Supported Self-Care Actions for Children and Teenagers With Chronic Diseases

Abstract

Objective: to analyze actions of Primary Health Care teams from the perspective of supported self-care for children and adolescents with chronic diseases. Method: a qualitative study, conducted between April and August 2016, with 11 primary care professionals from a municipality of Paraíba, Brazil. A semi-structured interview supported data collection; and a thematic analysis backed interpretation, which categorized the actions according to the 5 A ́s methodology (Evaluation, Guidance, Agreement, Assistance, Follow-up). Results: there were insufficient actions in the specific care plans. Isolated interventions are performed including: assessment of barriers to self-care and emotional state of the individual; provision of information on signs, symptoms of disease and treatment; stimulating the search for community resources; actions inherent to professional training; and follow-up by active search and home visits. Conclusions: actions in Primary Health Care do not yet value the active and co-responsible role of the individual in the control of their disease, with gaps to be overcome in the five pillars of supported self-care. Intervention studies are recommended that train professionals regarding supported self-care of these individuals.

Para além da busca ativa: motivações para retorno ao tratamento de HIV [Beyond active search: motivations for returning to HIV treatment] [Más allá de la búsqueda activa: motivaciones para volver al tratamiento del VIH]

“…Estudo realizado com profissionais da Atenção Primária à Saúde (APS) no estado da Paraíba, Brasil, apontou que o cuidado a indivíduos com condições crônicas requer ações individualizadas de longo prazo, e para que isso ocorra, é preciso otimizar estratégias de busca ativa como as visitas domiciliares, por possibilitarem um diálogo e conhecimento da realidade do paciente e de sua família 33 . Ademais, ações de educação em saúde e prevenção de agravos in loco oportuniza a identificação de fatores de risco e a elaboração de estratégias de enfrentamento que favorecem a manutenção do tratamento 34 .…”

Parents’ Perspectives on the Health Education Provided by Clinicians in Portuguese Pediatric Hospitals and Primary Care for Children Aged 1 to 10 Years

“…In order to reflect good nursing practices, it is important to continuously search for the highest quality in care standards, which, in turn, depend on elements that act as the facilitators or hinderers of these standards [ 26 ]. The care partnership, pointed out in this research as a facilitating element of the HE performed by health professionals for children and parents, highlights the necessary relationship between health professionals and family, so that individuals make good choices and maintain healthy behaviors [ 4 ]. Consequently, this result shows the capacity and competence of mediation, negotiation, and building a trusting relationship on the part of health professionals, making parents feel like a fundamental part of the whole process.…”

“…Considering the importance of knowing how to manage disease, informed decisions, and healthy behaviors, health professionals are therefore needed who are capable of promoting the development of self-confidence and self-care in children/young people and the family [ 4 ]. Skills in Health Promotion (HP) have also been discussed in international contexts, implying their improvement in a reflective practice [ 5 ].…”

Abordagem multiprofissional no manejo de doenças crônicas não transmissíveis em pacientes pediátricos com diabetes e hipertensão

“…Nesse sentido, reconhece-se a importância desses profissionais na promoção da autoconfiança e autocuidado desses jovens, bem como de seus familiares. É importante ressaltar que, dependendo da idade, a criança enfrentará certas dificuldades próprias do processo de crescimento e desenvolvimento, que afetam a maneira como a doença é gerenciada (FERNANDES LTB, et al, 2019).…”