Supporting people living with dementia and faecal incontinence

Russell, Bridget; Buswell, Marina; Norton, Christine; Malone, Jo Rycroft; Harari, Danielle; Harwood, Rowan H.; Roe, Brenda; Fader, Mandy; Drennan, Vari; Bunn, Frances; Goodman, Claire

doi:10.12968/bjcn.2017.22.3.110

Cited by 15 publications

(11 citation statements)

References 25 publications

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“…Despite this, the WHO2 recently highlighted that 146 countries currently do not have a national plan for Dementia. Those countries that do have policies often employ a holistic focus on care (eg,3–5) however as the disease progresses often the focus of care shifts toward the physical body 6–9. This emphasis on physical needs often comes at the expense of personhood needs 10…”

Section: Introductionmentioning

confidence: 99%

Namaste care in the home setting: developing initial realist explanatory theories and uncovering unintended outcomes

Dalkin

Lhussier

Kendall³

et al. 2020

BMJ Open

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IntroductionThe End-of-Life Namaste Care Program for People with Dementia, challenges the misconception that people with dementia are a ‘shell’; it provides a holistic approach using the five senses, which can provide positive ways of communicating and emotional responses. It is proposed Namaste Care can improve communication and the relationships families and friends have with the person with dementia. Previously used in care homes, this study is the first to explore the pioneering use of Namaste Care in people’s own homes.ObjectiveTo develop initial programme theories detailing if, how and under which circumstances Namaste Care works when implemented at home.DesignA qualitative realist approach following the RAMESES II guidelines was employed to understand not only whether Namaste Care has positive outcomes, but also how these are generated, for whom they happen and in which circumstances.SettingA hospice in the North East of England, operating in the community, through volunteers.ParticipantsProgramme theories were developed from three focus groups with volunteers implementing Namaste Care (n=8; n=8; n=11) and eight interviews with family carers (n=8).ResultsFour refined explanatory theories are presented: increasing engagement, respite for family carers, importance of matched volunteers and increasing social interaction. It was identified that while Namaste Care achieved some of the same goals in the home setting as it does in the care home setting, it could also function in a different way that promoted socialisation.ConclusionsNamaste Care provides holistic and personalised care to people with both moderate and advanced dementia, improving engagement and reducing social isolation. In the present study carers often chose to use Namaste Care sessions as respite. This was often linked to their frustration of the unavoidable dominance of task-focussed care in daily life. Individualised Namaste Care activities thus led to positive outcomes for both those with dementia and their carers.

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Section: Introductionmentioning

confidence: 99%

Namaste care in the home setting: developing initial realist explanatory theories and uncovering unintended outcomes

Dalkin

Lhussier

Kendall³

et al. 2020

BMJ Open

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“…Research in the related field of dementia friendliness provides relevant insights [ 3 ]. Buswell et al [ 78 ] highlight raising awareness (in this case, of dementia) and, thus, generating understanding in the community as the necessary starting point for creating an environment that enables people affected by dementia to live well. In the context of AFCs, awareness raising relates closely to the strategic objective of combating ageism in the WHO’s Global strategy and action plan on ageing and health [ 39 ].…”

Section: Discussionmentioning

confidence: 99%

How is Respect and Social Inclusion Conceptualised by Older Adults in an Aspiring Age-Friendly City? A Photovoice Study in the North-West of England

Ronzi

Orton

Buckner

et al. 2020

IJERPH

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The World Health Organisation (WHO) Global Age-Friendly Cities (AFC) Guide classifies key characteristics of an AFC according to eight domains. Whilst much age-friendly practice and research have focused on domains of the physical environment, those related to the social environment have received less attention. Using a Photovoice methodology within a Community-Based Participatory Research approach, our study draws on photographs, interviews and focus groups among 26 older Liverpool residents (60+ years) to explore how the city promotes respect and social inclusion (a core WHO AFC domain). Being involved in this photovoice study allowed older adults across four contrasting neighbourhoods to communicate their perspectives directly to Liverpool’s policymakers, service providers and third sector organisations. This paper provides novel insights into how: (i) respect and social inclusion are shaped by aspects of both physical and social environment, and (ii) the accessibility, affordability and sociability of physical spaces and wider social processes (e.g., neighbourhood fragmentation) contributed to or hindered participants’ health, wellbeing, intergenerational relationships and feelings of inclusion and connection. Our findings suggest that respect and social inclusion are relevant across all eight domains of the WHO AFC Guide. It is core to an AFC and should be reflected in both city-based policies and evaluations.

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“…Dementia is understood to be progressive brain damage caused by a multitude of diseases that affect the brain (Innes and Manthorpe, 2013;Stokes et al, 2014;Cunningham et al, 2015). Progressive cognitive decline means the ability of the brain to control defecation and urination in a socially acceptable manner often becomes compromised, leading to urinary and FI (Drennan et al, 2012 with dementia can present as "inappropriate voiding", meaning defecation outside of the socially acceptable vessels or times (Andrews, 2017;Russell et al, 2017).…”

Section: Dementiamentioning

confidence: 99%

“…This means that when experiencing issues such as faecal incontinence (FI), symptom management becomes increasingly difficult. For the context of this article, FI refers to the involuntary excretion of stools (Forbes, 2015) or inappropriate faecal expulsion, meaning defecation that takes place outside of the bathroom and in an inappropriate receptacle or location (Andrews, 2017;Russell et al, 2017) This article also refers to formal carers, which in this context means care staff working in a nursing or residential home who are educated up to level 4.…”

Section: Introductionmentioning

confidence: 99%

Everybody S***s: how defecation stigma reduces care quality in dementia

Hewer-Richards

Goodall

2020

QAOA

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Purpose This paper aims to raise awareness of the ways in which faecal incontinence can impact the provision of dementia care by examining this through the lens of stigma. Design/methodology/approach This paper contains a scoping review of available literature relating to faecal incontinence, dementia and stigma. Findings Literature was organised into three themes: the origins of the stigma, the purpose of stigma and the care context. Research limitations/implications Limitations of this paper include the lack of literature discussing faecal incontinence and dementia in relation to stigma. Practical implications Stigma regarding faecal incontinence has the potential to impact quality of life of people with a dementia and contributes towards the invisible work of unqualified care workers. Originality/value Stigma and faecal incontinence have only a small amount of research around them in residential dementia care.

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Supporting people living with dementia and faecal incontinence

Cited by 15 publications

References 25 publications

Namaste care in the home setting: developing initial realist explanatory theories and uncovering unintended outcomes

Namaste care in the home setting: developing initial realist explanatory theories and uncovering unintended outcomes

How is Respect and Social Inclusion Conceptualised by Older Adults in an Aspiring Age-Friendly City? A Photovoice Study in the North-West of England

Everybody S***s: how defecation stigma reduces care quality in dementia

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