Supporting children and young people with an acquired brain injury (ABI) and their siblings: The experience of a camp for families with a child with an ABI

Analytis, Penelope; Warren, Narelle; Ponsford, Jennie

doi:10.1080/09602011.2020.1731556

Cited by 6 publications

(8 citation statements)

References 37 publications

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“…The participants gained self-confidence or improvement in functioning by engaging in fun activities with peers. There are other summer camp programs for children with motor dysfunction without a theme-based approach that have also reported similar positive results in the psychosocial areas ( Analytis et al, 2020 ; Zwicker et al, 2015 ).…”

Section: Discussionmentioning

confidence: 70%

The ‘magic’ of magic camp from the perspective of children with hemiparesis

Spencer¹,

Yuen²,

Jenkins³

et al. 2021

J Exerc Rehabil

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Previous studies have examined the quantitative results of using an organized approach of teaching and learning magic tricks—a therapeutic magic camp—but set aside the qualitative aspect. The purpose of this qualitative study is to explore the interpretation of the lived experience of children with hemiparesis after they have participated in a therapeutic magic camp. Six children, aged between 11 and 14 years old, with hemiparesis who completed the magic camp program 3 months prior were invited to participate in an in-person individual semistructured interview. The interviews were audio-recorded and transcribed verbatim for content analysis. Results from the initial qualitative analysis yielded categories of enjoyment, positive social and learning experience from participation in the camp, increased confidence, and self-motivation to use the affected upper limb. These categories were grouped into two themes: “having fun with others while learning” and “helping my arm perform.” Having fun with others while learning was an amalgamation of fun, and positive social and learning experience. Helping my arm perform reflected a sense of increased competence and self-belief, and a willingness and motivation of the children to attempt challenging daily activities. The lived experiences of children with hemiplegia who participated in an organized delivery of learning to perform magic tricks yield-ed positive outcomes. These themes are consistent with the limited literature that is available suggesting that further research is needed to confirm the efficacy of the therapeutic magic camp intervention.

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Section: Discussionmentioning

confidence: 70%

The ‘magic’ of magic camp from the perspective of children with hemiparesis

Spencer¹,

Yuen²,

Jenkins³

et al. 2021

J Exerc Rehabil

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“…The mentees and their caregivers gained valuable insights about ABIs and related impairments at camp, which corresponds with other studies on structured, time-limited peer mentorship activity camps for individuals with acquired neurological injuries (47)(48)(49)(50). In BCY, caregivers were encouraged to allow their children to manage ADL (such as meals) independently, and the children often participated in camp activities without their caregivers present.…”

Section: Increased Insight and Overprotective Caregiversmentioning

confidence: 56%

Enriching the lives of children with acquired brain injury and their caregivers: experiences from peer mentorship sports camps

Wedege,

Mæland,

Divanoglou

et al. 2024

Front. Rehabil. Sci.

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Peer-based community interventions have shown promise in improving health management and fostering coping skills and psychosocial functioning among individuals with a disability. Active Rehabilitation camps are examples of peer-based community interventions that provide structured, time-limited peer mentorship in conjunction with sports and leisure activities. These camps hold potential benefits for individuals with acquired neurological injury. However, the specific impact of Active Rehabilitation camps on children or individuals with acquired brain injury remains unexplored. In this longitudinal, qualitative study, we explored children with an acquired brain injury and their caregivers' experiences with an Active Rehabilitation camp in Norway through observations and interviews with nine children and ten caregivers. Using an abductive thematic analysis, we identified an overarching theme: Active Rehabilitation peer mentorship camps enrich the lives of children with acquired brain injury and their caregivers. The theme contains three sub-themes: (1) Interacting with peers made me wiser, (2) Nudging from peer mentors made me feel better, and (3) A sense of companionship through meeting peers. Peer mentorship, sports and leisure activities, and the safe camp atmosphere benefitted children with acquired brain injury and their caregivers. The children gained knowledge, motivation, and self-worth, and their caregivers had greater impetus to prioritize their children's independence. Meeting peers and peer mentors led to friendships and sustained social connections. The Self-Determination Theory was of assistance in explaining the informants' experiences. Active Rehabilitation camps provide children with acquired brain injury and their caregivers with an opportunity to develop better coping skills, improve psychological functioning, and build more robust social networks.

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“…The qualitative responses to the open-ended survey questions provide insights into these experiences. While the paediatric ABI family research has conducted qualitative research (Analytis et al, 2020(Analytis et al, , 2021Bursnall et al, 2018;Clark et al, 2008;Roscigno & Swanson, 2011;Tyerman et al, 2019;Yehene et al, 2021), the use of qualitative research methods is needed to provide a rich and nuanced understanding of the family experience.…”

Section: Discussionmentioning

confidence: 99%

“…The unexpected nature of an ABI also impacts sibling relationships (Analytis et al, 2020; Analytis et al, 2021; Bursnall et al, 2018; Tyerman et al, 2019). The ABI can challenge a sibling's world view, with their previous sense of meaning, safety and predictability contested.…”

Section: Introductionmentioning

confidence: 99%

“…A paediatric ABI event can have significant impacts on the whole family system that surrounds and supports the child, disrupting the homoeostasis of the system that existed prior to the injury (Analytis et al, 2021; Bursnall et al, 2018; Keetley et al, 2019; Spina et al, 2005; Tyerman, 2015; Wade et al, 2002). ABI family research over the past two decades has shown an established relationship between family functioning and a child's post‐injury social, emotional, participation and quality of life outcomes (LeBlond et al, 2021; Petranovich et al, 2020; Ryan et al, 2016; Wade et al, 2005; Wade et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

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Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home

Hickey

Anderson

Jordan

2022

Health Social Care Comm

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This study explores the impact of paediatric acquired brain injury (ABI) on family relationships. Twenty‐three families (n = 18 mothers, n = 7 fathers, and n = 4 siblings) of children who sustained an ABI requiring treatment from inpatient acute and rehabilitation services reported on their perceptions regarding changes in family relationships since the injured child's return home. Thematic analysis of survey data was conducted. Family members (parents and siblings) described four themes: (1) negative changes in sibling interactions; (2) role changes arising from an increase in parental expectations of non‐injured siblings; (3) family system challenges in balancing needs within the parent–child dyad and sibling subsystems; and (4) supporting emotional responses within the family system. Findings reveal a critical time for families as they resume full care of the injured child at home. Clinical implications for social workers and other rehabilitation clinicians are explored.

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Supporting children and young people with an acquired brain injury (ABI) and their siblings: The experience of a camp for families with a child with an ABI

Cited by 6 publications

References 37 publications

The ‘magic’ of magic camp from the perspective of children with hemiparesis

The ‘magic’ of magic camp from the perspective of children with hemiparesis

Enriching the lives of children with acquired brain injury and their caregivers: experiences from peer mentorship sports camps

Australian parent and sibling perspectives on the impact of paediatric acquired brain injury on family relationships during the first 6 weeks at home

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