual psychologists interviewed each participant once in a semi-structured interview, including 6 questions on mental illness disclosure. Conventional content analysis was applied to conceptualize the phenomenon. Results showed that participants voluntarily disclosed to a circle of people composed primarily of family and relatives. The decisions and strategies to disclose depended on participants’ consideration of three critical elements of social relationships. Ganqing, affection associated with relationship-building, ultimately determined who had the privilege to know. Renqing, the moral code of reciprocal kindness, further influenced disclosure decisions and what participants anticipated as responses to disclosure. Lastly, concerns over preserving face (lian), a construct representing personal and familial dignity, oftentimes prohibited disclosure. Additionally, in this tight-knit network involuntary disclosure could happen without participants’ permission or knowledge. Participants commonly suffered from stigma after disclosure. However, half of our participants reported situations where they experienced little discriminatory treatment and some experienced support and care as a result of cultural dynamics. Recommendations for culturally sensitive practice to facilitate mental illness disclosure among Chinese immigrants were discussed.

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Section: Methodsmentioning

confidence: 99%

Mental illness disclosure in Chinese immigrant communities.

Chen

Lai

Yang

2013

Journal of Counseling Psychology

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“…Patient narratives have progressed from early accounts of individuals talking about their own experiences (Deegan, 1988;Coleman, 1999;Davidson & Strauss, 1992), followed by compilations of these accounts (Scottish Recovery Network, 2006;McIntosh, 2005;Lapsley, Nikora, & Black, 2002), culminating in recent qualitative syntheses (Jenkins et al, 2007;Ridgway, 2001;Lapsley et al, 2002;Jacobson, 2001;Ralph, 2000;Andresen, Oades, & Caputi, 2003).…”

Section: Personal Recoverymentioning

confidence: 99%

Recovery: an international perspective

Slade

Amering

Oades

2008

Epidemiol Psichiatr Soc

337

249

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SummaryAims– To review developments in recovery-focussed mental health services internationally.Methods– Two forms of ‘recovery’ which have been used in the literature are considered, and international examples of recovery-focussed initiatives reviews. A ‘litmus test’ for a recovery-focussed service is proposed.Results– ‘Clinical recovery’ has emerged from professional literature, focuses on sustained remission and restoration of functioning, is invariant across individuals, and has been used to establish rates of recovery. ‘Personal recovery’ has emerged from consumer narratives, focuses on living a satisfying, hopeful and contributing life even with limitations caused by the illness, varies across individuals, and the empirical evidence base relates to stages of change more than overall prevalence rates. Clinical and personal recovery are different. Two innovative, generalisable and empirically investigated examples are given of implementing a focus on personal recovery: the Collaborative Recovery Model in Australia, and Trialogues in German-speaking Europe. The role of medication is an indicator: services in which all service users are prescribed medication, in which the term ‘compliance’ is used, in which the reasoning bias is present of attributing improvement to medication and deterioration to the person, and in which contact with and discussion about the service user revolves around medication issues, are not personal recovery-focussed services.Conclusions– The term ‘Recovery’ has been used in different ways, so conceptual clarity is important. Developing a focus on personal recovery is more than a cosmetic change – it will entail fundamental shifts in the values of mental health services.Declaration of Interest: None.

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“… 4 Indirect support for these findings includes research that has emphasized that adult experience is mediated by culture, mental health systems, and medicalization processes (Conrad, 2007; Floersch, 2002; Jenkins et al, 2005; Karp, 2006; Kirmayer, Young, & Robbins, 1994; Kleinman 1988). …”

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confidence: 99%

Adolescent Experience of Psychotropic Treatment

Floersch

Townsend

Longhofer

et al. 2009

Transcult Psychiatry

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Despite growing concern over the treatment of adolescents with psychiatric medications, little research has examined youth understandings and interpretations of mental illness and psychotropic treatment. This article reports the exploratory findings of semi-structured and open-ended interviews carried out with 20 adolescents diagnosed with one or more psychiatric disorders, and who were currently prescribed psychiatric medications. Grounded theory coding procedures were used to identify themes related to adolescent subjective experience with psychiatric medications. The categories identified are interpreted as different points of view through which adolescents understand and take action upon their illness concerns; their need for medication treatment; their perceptions of how medications work; their responses to parental and other influences upon medication treatment; and, their everyday management activities.

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Subjective Experience of Recovery from Schizophrenia-Related Disorders and Atypical Antipsychotics

Abstract: The overall quality of improvement and recovery is best characterized as an incremental, yet definitively discernable, subjective process.

Cited by 44 publications

References 62 publications

Mental illness disclosure in Chinese immigrant communities.

Mental illness disclosure in Chinese immigrant communities.

Recovery: an international perspective

Adolescent Experience of Psychotropic Treatment

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