Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech &amp; Language Therapists in Ireland

Manning, Molly; Cuskelly, Ciara; Russ, Erin; Franklin, Sue

doi:10.1111/hsc.13021

Cited by 18 publications

(36 citation statements)

References 67 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…To deepen understanding of how to support emotional well-being with aphasia requires us to contextualize mental health against broader social and structural determinants of health. This is particularly important given the documented shortcomings in access to psychological care for PWA (Manning et al, 2020a(Manning et al, , 2020b and the exclusion of PWA from post-stroke depression trials (Brady et al, 2014).…”

Section: Connections With the Literaturementioning

confidence: 99%

Regulating emotional responses to aphasia to re‐engage in life: a qualitative interview study

Manning

MacFarlane

Hickey

et al. 2022

Intl J Lang & Comm Disor

Self Cite

View full text Add to dashboard Cite

Background: People with post-stroke aphasia (PWA) are more likely to experience serious mood disorders compared with those without. Emotional regulation may be important for influencing life participation after stroke. Understanding emotional regulation in the context of aphasia is important for promoting personally defined recovery, psychological well-being and life participation. Aims: To explore how individuals experience and regulate negative emotional responses to aphasia as part of re-engaging with life. Methods & Procedures:In-depth semi-structured qualitative interviews with 14 PWA were conducted. The focus and design were developed with public and patient involvement contributors. Reflexive thematic analysis was applied.Outcomes & Results: Analysis generated three themes, which captured inherent diversity across participants in terms of emotional experiences, responses and regulation strategies: (1) emotional upheaval at all stages of recovery; (2) regulating emotional upheaval; and (3) discerning possibilities for life participation. Emotional regulation occurred both within and without the context of formal support services.Conclusions & Implications: Individuals may be differently (en)abled in responding positively, with implications for aphasia psychological support and self-management interventions. The findings may inform future interventions to optimize well-being and personally meaningful outcomes for PWA.

show abstract

Section: Connections With the Literaturementioning

confidence: 99%

Regulating emotional responses to aphasia to re‐engage in life: a qualitative interview study

Manning

MacFarlane

Hickey

et al. 2022

Intl J Lang & Comm Disor

Self Cite

View full text Add to dashboard Cite

show abstract

“…Barrows et al's (2021) critical review noted that impaired language presents challenges to assessing mood. Although approximately one-third of stroke survivors suffer from aphasia, aphasic patients are minimally included as participants and decision-makers of stroke research, leading to a lack of guidance regarding service planning and delivery (Franklin et al, 2018;Manning et al, 2020). Franklin et al (2018 conducted a qualitative survey of 18 SLPs, seven carers and 21 aphasic patients to derive their perceived 'top 10' priorities of post-stroke management.…”

Section: Screening Measures and Self-assessment Instrumentsmentioning

confidence: 99%

“…Moreover, broader psychosocial factors must be considered in aphasic stroke patients' rehabilitation process (Wray & Clarke, 2017). Manning et al (2020) performed a cross-sectional survey to explore further what health and social care support and information were available for aphasic stroke patients. Manning et al (2019Manning et al ( , 2020 had previously established that a lack of training and support for aphasic stroke patients' families during acute care was detrimental because families were unskilled in coping with their carer responsibilities.…”

Section: Internal and External Structural Influencesmentioning

confidence: 99%

Voicing the perspectives of stroke survivors with aphasia: A rapid evidence review of post‐stroke mental health, screening practices and lived experiences

Kristo

Mowll

2021

Health Social Care Comm

View full text Add to dashboard Cite

A rapid evidence review (RER) of empirical literature was conducted to explore aphasic stroke survivors' mental health outcomes and lived experiences, as well as the screening instruments for this cohort. The RER was informed by a critical disability theory approach and synthesised qualitative and quantitative evidence within and across 29 studies, published between 2000 and 2021, from a systematic search of three databases. Understanding the relationship between post-stroke aphasia and mental health outcomes is essential for developing comprehensive treatment strategies and designing appropriate long-term care. Available screening instruments currently only detect depression and anxiety, which are then used to detect further mental health issues.The RER revealed that the current screening instruments demonstrate reliability; however, research remains limited regarding their validity. Furthermore, limited studies include aphasic patients as participants and decision-makers in stroke research.Methodological limitations across studies include comparators and small sample sizes.Importantly, across the studies, there is a lack of representation of culturally diverse and minority participants. Overall, the RER results found a high prevalence of aphasic stroke survivors experiencing depression and other mental health outcomes, indicating that implementing mood screening in a timely manner is essential. In addition, the results support that psychological care pathways must be developed and evaluated in consultation with aphasic patients' and carers' lived experiences to identify stepped levels of care and establish appropriate screening instruments. Furthermore, the health system requires consistency, which would ideally be achieved by establishing staff roles and responsibilities regarding mood screening and supportive care in these psychological care pathways. Including mental health specialists such as social workers and establishing specialist training in the multidisciplinary team would support this endeavour. There is a need for further research regarding mood screening instruments, a diversity of aphasic stroke survivors' lived experiences and the clinical expertise of those providing psychological support.

show abstract

“…This is especially salient in the context of the growing incidence of stroke in working aged people 31 , 32 , 33 and evidence that access to stroke support is front‐loaded. 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43…”

Section: Introductionmentioning

confidence: 99%

‘I hated being ghosted’ – The relevance of social participation for living well with post‐stroke aphasia: Qualitative interviews with working aged adults

Manning

MacFarlane

Hickey

et al. 2021

Health Expectations

Self Cite

View full text Add to dashboard Cite

Background In the context of increasing incidence of stroke in working aged adults, there is a specific need to explore the views of working aged adults with post‐stroke aphasia, whose communication difficulties may result in restricted social participation, loss of employment and changed relationship and parenting roles. This study aimed to explore the perspectives of working aged adults with post‐stroke aphasia in relation to social participation and living well with aphasia (LWA). Design and participants We conducted qualitative interviews with 14 people with post‐stroke aphasia (PWA). Data were analysed following principles of reflexive, thematic analysis. Patient or Public Contribution: A Public and Patient Involvement aphasia advisory group inputted into the study design and interpretation of data. Results Social participation spanned 5 themes: Relationships and roles; Social support; Peer network, Aphasia awareness; and Employment and training. Meaningful, interesting social participation for LWA is individually defined. Working aged PWA may require flexible support with parenting, accessing a diverse social network and finding opportunities for meaningful social connection, training and employment. Conclusions The findings extend knowledge of social participation in the context of LWA for working aged adults by elucidating the individually defined nature of meaningful participation and how PWA may need flexible support with parenting, accessing a diverse social network and training and employment. For aphasia research, policy and services to be relevant, it is crucial that working aged PWA are meaningfully involved in setting the aphasia agenda.

show abstract

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Cited by 18 publications

References 67 publications

Regulating emotional responses to aphasia to re‐engage in life: a qualitative interview study

Regulating emotional responses to aphasia to re‐engage in life: a qualitative interview study

Voicing the perspectives of stroke survivors with aphasia: A rapid evidence review of post‐stroke mental health, screening practices and lived experiences

‘I hated being ghosted’ – The relevance of social participation for living well with post‐stroke aphasia: Qualitative interviews with working aged adults

Contact Info

Product

Resources

About