Supporting locomotion fluency of six children with Cornelia de Lange syndrome: Awareness of microswitch responding and social validation

Stasolla, Fabrizio; Caffò, Alessandro O.; Perilli, Viviana; Albano, Vincenza

doi:10.3233/tad-180216

Cited by 6 publications

(9 citation statements)

References 49 publications

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“…Technology frequently affected personal development, which entailed a focus on goals ( n = 68; 94.4%) and involvement in activities ( n = 54; 75%). For example, Stasolla et al (2019b) used a microswitch‐based programme that promoted an active role and prevented the subject's isolation. Lancioni et al (2004) increased activity by combining responses with microswitch use.…”

Section: Resultsmentioning

confidence: 99%

From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Piekema,

ten Brug,

Waninge

et al. 2024

Research Intellect Disabil

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BackgroundAlthough particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic.MethodA search of four databases yielded 64 studies. Data were extracted on their general characteristics, methods and sample characteristics as well as the technology types, QoL domains and application within ecological systems. A narrative synthesis was subsequently developed.ResultsMost of the studies applied assistive technology (AT) and focused on personal development and self‐determination on an individual level.ConclusionsTechnology can enhance the QoL of people with pervasive support needs. There are indications that although MT and UD‐based technology are used in practice, few studies have examined these technologies. Therefore, there is a knowledge gap regarding the kinds of technology that are used in practice.

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Section: Resultsmentioning

confidence: 99%

From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Piekema,

ten Brug,

Waninge

et al. 2024

Research Intellect Disabil

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“…The 42 studies (Tables 1 and 2, Multimedia Appendix 1 [10,12,27,28,32,35,37,[59][60][61][62][63][64][65][66][67][68][69][70][71][72][73][74][75][76][77][78], and Multimedia Appendix 2 [26,33,34,36,47,[79][80][81][82][83][84][85][86][87][88]) were conducted in Italy (n=15, 36%), Taiwan (n=14, 33%), the United States (n=5, 12%), Chile (n=1, 2%), Egypt (n=1, 2%), France (n=1, 2%), Hong Kong (n=1, 2%), Israel (n=1, 2%), New Zealand (n=1, 2%), Portugal (n=1, 2%), and the Netherlands (n=1, 2%). A total of 465 participants were included in the studies.…”

Section: Overviewmentioning

confidence: 99%

“…Of the 42 studies, 27 (64%; including 112 participants; Table 1 and Multimedia Appendix 1) were conducted to promote physical activity via technology-regulated delivery of preferred stimulation contingent on specific participants' responses [10,12,27,28,32,35,37,[59][60][61][62][63][64][65][66][67][68][69][70][71][72][73][74][75][76][77][78]. The reasoning at the basis of these studies was that (1) the possibility of helping people with intellectual and multiple disabilities engage in physical activity may largely depend on the context's ability to motivate them to do so and (2) an effective way of motivating them could involve the use of preferred stimulation contingent on responses considered functional for their physical activity [10,27,35].…”

Section: Studies Based On the Use Of Response-contingent Stimulationmentioning

confidence: 99%

“…Stasolla et al [32] carried out a study with 6 children aged 5.8 to 9.6 years who were characterized by severe to profound intellectual disability linked to the Cornelia de Lange syndrome. The aim was to promote walker-aided ambulation in the participants.…”

Section: Xsl • Fomentioning

confidence: 99%

“…In essence, these technologies are designed to facilitate participants' engagement in a pleasant and motivating manner and, to a large extent, independent of staff direct and consistent guidance [24][25][26][27][28]. Programs based on these technologies, which have received increasing recognition over the years [29][30][31][32], seem to represent a relevant intervention option for several reasons [10,[33][34][35][36][37].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Programs Using Stimulation-Regulating Technologies to Promote Physical Activity in People With Intellectual and Multiple Disabilities: Scoping Review

Lancioni¹,

Singh²,

O’Reilly³

et al. 2022

JMIR Rehabil Assist Technol

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Background People with intellectual and multiple disabilities tend to engage in very low levels of physical activity. Objective This review paper aims to provide a comprehensive picture of intervention programs using stimulation-regulating technologies to promote forms of physical activity in people with intellectual and multiple disabilities. Methods Following the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist, a scoping review was conducted to identify and provide a synthesis of eligible studies published in English between 2010 and 2021. Studies were identified by searching PubMed, Web of Science, PsycINFO, ERIC, and CINAHL as well as by using Google Scholar and manual searches. Studies were included if they involved individuals with intellectual or multiple disabilities, used stimulation-regulating technology systems to help participants engage in physical activity, and reported data on the impact of the intervention. Results A total of 42 studies met the inclusion criteria. These studies were divided into 2 groups based on whether they pursued the increase in physical activity through technology-aided delivery of brief periods of preferred stimulation contingent on specific responses or the use of video games (exergames) and related auditory and visual stimulation. Subsequently, a narrative synthesis of the studies was provided. Conclusions The evidence reported by the 2 groups of studies is encouraging. However, further research is needed to compare the overall applicability and impact of the intervention strategies proposed by these groups of studies.

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Promoting Object Manipulation and Reducing Tongue Protrusion in Seven Children with Angelman Syndrome and Developmental Disabilities through Microswitch-Cluster Technology: a Research Extension

et al. 2020

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Supporting locomotion fluency of six children with Cornelia de Lange syndrome: Awareness of microswitch responding and social validation

Cited by 6 publications

References 49 publications

From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Programs Using Stimulation-Regulating Technologies to Promote Physical Activity in People With Intellectual and Multiple Disabilities: Scoping Review

Promoting Object Manipulation and Reducing Tongue Protrusion in Seven Children with Angelman Syndrome and Developmental Disabilities through Microswitch-Cluster Technology: a Research Extension

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