Successful ageing for people with an intellectual disability

Reppermund, Simone; Trollor, Julian N.

doi:10.1097/yco.0000000000000228

Cited by 44 publications

(33 citation statements)

References 37 publications

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“…; Dieckmann et al . ), they become more at risk of developing later non‐communicable diseases, including type 2 diabetes mellitus (T2DM) (Hermans and Evenhuis ; Reppermund and Trollor ; Cooper et al . ).…”

Section: Introductionmentioning

confidence: 99%

“…As the life expectancy of people with intellectual disabilities (ID) increases (World Health Organisation 2000;Bittles et al 2002;Emerson et al 2012;Dieckmann et al 2015), they become more at risk of developing later non-communicable diseases, including type 2 diabetes mellitus (T2DM) (Hermans and Evenhuis 2014;Reppermund and Trollor 2016;Cooper et al 2018). In theory, prevention strategies should focus on reducing the burden of T2DM, but this can be challenging because of the complex interplay between physical and mental health problems, and support needs that contribute towards health inequalities in this population (Schutzwohl et al 2016;Kinnear et al 2018).…”

Section: Introductionmentioning

confidence: 99%

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Diabetes in adults with intellectual disability: prevalence and associated demographic, lifestyle, independence and health factors

Tyrer

Ling

Bhaumik

et al. 2020

J intellect Disabil Res

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Background As people with intellectual disabilities (ID) are now living longer, they are more at risk of developing non‐communicable diseases, including type 2 diabetes mellitus. However, understanding of factors associated with diabetes for targeted management and prevention strategies is limited. This study aimed to investigate prevalence of diabetes in adults (aged ≥18 years) with ID and its relationship with demographic, lifestyle, independence and health factors. Method This was a cross‐sectional analysis of interview data from 1091 adults with ID from the Leicestershire Learning Disability Register from 1 January 2010 to 31 December 2016. Logistic regression models were used to identify factors associated with diabetes in the study population. Results The study population did not have healthy lifestyles: just under half reported having lower physical activity levels than people without ID of a similar age; one‐quarter consumed fizzy drinks daily; and 20% consumed five or more fruit and/or vegetables per day. Prevalence of carer/self‐reported diabetes was 7.3% (95% confidence interval 5.9–9.0). After adjustment, diabetes was positively associated with South Asian ethnicity (P = 0.03) and older age groups (P < 0.001). Diabetes was less common in people living with family members (P = 0.02). We did not find a relationship between any of the lifestyle, independence and health factors investigated. Conclusions A significant proportion of people with ID are living with diabetes. Diabetes management and prevention strategies should be tailored to individuals' complex needs and include consideration of lifestyle choices. Such strategies may want to focus on adults of South Asian ethnicity and people living in residential homes where prevalence appears to be higher.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Diabetes in adults with intellectual disability: prevalence and associated demographic, lifestyle, independence and health factors

Tyrer

Ling

Bhaumik

et al. 2020

J intellect Disabil Res

View full text Add to dashboard Cite

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“…). This, together with the fact that their life expectancy has increased considerably and along with the presence of high morbidity rates caused by non‐communicable diseases, has highlighted the urgent need to develop strategies to promote healthy ageing in this specific group (Reppermund & Trollor ).…”

Section: Introductionmentioning

confidence: 99%

Feasibility of a dance and exercise with music programme on adults with intellectual disability

