Supporting autonomy for people with dementia living in nursing homes: A rapid realist review

Family carers’ experiences of care home visiting restrictions during the COVID-19 pandemic: a relational autonomy perspective

“…While there were positive experiences, our findings align broadly with earlier studies conducted in the UK, Netherlands, Italy and Canada, which identified family carers' feelings of frustration and distress (Chirico et al, 2023;Giebel et al, 2023) and negative impacts on trust between care homes and families (Chu et al, 2022(Chu et al, , 2023. The importance of family involvement in long-term care settings, particularly in dementia, is widely recognised, both in research (Keady et al, 2007;Harding, 2017;Hoek et al, 2018;Boumans et al, 2022;van der Weide et al, 2023) and policy (Carers Trust, 2016;Care Quality Commission, 2022). It is notable, therefore, that our findings suggest the role of families in providing relational support for care home residents, particularly those with dementia, appears poorly considered, in government guidance and in care home policies and communications (Cousins et al, 2021;Chu et al, 2023;Dixon et al, 2023).…”

“…This concept is increasingly seen as key for long-term care research and policy but remains significantly under-developed (Gómez-Vírseda et al, 2019). Our study is also one of few in long-term care employing the capability approach (Pirhonen, 2015;Melander et al, 2018;van Loon et al, 2018), addressing calls for wider application of this approach within ageing research (World Health Organization, 2015;Archard et al, 2023).…”