Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review

O’Dwyer, Siobhan; Janssens, Astrid; Sansom, Anna; Biddle, Lucy; Mars, Becky; Slater, Tom; Moran, Paul; Stallard, Paul; Melluish, J; Reakes, Lisa; Walker, Anna N.; Andrewartha, Charmaine; Hastings, Richard P.

doi:10.1016/j.comppsych.2021.152261

Cited by 19 publications

(13 citation statements)

References 63 publications

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“…One participant reported having experienced suicidal ideation in the past. This finding is in line with a review in which the risk of suicide ranged from 2.7 % to 71 % of family caregivers of people with long-term illnesses and disabilities (O'Dwyer et al, 2021).…”

Section: Discussionsupporting

confidence: 91%

Perceived mental health and emotional trajectories of long-term family caregivers of persons with mental conditions: A mixed-methods study

Corchon¹,

Sánchez-Martínez²,

Cauli³

2022

Archives of Psychiatric Nursing

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Section: Discussionsupporting

confidence: 91%

Perceived mental health and emotional trajectories of long-term family caregivers of persons with mental conditions: A mixed-methods study

Corchon¹,

Sánchez-Martínez²,

Cauli³

2022

Archives of Psychiatric Nursing

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“…7 Caring for loved ones after illness can be grueling and may lead to chronic stress, fatigue, social isolation, and deleterious behavioral changes (eg, less exercise). 8,9 Other studies have found an association between caregiving and adverse health outcomes, most prominently psychological distress 10 (including suicidal ideation 11 ), cardiovascular disease, 9,12 and premature mortality. 13 Research focusing on mental health aspects of family members or caregivers specifically after stroke is limited.…”

Section: Introductionmentioning

confidence: 99%

Mental Health Conditions in Partners and Adult Children of Stroke Survivors

Skajaa,

Farkas,

Laugesen

et al. 2024

JAMA Netw Open

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ImportanceFamily caregiving after critical illness has been associated with several adverse health outcomes, including various aspects of mental health, but research focusing specifically on family members of stroke survivors is limited.ObjectivesTo examine the associations of stroke in a partner or parent with the risk of depression, substance use disorders, anxiety disorders, and self-harm or suicide.Design, Setting, and ParticipantsThis nationwide, population-based cohort study used data from Danish nationwide administrative and clinical registries (2004-2021). Participants included partners and adult children of survivors of stroke. Data analysis was performed from March to December 2023.ExposureHaving a partner or parent who survived stroke.Main Outcomes and MeasuresThe Aalen-Johansen estimator was used to compute propensity score–weighted 3-year absolute risks, risk differences, and risk ratios for depression, substance use disorders, anxiety disorders, and self-harm or suicide among partners or children of survivors of stroke compared with partners or children of survivors of myocardial infarction (MI) and matched individuals from the general population.ResultsThe study included a total of 1 923 732 individuals: 70 917 partners of stroke survivors (median [IQR] age, 68 [59-76] years; 46 369 women [65%]), 70 664 partners of MI survivors (median [IQR] age, 65 [55-73] years; 51 849 women [73%]), 354 570 partners of individuals from the general population (median [IQR] age, 68 [59-76] years; 231 833 women [65%]), 207 386 adult children of stroke survivors (median [IQR] age, 45 [36-52] years; 99 382 women [48%]), 183 309 adult children of MI survivors (median [IQR] age, 42 [33-49] years; 88 078 women [48%]), and 1 036 886 adult children of individuals from the general population (median [IQR] age, 45 [36-52] years; 496 875 women [48%]). Baseline characteristics were well balanced across cohorts after propensity score weighting. Among partners of stroke survivors, the 3-year absolute risk was 1.0% for depression, 0.7% for substance use disorders, 0.3% for anxiety disorders, and 0.04% for self-harm or suicide. Risk ratio point estimates for the assessed outcomes ranged from 1.14 to 1.42 compared with the general population and from 1.04 to 1.09 compared with partners of MI survivors. The elevated risk of depression in partners of stroke survivors was more pronounced after severe or moderate stroke than after mild stroke. Among adult children of stroke survivors, the 3-year absolute risk was 0.6% for depression, 0.6% for substance use disorders, 0.2% for anxiety disorders, and 0.05% for self-harm or suicide. Both absolute risks and risk ratios for adult children of stroke survivors were smaller than those reported in the partner analyses.Conclusions and RelevanceIn this cohort study of partners and adult children of stroke survivors, risks of several mental health conditions and self-harm or suicide were moderately higher compared with the general population and, to a lesser extent, partners and adult children of MI survivors. These findings highlight the potential consequences of stroke among family members, particularly partners, and its findings may possibly serve as a quantitative foundation for the development of future stroke rehabilitation services.

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“…Parent carers of disabled children are at increased risk of physical and mental health problems. [1][2][3][4][5][6][7][8][9][10][11][12][13] They often experience greater challenges in maintaining good personal health, which has implications for their own wellbeing and their ability to care for their children. 14 Individual, family and environmental factors affect parent carers' health.…”

Section: Introductionmentioning

confidence: 99%

Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Garrood,

Bjornstad,

Borek

et al. 2023

Health Expectations

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BackgroundParent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer‐led group‐based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID‐19.MethodsThe study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.ResultsThis study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co‐created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll‐out of the programme with other delivery partner organisations.ConclusionsThis study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.Patient and Public ContributionParent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.

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Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review

Cited by 19 publications

References 63 publications

Perceived mental health and emotional trajectories of long-term family caregivers of persons with mental conditions: A mixed-methods study

Perceived mental health and emotional trajectories of long-term family caregivers of persons with mental conditions: A mixed-methods study

Mental Health Conditions in Partners and Adult Children of Stroke Survivors

Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

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