Martínez-Aldao

Martínez-Lemos

Bouzas-Rico

et al. 2019

J intellect Disabil Res

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Background Research regarding the feasibility and effects of dancing and exercise with musical support programmes on the physical fitness of adults with intellectual disability (ID) is scarce. The purpose of this study was to provide scientific evidence regarding the feasibility of a training programme consisting of dancing and exercise with music designed for adults with ID, as well as to assess its impact on their body composition and cardiovascular and muscular fitness. Methods A total of 30 adults (mean age 36.37 ± 11.24 years) with mild (n = 13), moderate (n = 16) or severe (n = 1) ID took part in a 10-week dancing and exercise with music programme. Recruitment and completion rate, adherence to the programme, participation and adverse effects were registered as measures of feasibility. The body mass index, cardiovascular endurance (6-min walk test) and muscular strength (standing long jump test) of the participants were assessed in order to determine the effects of the programme on their fitness level. Results A 92.5% recruitment rate and a 90% completion rate were achieved. Adherence to the programme stood at 76.6%, and no adverse effects were registered. The comparison between the values obtained in the initial and final evaluations indicated the existence of positive changes in all the fitness dimensions measured.Conclusion A training programme combining dancing and exercise with music proved to be feasible when performed by adults with ID. These kind of programmes can have a positive effect on the fitness level of this specific group.

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“…With advances in both medical knowledge and the provision of specialist care, individuals around the world are not just living longer, but now also living longer with complex health issues [ 1 ]. There is an increasing need for informal care-giving, which is partially related to the recognised ageing of the general population [ 2 ], but the provision of lifelong family-based care is now also commonplace in situations where individuals born with disabilities or chronic health problems are surviving childhood and living into chronological middle and old age [ 3 ]. Previous models of health and personal care for people with severe disability, which often focused on formal institutionalisation, have been increasingly replaced with community-based support options supplementing informal family care [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

Caregiving, Employment and Social Isolation: Challenges for Rural Carers in Australia

Hussain

Wark

Ryan

2018

IJERPH

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Australia has one of the world’s highest life expectancy rates, and there is a rapidly growing need for informal caregivers to support individuals who are ageing, have chronic illness or a lifelong disability. These informal carers themselves face numerous physical and psychological stressors in attempting to balance the provision of care with their personal life, their work commitments and family responsibilities. However, little is known about the specific challenges facing rural carers and the barriers that limit their capacity to provide ongoing support. A cross-sectional survey composed of open-ended responses and demographic/socioeconomic measures used routinely by the Australian Bureau of Statistics (ABS) and the Australian Institute of Health & Welfare (AIHW) was used with a cohort of 225 rurally-based carers within New South Wales, Australia. Demographic questions specified the respondents’ age, gender, employment, caregiving status, condition of and relationship to the care recipient, postcode, residency status, and distance and frequency travelled to provide care. Open-ended comments sections were provided to allow participants to describe any issues and problems associated with caregiving including employment, travel, residency, carer support groups and any other general information. The results show that most rural carers were middle-aged women supporting a spouse or a child. Unpredictability associated with providing care exacerbated demands on carers’ time, with many reporting significant employment consequences associated with inflexibility and limited job options in rural locations. Specific issues associated with travel requirements to assist with care were reported, as were the impacts of care provision on the respondents’ own personal health. The majority of carers were aware of the social supports available in their local rural community, but did not access them, leaving the carers vulnerable to marginalisation. Problems associated with employment were noted as resulting in financial pressures and associated personal stress and anxiety for the caregivers. While this issue is not necessarily limited to rural areas, it would appear that the lack of opportunity and flexibility evident in rural areas would exacerbate this problem for non-metropolitan residents. The participants also identified specific barriers to the provision of care in rural areas, including the significant impact of travel. Access to support services, such as carer groups, were rarely accessed due to a mix of factors including inaccessibility, poor timing and a lack of anonymity. Financially, there was considerable evidence of hardship, and there is an urgent need for a comprehensive review of government and community-based support to better meet the needs of rural carers.

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Successful ageing for people with an intellectual disability

Cited by 44 publications

References 37 publications

Diabetes in adults with intellectual disability: prevalence and associated demographic, lifestyle, independence and health factors

Diabetes in adults with intellectual disability: prevalence and associated demographic, lifestyle, independence and health factors

Feasibility of a dance and exercise with music programme on adults with intellectual disability

Caregiving, Employment and Social Isolation: Challenges for Rural Carers in Australia

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