Suicide Ideation and Depression Quality of Life Ratings in a Reservation-Based Community of Native American Youths and Young Adults

Alfonso, Y Natalie; Bishai, David; Ivanich, Jerreed; O’Keefe, Victoria M.; Usher, Jason; Aldridge, Luke R.; Haroz, Emily E.; Goklish, Novalene; Barlow, Allison; Cwik, Mary

doi:10.1007/s10597-021-00883-w

Cited by 2 publications

(3 citation statements)

References 32 publications

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“…Out of these, most (n = 69) reported the use of generic PBMs. Four publications reported the use of a direct PBM, with two utilizing standard gamble [ 65 , 66 ], and the other two [ 33 , 58 ] using the Visual Analogue Scale (VAS) to directly elicit health preferences. Overall, only 17 reported the use of a VAS, with 8 affirming the scale as 0–10 and the rest using a 0–100 scale.…”

Section: Resultsmentioning

confidence: 99%

“…Among the identified reports (Table 1 ), four examined the performance of a PBM [ 9 , 41 , 47 , 52 ], four directly elicited health preferences [ 13 , 58 , 65 , 66 ], four explored the development of a PBM [ 10 , 64 , 103 , 104 ], two explored translation of a PBM [ 35 , 68 ], while a majority (n = 71) used a PBM to measure health status. In some instances, reports could be classified in more than one category of use.…”

Section: Resultsmentioning

confidence: 99%

“…In this study, valuations for health states were obtained using a visual analogue 0–100 scale (versus time trade-off or standard gamble). Similarly, a recent publication [ 58 ] used a VAS to value health states associated with suicide and depression. Although the VAS can be used as a direct measure of utility, it has a number of limitations [ 106 ].…”

Section: Resultsmentioning

confidence: 99%

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Preference-based measures of health-related quality of life in Indigenous people: a systematic review

Roy,

Neill,

Swampy

et al. 2023

Qual Life Res

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Purpose In many countries, there are calls to address health inequalities experienced by Indigenous people. Preference-based measures (PBMs) provide a measurement of health-related quality of life and can support resource allocation decisions. This review aimed to identify, summarize, and appraise the literature reporting the use and performance of PBMs with Indigenous people. Methods Eleven major databases were searched from inception to August 31, 2022. Records in English that (1) assessed any measurement property of PBMs, (2) directly elicited health preferences, (3) reported the development or translation of PBMs for Indigenous people, or (4) measured health-related quality of life (HRQL) using PBMs were included. Ethically engaged research with Indigenous people was considered as an element of methodological quality. Data was synthesized descriptively (PROSPERO ID: CRD42020205239). Results Of 3139 records identified, 81 were eligible, describing psychometric evaluation (n = 4), preference elicitation (n = 4), development (n = 4), translation (n = 2), and HRQL measurement (n = 71). 31 reported ethically engaged research. Reports originated primarily from Australia (n = 38), New Zealand (n = 20), USA (n = 9) and Canada (n = 6). Nearly all (n = 73) reported indirect, multi-attribute PBMs, the most common of which was the EQ-5D (n = 50). Conclusion A large number of recent publications from diverse disciplines report the use of PBMs with Indigenous people, despite little evidence on measurement properties in these populations. Understanding the measurement properties of PBMs with Indigenous people is important to better understand how these measures might, or might not, be used in policy and resource decisions affecting Indigenous people. (Funding: EuroQoL Research Foundation).

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Preference-based measures of health-related quality of life in Indigenous people: a systematic review

Roy,

Neill,

Swampy

et al. 2023

Qual Life Res

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Protocol for the economic evaluation of paraprofessional-led case management and two brief culture-informed suicide prevention interventions for American Indian youth

Kemp,

Goklish,

Suttle

et al. 2024

Preprint

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Background: Suicide is a leading cause of death among American Indian youth, reflecting the intergenerational consequences of colonization, historical trauma, racism, and the chronic underfunding of critical health and social services in Native communities. American Indian values, spiritualities, and cultural practices promote the physical, social, and emotional health of Native people, and there is a need for community-based case management approaches and culture-informed behavioral interventions that build from this strength. Cost and cost-effectiveness estimates are critical for policymakers in Tribal communities considering investing in such services. Objectives: Our objective will be to estimate the cost and cost-effectiveness for community-based paraprofessionals to deliver three preventive services to American Indian youth (aged 10-29): case management, New Hope (a brief intervention to reduce immediate suicide risk) and Elders’ Resilience (a brief intervention incorporating Elders to increase connectedness, self-esteem, and cultural identity). Methods: We will conduct an economic evaluation as part of a Sequential Multiple Assignment Randomized Trial in a rural, reservation-based American Indian community in the Southwest. A five-year time horizon, societal perspective, and 3% discount rate will be used. An ingredients-based approach will estimate fixed program costs (e.g., intervention development, shared overhead) and variable program costs (e.g., labor and intervention delivery). Additional costs to the participants and healthcare payer will be estimated. Data collection methods will include key informant interviews, activity logs, expenditure reports and records review, direct observation, and medical chart review. Total cost estimates for each service will be divided by the respective numbers of participants reached to estimate relative cost-efficiency. Primary and secondary outcomes will be quality-adjusted life years and suicidal ideation, respectively. Incremental cost effectiveness ratios will be estimated. Discussion: We will develop much-needed estimates of the cost and cost-effectiveness of delivering community-based, paraprofessional-delivered case management and culture-informed suicide prevention interventions in a rural, reservation-based American Indian community in the Southwest. These estimates will fill a key gap for Tribal policymakers considering comparable services for their communities. Trial Registration: Clinical Trials NCT03543865, June 1, 2018.

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Suicide Ideation and Depression Quality of Life Ratings in a Reservation-Based Community of Native American Youths and Young Adults

Cited by 2 publications

References 32 publications

Preference-based measures of health-related quality of life in Indigenous people: a systematic review

Preference-based measures of health-related quality of life in Indigenous people: a systematic review

Protocol for the economic evaluation of paraprofessional-led case management and two brief culture-informed suicide prevention interventions for American Indian youth

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