Subjective Experiences of Driving Cessation and Dementia: A Meta-Synthesis of Qualitative Literature

Sanford, Sarah; Naglie, Gary; Cameron, Duncan H.; Rapoport, Mark J.; Team, Dementia

doi:10.1080/07317115.2018.1483992

Cited by 26 publications

(26 citation statements)

References 46 publications

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“…Driving gives people independence and autonomy, allows them to manage their schedules and needs and socialize and partake in activities that they enjoy [ 21 ]. As such, it is not surprising that driving cessation is associated with negative emotions [ 22 ].…”

Section: Discussionmentioning

confidence: 99%

“…Given the negative impact of sudden driving cessation on the PLWCDs, caregivers and the relationship between the PLWCD and the physician, it is important that more attention is given to advanced planning and having aging adults and their families prepare for the possibility of driving cessation [ 21 ]. While all caregivers in the study were concerned about PLWCD’s driving, none reported discussions about advanced planning with the PLWCD regarding driving cessation.…”

Section: Discussionmentioning

confidence: 99%

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Driving Cessation: What Are Family Members’ Experiences and What Do They Think about Driving Simulators?

2022

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Background: Driving cessation is difficult for persons living with cognitive decline (PLWCD) and their caregivers (CG). Physicians are often required to notify authorities of driving risks, and typically base decisions on paper-based cognitive assessments and on-road tests. This study examines experiences surrounding cessation and CG’s views regarding simulators in the process. Methods: Semi-structured virtual interviews were conducted with CGs of PLWCD from an academic memory clinic. Experiences around cessation were explored first, followed by discussions regarding the simulator. Framework analysis was applied to transcribed interviews. Results: Six females and two males, three children and five spouses participated. PLWCD viewed driving cessation negatively, often had difficulty understanding why, and believed cessation was temporary. CGs experienced relief and/or shock. Cessation negatively impacted the relationships between the PLWCD and both the physician and CG. Isolation, coping challenges and loss of independence were experienced by the PLWCD. The lives of caregivers were adversely affected, especially regarding driving burden and worsening mental health. CGs were generally supportive of simulators. Positives included: measurement of driving skills, method of testing, and providing an understanding regarding the driving suspension. Potential drawbacks included difficulty using the machine, testing anxiety and stress induced by a crash. Caregivers were concerned about: PLWCD’s disappointment of failure, requesting to retest, and reluctance to accept the decision. Conclusion: PLWCD and caregivers had negative experiences related to the driving cessation. Generally, caregivers viewed implementing driving simulators positively, in a context of a practice session and support for PLWCD’s potential reactions to the decision.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Driving Cessation: What Are Family Members’ Experiences and What Do They Think about Driving Simulators?

2022

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“…Some of the elderly still working in the garden make it a substitute for sports (Kerwin & Hoeber, 2015). Older people who are used to working from a young age will continue to work, some of them say that if they do not work, it makes their bodies feel sick because there is no activity, so they choose to work every day with limited working hours rather than staying at home (Sanford, Naglie, Cameron, Rapoport, & Team, 2020).…”

Section: Want To Be Healthymentioning

confidence: 99%

Elderly in the Perspective of Minangkabau Nagari Aie Dingin of Solok Regency of West Sumatera Province

Agus

Elsera²,

Wang³

2022

Temali.

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Minangkabau people are very well known for their customs which are interesting to know and study. The existence of the Nagari government illustrates how a customary-based governance system governs the Minangkabau community's life. The role of ulayat land explains assets or properties and their benefits for clan members' security. Women's existence and function explain the degree of their role in family and community life. The function and existence of sponsorship for the elderly explains the model and form of sponsorship for the elderly. The purpose of this research is to know the life of the elderly if in the study of Minangkabau Culture in Nagari Aie Dingin of Solok Regency of West Sumatra Province. This study used qualitative methods and descriptive types, data collection was carried out using observation methods, interviews using interview guides and documentation. Data analysis in this study uses the Miles and Huberman model: data reduction, data presentation, conclusion and verification. The findings in this study indicate that with the high level of population aged 60 years and over, many elderly people are still actively working and the communal system is less active. Older women are prioritized over older men in Minangkabau.

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“…This information was used to make a Buddy Pair match that supported both partners' comfort and ability to interact with one another. We also arranged transportation services on lay participants' behalf, in recognition that transportation difficulties are a significant barrier to people with dementia's participation in activities outside the home (Sanford et al, 2018). While recruitment of lay participants was begun early in the project set-up phase, communication with care partners and people with dementia was maintained until initial tours could be scheduled.…”

Section: Project Set-upmentioning

confidence: 99%

‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice

2019

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The 'Buddy Pairs' pilot project, launched at the University of Edinburgh, created opportunities for people affected by dementia (people living with a diagnosis and care partners) and dementia lab researchers to participate in knowledge exchange conversations through experiential lab tours. The primary aims were to raise awareness and understanding of current dementia research and its practices, as well as allow biomedical researchers to learn about the lived experiences and research concerns of those affected by dementia. This scheme found success by flipping normative 'speaker-audience' communication setups and foregrounding the expertise held by, and communication needs of, people affected by dementia.

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Subjective Experiences of Driving Cessation and Dementia: A Meta-Synthesis of Qualitative Literature

Abstract: Interventions to support driving cessation for people with dementia should prioritize support for communication, advanced planning, and emotional effects of stopping driving.

Cited by 26 publications

References 46 publications

Driving Cessation: What Are Family Members’ Experiences and What Do They Think about Driving Simulators?

Driving Cessation: What Are Family Members’ Experiences and What Do They Think about Driving Simulators?

Elderly in the Perspective of Minangkabau Nagari Aie Dingin of Solok Regency of West Sumatera Province

‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice

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