Sufficient Death Preparedness Correlates to Better Mental Health, Quality of Life, and EOL Care

Wen, Fur‐Hsing; Chou, Wen‐Chi; Chen, Jen‐Shi; Chang, Wen‐Cheng; Hsu, Mei Huang; Tang, Siew Tzuh

doi:10.1016/j.jpainsymman.2022.02.014

Cited by 4 publications

(7 citation statements)

References 46 publications

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“…This study is part of an ethical-review-committee-approved (103-7015B) longitudinal, observational study on death-preparedness experiences of terminally ill cancer patients. 14,22 Detailed information for eligibility, subject recruitment, and data collection has been reported. 14,22 Briefly, advanced cancer patients whose disease continually progressed and was unresponsive to repeated chemotherapy/ immunotherapy were recruited conveniently and followed from 1 August 2015 through 31 December 2019 from a northwest Taiwanese medical center.…”

Section: Study Design/sample/proceduresmentioning

confidence: 99%

“…14,22 Detailed information for eligibility, subject recruitment, and data collection has been reported. 14,22 Briefly, advanced cancer patients whose disease continually progressed and was unresponsive to repeated chemotherapy/ immunotherapy were recruited conveniently and followed from 1 August 2015 through 31 December 2019 from a northwest Taiwanese medical center. Experienced, trained oncology nurses interviewed participants face-to-face at enrollment and every 2-4 weeks until participants withdrew or died.…”

Section: Study Design/sample/proceduresmentioning

confidence: 99%

“…Factors potentially associated with participants' death-preparedness states included socio-demographics, disease burden, physician prognostic disclosure, patient-family communication on EOL issues, and personal resources. 4,5,13,21 Since death-preparedness states were found to be an antecedent to psychological distress (anxiety and depressive symptoms) and quality of life, 14 they were not included as potential predictors. All instruments used for measuring independent variables have been translated according to the established processes (translated and back translated) and used extensively by the research team.…”

Section: Independent Variablesmentioning

confidence: 99%

“…10,11 With emotional death preparedness, patients accept their dying role 7 ; concede to the constraints of present circumstances; relinquish their unattainable future; and close, reconcile, and renew familial bonds in preparation for their eternal absence. [3][4][5][6][7] Though sufficient (i.e., conjoint cognitive and emotional) death preparedness is not universally desired and sought, it is associated with fewer anxiety and depressive symptoms, less posttraumatic distress, fewer psychiatric disorders, and greater spiritual wellbeing, [10][11][12][13][14] better quality of life 14 /dying and death, 10 reduced chemotherapy or immunotherapy, 14 and increased hospicecare utilization. 14 Achieving sufficient preparedness for death is challenging 15 but can be promoted through high-quality EOL care.…”

Section: Introductionmentioning

confidence: 99%

“…[3][4][5][6][7] Though sufficient (i.e., conjoint cognitive and emotional) death preparedness is not universally desired and sought, it is associated with fewer anxiety and depressive symptoms, less posttraumatic distress, fewer psychiatric disorders, and greater spiritual wellbeing, [10][11][12][13][14] better quality of life 14 /dying and death, 10 reduced chemotherapy or immunotherapy, 14 and increased hospicecare utilization. 14 Achieving sufficient preparedness for death is challenging 15 but can be promoted through high-quality EOL care. Developing healthcare interventions to facilitate death preparedness relies on a better understanding of predisposing factors.…”

Section: Introductionmentioning

confidence: 99%

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Factors associated with cancer patients' distinct death‐preparedness states

et al. 2023

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Background/Objective Facilitating death preparedness is important for improving cancer patients' quality of death and dying. We aimed to identify factors associated with the four death‐preparedness states (no‐preparedness, cognitive‐only, emotional‐only, and sufficient‐preparedness) focusing on modifiable factors. Methods In this cohort study, we identified factors associated with 314 Taiwanese cancer patients' death‐preparedness states from time‐invariant socio‐demographics and lagged time‐varying modifiable variables, including disease burden, physician prognostic disclosure, patient‐family communication on end‐of‐life (EOL) issues, and perceived social support using hierarchical generalized linear modeling. Results Patients who were male, older, without financial hardship to make ends meet, and suffered lower symptom distress were more likely to be in the emotional‐only and sufficient‐preparedness states than the no‐death‐preparedness‐state. Younger age (adjusted odds ratio [95% confidence interval] = 0.95 [0.91, 0.99] per year increase in age) and greater functional dependency (1.05 [1.00, 1.11]) were associated with being in the cognitive‐only state. Physician prognostic disclosure increased the likelihood of being in the cognitive‐only (51.51 [14.01, 189.36]) and sufficient‐preparedness (47.42 [10.93, 205.79]) states, whereas higher patient‐family communication on EOL issues reduced likelihood for the emotional‐only state (0.38 [0.21, 0.69]). Higher perceived social support reduced the likelihood of cognitive‐only (0.94 [0.91, 0.98]) but increased the chance of emotional‐only (1.09 [1.05, 1.14]) state membership. Conclusions Death‐preparedness states are associated with patients' socio‐demographics, disease burden, physician prognostic disclosure, patient‐family communication on EOL issues, and perceived social support. Providing accurate prognostic disclosure, adequately managing symptom distress, supporting those with higher functional dependence, promoting empathetic patient‐family communication on EOL issues, and enhancing perceived social support may facilitate death preparedness.

