Support Needs of Fathers of Children with <scp>ASD</scp>: Individual, Family, Community and Ideological Influences

Shave, Kassi; Lashewicz, Bonnie

doi:10.1111/jar.12204

Cited by 21 publications

(35 citation statements)

References 43 publications

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“…The high levels of paternal engagement reported here echo those discussed by Shave & Lashewicz, (2015) in research exploring the support needs of fathers of children with autism and those discussed by Towers (2009). In both studies, men undertook a wide range of responsibilities for their children, often within the constraints of full-time employment, as was the case here.…”

Section: Discussionsupporting

confidence: 67%

‘It’s the most important thing – I mean, the schooling’: father involvement in the education of children with autism

Potter

2016

European Journal of Special Needs Education

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Father involvement in education has been shown to result in a range of positive outcomes for typically developing children. However, the nature of paternal involvement in the education of children with disabilities and especially autism has been under-researched and is little understood. This study aimed to explore the nature of the involvement of 25 UK fathers in the education and their children with autism, aged up to 19 years through the use of semi-structured interviews. Findings showed that fathers were highly engaged both directly and indirectly across several dimensions of their children's education and schooling.Key areas of indirect engagement were involvement in administrative processes necessary for securing an appropriate educational placement; facilitating daily access to school and general support of children's progress through attendance at school-based meetings and events. Direct support for learning occurred through homework assistance and working on school-related goals. Findings are discussed in relation to diversity and generative models of fatherhood.Implications for greater father inclusion in the education of children with autism are explored with reference to a gender-differentiated approach.

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Section: Discussionsupporting

confidence: 67%

‘It’s the most important thing – I mean, the schooling’: father involvement in the education of children with autism

Potter

2016

European Journal of Special Needs Education

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“…() showed that fathers chose to reduce their working hours and refrain from promotional opportunities, which concurs with the findings of this study. Several studies have mentioned the need of a flexible workplace (Carpenter and Towers ; Crowell and Leeper ; Golden ; Shave and Lashewicz ; Venter ) and the choice of self‐employment to provide flexibility for the ‘unplanned demands of caring’ (Wright et al . ), which highlight the need for flexibility at companies and organisations to support their employees with children with disabilities.…”

Section: Conclusion and Discussionmentioning

confidence: 99%

“…Overall, families with children with disabilities experience more difficulties compared with families with typically developing children (Pelchat et al . ; Shave and Lashewicz ). However, the impact of having a child with a disability varies between families, as some families ‘flourish in the presence of disability, while others do not’ (Faragher and Van Ommen , p. 42).…”

Section: Introductionmentioning

confidence: 99%

The experiences of Dutch fathers on fathering children with disabilities: ‘Hey, that is a father and his daughter, that is it’

Schippers

Berkelaar

Bakker

et al. 2020

J intellect Disabil Res

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Background Due to a predominant focus on mothers, fathers of children with disabilities are greatly overlooked in research. One could argue that there is a lack of research on the multifaceted nature of fatherhood altogether. Therefore, this study aims to gain insight into the perceived experiences of fathers of children with disabilities. Methods These perceptions were studied by analysing data generated through semi‐structured interviews, which were conducted with 12 Dutch fathers of children or young adults with disabilities. Results Categories found during our data analysis were similar to those illustrated in the ‘conceptual framework on responsible fathering’ by including role identification, commitment, employment characteristics, cultural expectations and social support. Conclusions Overall, the fathers in this study reported similar experiences, but this study identified new life perspective as an additional category, which might be specific for fathers of children with disabilities. This new life perspective included a positive attitude, living in the moment, appreciation of the little things and transformation of expectations. Some fathers expressed that their child(ren) has enriched their lives, which positively influenced their fathering experience.

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“…While much of the international research of children with intellectual disabilities captures parents experiences (Behrani & Shah, ; Hastings & Taunt, ; Pisula & Porębowicz‐DoÈrsmann, ), the research primarily relies on mothers voices (Chandravanshi et al., ; Mathew & Nair, ; Rajan, Romante, & Srikrishna, ). However, as fathers are now recognised as equal partners in their child’s care, the body of research interest is growing internationally (Al‐Yagon, ; Carpenter & Towers, ; Cohen, Zeedyk, Tipton, Rodas, & Blacher, ; Kumar & Joshi, ; Paynter, Davies, & Beamish, ; Shave & Lashewicz, ; Takataya et al., ; Towers ).…”

Section: Introductionmentioning

confidence: 99%

“…. However, as fathers are now recognised as equal partners in their child's care, the body of research interest is growing internationally (Al-Yagon, 2015;Carpenter & Towers, 2008;Cohen, Zeedyk, Tipton, Rodas, & Blacher, 2016;Kumar & Joshi, 2015;Paynter, Davies, & Beamish, 2018;Shave & Lashewicz, 2016;Takataya et al, 2016;Towers 2009).…”

mentioning

confidence: 99%

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

Marsh

Warren

Savage

2018

Brit J Learn Disabil

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Accessible summary Ten fathers were asked to tell their story of being told that their child was diagnosed with an intellectual disability. They said that initially they were shocked, disappointed, in denial and blamed themselves when the diagnosis was certain. All fathers remembered when they were told and by whom they were told about their child’s diagnosis. Becoming a father was a reason to be happy. Abstract BackgroundIn recent years, there has been a growth of research on men’s experiences of becoming fathers, most of which relates to a typically developing child without intellectual disabilities. While some studies have specifically explored the experiences of becoming a father of a child with an intellectual disability, there are few studies from an Irish context. AimThe aim of this study was to present Irish fathers’ narratives within the context of leading up to the diagnosis and the actual diagnosis of a child’s intellectual disability. MethodA qualitative narrative inquiry design was used with ten fathers aged 31–48 years through semi‐structured interviews. ResultsThis study is part of a larger study focusing on becoming a father of a child with an intellectual disability in Ireland. The findings related to finding out “something was wrong” with the child are presented. ConclusionFathers are emotionally affected by the diagnosis of a child’s intellectual disability. Therefore, healthcare professionals need to be cognisant of the emotional upheaval that such a diagnosis can have on fathers and be sensitive to their needs in supporting them through this process.

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Support Needs of Fathers of Children with ASD: Individual, Family, Community and Ideological Influences

Abstract: Fathers are resourceful parents who compel a critical re-examination towards advances in father-friendly practices.

Cited by 21 publications

References 43 publications

‘It’s the most important thing – I mean, the schooling’: father involvement in the education of children with autism

‘It’s the most important thing – I mean, the schooling’: father involvement in the education of children with autism

The experiences of Dutch fathers on fathering children with disabilities: ‘Hey, that is a father and his daughter, that is it’

“Something was wrong”: A narrative inquiry of becoming a father of a child with an intellectual disability in Ireland

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