Support needs of caregivers: case studies in <scp>S</scp>outh <scp>A</scp>frica

Sandy, Peter Thomas; Kgole, J.C.; Mavundla, Thandisizwe Redford

doi:10.1111/inr.12022

Cited by 31 publications

(42 citation statements)

References 14 publications

(25 reference statements)

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“…Our study further indicates a lack of access to information about cerebral palsy among caregivers. This is comparable to what has been described in several other studies in low‐resource settings including studies in South Africa and Cambodia (Morgan & Tan, ; Sandy, Kgole, & Mavundla, ) and suggests that standardized educational materials or educational interventions could be helpful for families.…”

Section: Discussionsupporting

confidence: 89%

Health beliefs regarding pediatric cerebral palsy among caregivers in Botswana: A qualitative study

Patel

Baier

Baranov

et al. 2017

Child

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Section: Discussionsupporting

confidence: 89%

Health beliefs regarding pediatric cerebral palsy among caregivers in Botswana: A qualitative study

Patel

Baier

Baranov

et al. 2017

Child

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“…According to Resch et al (2010), providing information to parents on the type of disability and services available at the time of diagnosis helps reduce parental stress. In a study conducted in South Africa, caregivers of children with learning disabilities reported that their lack of knowledge about their child’s condition was one of the main causes of their experiences of distress and anxiety when caring for their children (Sandy, Kgole & Mavundla 2013). Giving information during the initial diagnosis helps families to plan for their child’s future, learn of the services available and understand the long-term implications of their child’s condition (Jeglinsky, Autti-Rämö & Carlberg 2012; Palisano et al 2010).…”

Section: Discussionmentioning

confidence: 99%

Access to health care for children with neural tube defects: Experiences of mothers in Zambia

Simpamba

Struthers

Mweshi

2016

AJOD

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IntroductionIn Zambia, all children born with neural tube defects requiring surgery need to be referred to a tertiary level hospital in Lusaka, the capital city, where the specialists are based. The aim of this study was to explore the experiences of mothers accessing health care who had recently given birth to a child with a neural tube defect.Methods and analysisIn-depth interviews were conducted with a purposively selected sample of 20 mothers at the tertiary level hospital. The interviews were audiotaped, transcribed verbatim and translated. Content analysis was used to identify codes, which were later collapsed into categories and themes.FindingsFive themes emerged: access to health care, access to transport, access to information, concerns about family and support needs.DiscussionBarriers to access to health care included geographical barriers and barriers linked to availability. Geographical barriers were related to distance between home and the health centre, and referral between health facilities. Barriers to availability included the lack of specialist health workers at various levels, and insufficient hospital vehicles to transport mothers and children to the tertiary level hospital. The main barrier to affordability was the cost of transport, which was alleviated by either family or government support. Acceptability of the health services was affected by a lack of information, incorrect advice, the attitude of health workers and the beliefs of the family.ConclusionAccess to health care by mothers of children with neural tube defects in Zambia is affected by geographical accessibility, availability, affordability and acceptability. The supply-side barriers and demand-side barriers require different interventions to address them. This suggests that health policy is needed which ensures access to surgery and follow-up care.

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“…It reduces parents' so‐called health literacy. ‘Health literacy refers to an individual's achievement of a level of knowledge, personal skills and confidence to take action to improve his or her life’ (Sandy et al ., : 349).…”

Section: Disability and Carementioning

confidence: 98%

“…It is the inability to provide for the child that creates the most stress’ (: 8). Research from Kenya, Pakistan and South Africa supports the notion of stress as a result of carers' constrained ability to satisfy their child's basic needs (respectively Gona et al ., ; Qayyum, Lasi & Rafique, ; Sandy, Kgole & Mavundla, ).…”

Section: Disability and Carementioning

confidence: 99%

How Poverty Shapes Caring for a Disabled Child: A Narrative Literature Review

Mark

Conradie

Dedding

et al. 2017

J of Intl Development

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Despite ample research on the relationship between disability and poverty, the experiences of parents of disabled children are herein generally overlooked. We argue that an understanding of how poverty shapes caring for a disabled child is crucial for disability inclusive development. Therefore, this paper narratively reviews literature on carers of disabled children from various contexts published between 1995 and 2015. It uncovers a significant knowledge gap on the impact of poverty despite slowly emerging evidence on how political, cultural and socioeconomic exclusion stifles parents to enhance their families' wellbeing and possibly reap the benefits of development policies. Implications for future research are addressed. Copyright © 2017 John Wiley & Sons, Ltd.

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Support needs of caregivers: case studies in South Africa

Cited by 31 publications

References 14 publications

Health beliefs regarding pediatric cerebral palsy among caregivers in Botswana: A qualitative study

Health beliefs regarding pediatric cerebral palsy among caregivers in Botswana: A qualitative study

Access to health care for children with neural tube defects: Experiences of mothers in Zambia

How Poverty Shapes Caring for a Disabled Child: A Narrative Literature Review

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