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Section: Study Design/sample/proceduresmentioning

confidence: 99%

Section: Study Design/sample/proceduresmentioning

confidence: 99%

Section: Independent Variablesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Factors associated with cancer patients' distinct death‐preparedness states

et al. 2023

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A Model of Death Preparedness in Patients With Advanced Cancer: A Grounded Theory Study

Zhang,

Zeng,

Zhao

et al. 2024

Journal of Advanced Nursing

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BackgroundDeath preparedness in patients with advanced cancer is an important prerequisite for improving the quality of death. However, there are insufficient studies on death preparedness in patients with advanced cancer, and the level of death preparedness needs to be further improved.AimTo develop a model of death preparedness in patients with advanced cancer.MethodsA qualitative approach with grounded theory was used. Data were collected between February 2024 and July 2024 in the oncology wards of the two general hospitals in Wuhan. We recruited 12 patients, 11 family members, 16 nurses and 4 doctors for semistructured interviews. Data analysis included open coding, axial coding and selective coding. The study is reported using the COREQ checklist.ResultsDeath preparedness in patients with advanced cancer is a spiralling process whose core components include death awareness, emotional response, hospice programme and reflexive care, and multiple personal, interpersonal and social factors influence it.ConclusionA model of death preparedness in advanced cancer patients was constructed through rooted theory, revealing its formation and change process. This model deepens the understanding of death preparedness and helps healthcare providers identify patients' preparedness status in advance to provide more targeted support and care. This personalised care enhances patients' quality of life and reduces the psychological burden on them and their families, achieving more comprehensive and humanised end‐of‐life care.ImpactTo better understand patients' death preparedness, healthcare providers should focus on patients' cognitive, emotional, behavioural and social needs in the process of death preparation from a multifactorial perspective, and provide targeted support and assistance.No Patient or Public Contributions were included in this paper.

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Intervenciones en el manejo de ansiedad y depresión en pacientes Paliativos oncológicos

Alvarado-Garcia,

Carrillo-Riveros,

Vargas-Bello

2024

Rev. cienc. cuidad.

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Introducción: Se considera que la ansiedad y la depresión son dos de las entidades con mayor prevalencia en los pacientes oncológicos. Esto implica la necesidad en los profesionales de enfermería en intervenir de manera oportuna en la salud mental de los pacientes en cuidados paliativos teniendo en cuenta el impacto que representa a nivel individual y en las condiciones físicas y psicológicas de la persona objeto de cuidado. Objetivo: El objetivo de esta revisión fue identificar las intervenciones de enfermería destinadas a pacientes para el manejo de depresión y ansiedad, así como el enfoque teórico utilizado. Metodología: Se realizó una búsqueda sistemática, selección y síntesis de los estudios pertinentes sin restricción de tiempo en las bases de datos SCOPUS, Sciencedirect, Pubmed, portal de búsqueda de la BVS Colombia, utilizando la lista de referencia de términos MeSH y DeCS entre marzo y mayo de 2023. La estrategia de búsqueda se limitó a los idiomas inglés, español y portugués. Resultados: En esta revisión se identificaron quince artículos, de los cuales se dividieron en intervenciones de enfermería, intervenciones en conjunto con otras disciplinas e intervenciones para promover la capacitación en enfermería. Conclusión: que esta revisión alienta al personal de enfermería a investigar el efecto de estas intervenciones enfocadas en pacientes oncológicos que se encuentran en cuidados paliativos utilizando modelos teóricos enfermeros, así mismo, evaluar el efecto de estas intervenciones especialmente en países latinoamericanos con el fin de garantizar una atención de calidad a los pacientes.

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Sufficient Death Preparedness Correlates to Better Mental Health, Quality of Life, and EOL Care

Cited by 4 publications

References 46 publications

Factors associated with cancer patients' distinct death‐preparedness states

Factors associated with cancer patients' distinct death‐preparedness states

A Model of Death Preparedness in Patients With Advanced Cancer: A Grounded Theory Study

Intervenciones en el manejo de ansiedad y depresión en pacientes Paliativos oncológicos

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